-
High CEA levels
I want to move out of the zone where my CEA levels rise, scans are done, results coming in and the wait causes stress, which causes cancer, supposedly. It's a rut. It's like a bad job. Waiting for the news. I want to reduce doctor appointments to maximum of 2x/year. CEA goes up and down. We can't worry and ruminate every…
-
got second opinion...
I had my second opinion this morning from another surgeon. He agrees with the first one that I should have all of my colon removed because of the lynch syndrome and besides the fact I have a 2cm tumor on the right side. This Dr wants me to have another endoscopy of the stomach. I just had one in May and it was normal, so…
-
Buck! ready for the next release?
Really like it!
-
Scan Reults- Somewhat freaked out
Had my 6-months scans this week By way of perspective, I am 1 year out from last chemo; 2 years out from DX,colon resection, ileostomy and 1 year out from liver resection of 8 tumors There's always been a nodule on my lung, no one ever worried about it. Current scan shows a growth from 3mm in December to 7 mm now. Onc said…
-
Will colonoscopy always freak me out?
I'm almost 2 yrs NED I have no reason to suspect any issues, but I'm nervous. I guess it's because this is how I found out 2 years ago.
-
Been a while (**Updated pic!)
Wow, I really need to update my picture. My little boy is already 21 months!! (EDIT: just changed the picture. He still has the same smile, just more hair and a bit more attitude!) Anyway, I haven't posted much but check in almost daily to see how everyone is doing. Just wanted to share some good news: 15 months ago my…
-
Colon Calendar - Ms September 2011 AND COVER
Newbies.......or anyone Stage 4 survivor, thought you might like to read. http://www.colonclub.com/2011September.html COVER http://www.colonclub.com/2011Cover.html
-
OT....website slow?
Taking me forever to login to the CSN discussion board. Anyone else have this prob? Hit several other msg boards and no problems, mainly here.
-
Good CEA report?
I had my second 3 month follow up after chemo. In April my CEA was 1.2 and today it is 1.3. I told my wife and she was really upset that it went up. I told her the numbers are low and it was a normal fluctuation and not to worry. I have read some high numbers that have been reported on this board. I don't know what my…
-
lung biopsy results from hospital
Hi All, I got my lung biopsy results from the hospital back yesterday (right as I was walking out the door to go get chemo). No fungus in the lungs! They did, however, find a type of a staph infection in the biopsy, so I have been given antibiotics for that. They said it's possible that it was infected from the nose by the…
-
Another good report
Got the test results of my blood workup this morning... CEA holding steady at about 1 - 1.1, everything else looking GREAT. Go in tomorrow morning for my high-contrast CT scan to check liver and the small calcium spot on my lung for any growth, but we're expecting good news there too. Thank you Dear Lord for GOOD news :D
-
Liver Resection / Chemo Afterwards?
My Mom is scheduled for a Liver Resection on the 12th of July. After her 9 rounds of chemo the 2 spots on her liver have shrunk. Dr. said she will be in the hospital 7 - 10 days. Just a few questions . . . How long before full recovery? (planning a celebration trip in Feb 2012 - godwilling) Is chemo typical given after…
-
Groundglass in luings
HI everyone, I haven't posted in a while but still lurk now and then. I recently had my scans and all were clear, 2 yrs from surgery date, or 17 mths from finished chemo treatments. Depends who you talk to about when you considered yourself cancer free, from surgery date or finished chemo date.. anyway, my chest CT showed…
-
new to site
I have recently been dx with colon cancer. I have been waiting for 4 weeks for surgery because my Dr. wanted to do gentic testing first because of my age and no family history of cancer. The gentic tests results came back that I have HPNCC. My CT scans showed no evidence of Mets. MY CEA was 0.7. I am waiting on the call…
-
Kombucha
Recently at the farmers market a very healthy woman in her 50s was selling fermented foods. the health benefits of them can be researched on the internet. She introduced me to a tea she said it was made with a fermented mushroom. she said it would help with digestion and give me a refreshing cleanse, and to top it off a…
-
crc mets
