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bilirubin & liver
My sister has colon cancer with liver mets. Her liver is functioning very poorly so they have had to modify her chemo regimen as not to cause excessive damage to the good liver cells. Anyway, my question being they cannot get her bilirubin level down and aside from saying it is the cancer have not been able to determine a…
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A "Lab" Horror Story
Hi all - Well maybe this isn't exactly a horror story, but if you have ever had Lab work done at Quest Diagnostics, I suggest you no longer do that. Here's my tale........ As some of you know NIH has been evaluating me. As part of that they wanted my blood work - CBC, Chemistry, CEA from the time of diagnosis. Well, I got…
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Colorectal Cancer Seminar
Hi Everyone, I went to a seminar here in Atlanta last night that was held at Piedmont Hospital. They gave a lot of good information about treatments, genetics etc. But one of the highlights of the night was a talk by Steve Bartkowski, the former Atlanta Falcons quarterback. He did a great job of talking about this from a…
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thrush
Any suggestions of how to alleviate thrush? My sister has started chemo and has developed thrush. Thanks.
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Any recommendatons for ND in L.A.?
Several posters have encouraged me to seek an ND who specializes in cancer for my friend so if anyone out there knows of a good one in the Los Angeles area, please let me know. Thanks! Kathryn
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Attention JADot! Re: Mushroom extract
JADot, can you please tell me more about the extract and where I may be able to buy this? My friend is facing an aggressive chemo regimen and I think he could benefit from this. Thanks! Kathryn
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may interest some people
http://www.aloedipadreromanozago.it/eng/padre_romano_zago.htm.Check out this page
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ENERGY-GRAM
As suggested by Bud (as in "nip it in the ___") Here's a daily positive energy shout out to all the CSN peeps from the Semi-Colons! Happy Colon Cancer Awareness Month... Live Strong - Be well. - SpongeBob
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off topic, something positive
Hi Everyone, I hope that you're doing well. I thought I'd share something positive, even though it's off topic. My daughter is getting married Saturday. I'm very excited and looking forward to the fun. She is my third daughter to get married in less than 5 years which explains my lack of money! Sometimes I need to forget…
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supplements?
Hi everyone, Just wanted to let you all know that my dad is doing okay with his chemo. He will be getting his 3rd treatment on Monday. He's had some tingling and numbness in his hands when it is cold out, but over the last few days, it has been warmer and he hasn't had that problem as much. We still aren't sure about that…
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ports
Fir those of you who have a port, just out of curiousity, does it hurt when it is accessed when they use freeze-spray? I have only been accessed twice, and both times I had emla (sp?) cream. Just curious about whether I should take that with me. Thanks
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IT SURE HAS BEEN A LONG,LONG TIME!
Hello all. I know that it has been what, at least a year and a half since any of you have heard from me, but I want you all to know that there truly has not been a day that has gone by without my thoughts wandering to some of you, if not all of you guys here on this fabulous board that helped me so much through my up and…
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liver resection and hepatic pump
I have not posted here for a while but have been following on posts here frequently. My dad was diagnosed in Nov 05 with stage 4, with 5 nymph nodes positive and liver mets. Did a resection in december on his colon and removed lymph nodes. Now he has completed 8 rounds of Xeloda, Oxiliplatin and avastin. The mets on his…
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Still NED
Yesterday's PET scan was negative, and the doctor said there were no polyps to be found during today's flex sigmoid exam. So I guess I'm still in remission. Now I just hope that everyone else can have negative PET scans ... Rodney
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Help for FIL chemo side effects
Hello everyone and I certainly wish I could meet you all under better circumstances, that's not possible at this time. My wonderful FIL was diagnosed with peritoneal carcinomatosis in February. Very scary to say the least. He opted for the Folfox protocol with Avastin and had his first treatment yesterday. It is not well.…
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Cool PBS special last night
I just watched a PBS show on patient care last night. Dealing with pain handling and mind set and how it affects not only during cancer treatment, but after and for anyone else (heart patients, etc). Studies currently being done all over the country for this. Duke, Scripps, MD Anderson. BIG breakthru....HOPE makes a big…
