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Brain Cancer

Archives for January 2010

Astrocytoma - Long Term Effects?????????????
I was diagnosed with a brain tumor in Sept of 2006. After two resections within 5 weeks, 6.5 weeks of radiation and 20+ months (extra just to be sure) of Temodar.....lingering symptoms of fatigue. My oncologist told me it would take me up to a year to get my energy back, it is going on 20 months. I was an avid exerciser,…
Husband and Myself Have Cancer
This past summer my husband and myself were diagnosed with cancer. I was diagnosed with breast cancer in July. I had a mastectomy and 10 lymph nodes removed. The tumor was almost 7 cm and 7 nodes were cancerous. I am stage 3a. Two months after my surgery, my husband was diagnosed with a brain tumor. He has GBM4. For a few…
Loss of Mama
Mama was there when I took my first breath it was only fitting I was there when she took her last breath. Peaceful is the word. From the day she was told it was brain cancer November 2, 2009 I said goodbye January 11, 2010. Tears come as I write and tears will come for a long time. It's nice to have a place to come and…
spinal fluid cns
I need help. My mom is sick and this has been going on for almost 9 months. I take care of her 7 days a week. I feel like giving up I'm so tired and stressed. I love her infinously and I need her to get better. I want nothing but the best for her. She just finished 16 treatments of radiation the the whole brain and She's…
Oligoastrocytoma Grade III
Hello everyone, I am new to this site and new to brain tumor. I found out there was a "spot" in my brain (left frontal lobe) after a CT scan in Sept 09. They thought that it was a stroke though and it wasn't until an MRI 2 months later that they discovered it was infact a tumor. I am 28 so I knew it wasn't a stoke. I had…
Grade 4 glioblastoma multiform
My husband was diagnosed with a grade 4 glioblastoma multiform on his brainstem. We were told that it is inoperable. We are on dexamethasone, one week into a 6 week radiation program, and taking temodar. I need some help. Is it inoperable? Does anyone know anywhere that operates on them. We have been told that there is a…
dexamethasone nightmare!
my husband is currently coming off of the steroid dexamethasone, and it is hitting him hard! sore hips and weakness are to expected, i hear. he has both. but he is sleeping all the time now. he is having trouble with thinking and speech... i'm sure some of you have had some experience with this drug. i'm asking if anyone…
Germinoma Germ cell
Hi my name is Jalanie I was diagnosed with germinoma germ cell tumor in my brain when I was 16. My pituritary gland no longer functions. I take a harmone replacement called cortef. I had chemo thepapy and 17 treatments of radiation. I was also left with adrenial insufficency and diabetes insepidus. I am 19 years old now…
Recently Diagnosed, 3 Years After Retirment, Prooving VA Service Connection to Having Served US Army
Veteran's Affairs: Proving a Service Connection, VA Claim My name is Robert. I'm Retired US Army, and recently diagnosed with GBM4, 44 years old. I was diagnosed on 12/16/2009. I've had 2 life altering events in the month of December 2009. On 11/17/2009, my father who I was very closed to passed away in New Jersey. I live…
Husband Sleeps 18 hrs a day with Temador. Is this totally expected or is part of this depresson?
My 67 year old husband had brain surgery the end of Sept. The surgeon removed 90% of the tumor and my husband completed radiation and 6 weeks of daily temador Dec. 4th. His first MRI showed great results. He is now in his 2nd month of temador 5 days (420mg daily) a month and he sleeps about 18 hours a day and has no…
Diffuse Astrocytoma Grade II/Gliomatosis Cerebri -- anybody out there?
Hi, I was diagnosed with diffuse astrocytoma grade II (gliomatosis cerebri) in September 2009. Inoperable. We have found it difficult and confusing to understand the treatment options and prognosis. We eventually chose radiation therapy (whole brain radiation) and temodar. Radiation is now complete and temodar continues.…
Hand tremor - anyone had success treating with physical therapy or other approach?
Hi All, I am new to this with recently-treated diffuse astrocytoma (radiation, temodar). I have developed a tremor in my left hand which has made typing and other tasks difficult. I understand this is a fairly common symptom. Has anyone had success controlling it? Looking for ideas. Steve
Thoughts on the book 'Anticancer, A new way of life' by David Servan-Schreiber
Hi, I have a brain tumor (diffuse astrocytoma/gliomatosis cerebri) and have (almost) finished reading the book "Anticancer, A new way of life." Getting this diagnosis and beginning treatment has been at times chaotic and confusing, sometimes surprisingly joyous, but definitely tumultuous. I found that this book touched on…
inoperable brain tumor.
my husband was diagnosed with an inoperable brain tumor grade III in oct. he has never had ANY health problems in his 50 yrs. the only symptom he had was loss of balance. he has had 25 radiation treatments and will undergo 5 cyberknife treatments jan 18-22. since the radiation treatments and all of that decadron he is so…
ependymoma at 6yrs and isnow 19yrs old..
my son was diagnosed with an ependymoma on the brain stem in 1997 at the age of 6 he is now 19.Doctors told me that he would live 6 mths with or without treatment. He is still here.He has a shunt in his head.Shunt has been in his head now for 10 yrs he is doing fine but has a few probs.He has double vision and has had that…
Is it common need to biopsy brain tumors more than once?
My husband was diagnosed with an anaplastic actrocytoma located in the thalamus a year ago. The tumor is inoperable due to the location. He is being treated at a highly repected teaching hospital and we obtained 2 other opinions before proceeding with treatment. His initial treatment was radiation therapy and and temodar…
6 years old girl with brain stem glioma
WE FINSHED THE RADIATION FOR 1 MONTH NOW & MY LILTTLE GIRLS BECAME VERY VERY WEAK IN TALK AND WATCHIN is that normal or what?

Brain Cancer

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