I new to this site. I am hoping to find support and information. I was dx with CRC last yr and underwent surgery, radiation with oral chemo and 6 months of iv chemo...my followup scan in May showed mets to both lungs. I'm now starting chemo again. CPT11, 5FU, Avastin. Is anyone out there on this or have experience with it?…
-
Seeking those in a similar situation
Diagnosed with Crohn's in 1982; colorectal cancer surgery resulting in a colostomy 12/2008; now facing complete removal of colon and living with an ileostomy. Having a very difficult time not only physically but emotionally as well. Would like to find others for mutual support and information sharing. Thanks
-
taste buds and eating
I finished folfox March 23rd came back NED for colon cancer. The folfox damaged my liver and I now have cirrhosis. Good news is gastro doc thinks I have a least two years maybe 10 before liver fails. My problem is eating. Since Folfox I have to force food down. Nothing and I mean nothing tastes good. I did 24 days in the…
-
Started a blog
Hi, everyone. I've been going through sort of a rough time emotionally. Too many people who are very dear to me getting diagnosed with cancer, plus losing too many dear ones. So, in addition to staying rather quiet here (and apparently the quietness has not been noticed!), I have also started a blog. If you are interested…
-
What Is Papaya Enzyme? Just an FYI
I pop three of these chewable tablets in my mouth each morning and they have really helped me with my acid reflux. Just an FYI on the enzyme. Papaya enzyme is called papain, a digestive enzyme that helps break down certain types of food in the stomach. Papain dissolves protein tissue when it comes in contact with certain…
-
Tumor Stage ypT3,ypN1b,ypM0 ???
We got Matt's pathology from his colon tumor. it is YPT3, ypN1b,ypM0.. Can anyone tell me what this means? Our doc said he is Stage IV. Tumor was Low Grade (moderately differentiated). He has had a liver & colon resection, all margins clear. Just had a Pet scan & nothing lit up, just post operative stuff. Just trying to…
-
did i really have crc? was the last year just a nightmare?
The wife, kids and I are having fun at wananavu resort fiji. So much so I have almost thought the last year did not happen. Did I post all the posts, have all the juices, try all the supplements?do the ops, take he folfox express? Well I know I did.got $700 suplements here on the shelf, taking them morning and night.my…
-
New to board
Hi everyone, I am new to the board and am caretaker for my husband. He became a semicolon in February and had 7 out of 12 nodes positive.Our oncologist told us without chemo there was a 60 % chance of the cancer coming back....with chemo it would be 30%. He has had 8 cycles of 5-fu /Oxalipatin. Not to many problems with…
-
Jorge's CEA count :(
Well today the chemo doctor called to tell us that jorge's Cea is at 5.1 now in February it was at 2.6 its 3weeks today that he has his tumor remove from his rectum and on the 11th of this month and on the same day we meet with the liver doctor I have to tell you guys I'm sooooooo scared I just want to cry thanks for…
-
Little things that make your life easy while on chemo!
Doc. Says i'm doing very fine with chemo.I'm in my 8 cycle of Folfiri+Avastin , not major effects, good labs,not major liver damage ,no nausea ,no big diarreaha ! CEA,dropping!. Wow, I must be happy .Yes I'm not having any dramatic effect if I compare my self with other mates.But there a some little things that my doc does…
-
Sundanceh! Craig!
You fine? ,not posting since a while ! are you concentrated on the Book?. Miss you Mate!
-
Pain after surgery
It's been awhile since I posted anything. Roby had his surgery on May 16th 7 hours, could not remove all of the tumor. Said the radiation burned it into the wall. Then a few days later had to have another surgery, incision started separating and the bowel was starting to protrude, left that open till May 24th and then…
-
OT - My Excellent European Adventure Day Seven
We rise in the morning, and prepare to check out of our hotel. After packing up we make our way downstairs and place our bags in the lobby, then a last meal in Verona. Today we go to Venice! The group comes down in bits and pieces, but eventually we are all there, waiting on our bus, and a quick trip to the train station.…
-
Marriage and CRC
Marriage Might Boost Colon Cancer Survival Sometimes it is the simple things.
-
Buck is there a new release of your travel available?
Hugs my dear friend!