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My Colonoscopy
Hi All, Well I had my 2nd colonoscopy in less than 2 years. I have to say they were as different as night and day. I felt everything during my 1st scope and was in the hospital all day waiting for my blood pressure to come back up so they could release me. I felt NOTHING this time and I do not remember the conversation…
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more info on genetics
I know that there have been some posts about genetics here...especially from our resident "salty", SpongeBob. I thought a refresher(prompted by a mail from Debralla) might be usefull especially for our newbies.Check these pages. cheers Ross n Jen COLON CANCER http://www.genetichealth.com/Colon_Cancer_Home.shtml…
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having a bad day---another insurance dilema
Hi to all: I just had a good cry, my first in months. I have a colostomy and want to learn to irrigate. I have an appt. to have the stoma nurse help me in May. I have been ordering supplies to be ready for the big day. I ordered an irrigating kit in Jan. Now I want to order another to have a spare. The company that I get…
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colon cancer comedy show in Toronto
Hi there, Not sure how many of you are from Toronto but for the learkers who are there is a 'Colon Cancer Comedy Show' April 8th in Toronto. I realize the illness is not a joke but this is in support of the Colorectal Cancer Association of Canada. http://www.ccac-accc.ca/crack2.asp julie :)
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Remembering Grandma 07
Hi Everyone, I just wanted to share with you all today would have been Judy's Harmons Birthday. Even though Judys no longer with us I know she's watching over us. Lisa Rose
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Tapeworms Part II
Hi Guys: Ever since my little discovery on chemo and tapeworms from the other day, I've developed quite the morbid curiosity on the subject :) For those of you who don't know what I am talking about, search for a previous thread titled "Chemo Humor". So, here's more trivia on tapeworms, and with that, I lose my last bit of…
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My mother's story could save your life.
Some have asked for more information about the amazing story of my mother's healing of stage 4 ovarian cancer. RESVERATROL. Shout it from the rooftops. For all cancers. There is evidence that it is useful against colon cancer. There are studies EVERYWHERE. Go to Google. Type in your type of cancer and the word…
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NED, NED, NED !!!!!
Should I say it again ??? NED !! Recap...Dx with stage 4 colon cancer Jan 2005. ( and then breast cancer in Dec 05...but caught at a very early stage )Going to Puerto Rico to celebrate !!!! God bless you all Ileana
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Crazy with worry...
I've been writing to the group for sometime about my friend Mark. Today he finally went for a follow up CT scan (two month wait!) after his Feb. 2nd rectal surgery. During the surgery they found a nodule on his liver; a biopsy showed it was cancer. It has been agony waiting and wondering if Mark has more cancer aside from…
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PET Scan Wednesday, Flex Sig Thursday
Yep, I got two big tests over the next two days. As a reminder, I was diagnosed stage four last May, with seven liver mets and a suspicious lung nodule. Six Folfox sessions (three months) later a PET scan showed no evidence of disease -- that was in September. Another PET scan in November also was clean. This is my first…
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cat scan
hi all, just wanted to share good news . cancer has not spread past rectum. yahoo!!! thanks for all your support, it helps so much, cherri
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Caught in the Insurance Cogs!
Ok, so I'm probably preaching to the choir, but THIS made me SO DARN MAD!!! Hope you all don't mind me venting. I am scheduled for my last chemo on Wednesday of this week, appt with onc yesterday to review. BILLER called and said "Please don't come in today, your insurance company owes us money". After initial panic, I got…
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A Change in Side Effects?
I've done 60 chemos since March 04. I did 12 FOLFOX, had surgery and a hepatic pump installed. I did 12 more with CPT 11 and FUDR. Liver was clear. Then in June 05, I found I had some lung mets. I started on Erbitux taking it every week and CPT 11 every other week. Up until chemo #55, I had problems with constipation only.…
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Neuropathy and Walking
Hi Everyone, I posted about neuropathy a couple weeks ago. If you happened to read, I was debating whether to do the final 12th round of FOLFOX because I had finally developed neuropathy in my feet. Well I went ahead and did the final round at the urging of my oncologist. Now I'm done...Woohoo! My neuorpathy isn't too…