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Anal Cancer

Archives for October 2013

New Member
Hi all. I have been reading posts for a few months but finally decided to actually join the discussions. I was diagnosed with stage 3b back a few months ago. I had chemotherapy-5 FU and Mitomycin and 30 IMRT radiation treatments. I had my first PET scan a couple of months ago and everything was all clear! I was/am so happy…
Health Insurance.....buyer beware
I hate to bring up a sore subject, but I am in the process of reading health insurance plans because I buy on the direct market and my plan will end. Not only have the costs gone way up, but I want to caution everyone to read the fine print and double check the networks, most of which have changed! Networks of providers…
Health Insurance
Is anyone else having trouble dealing with the changes in health insurance? I am at my wit's end. The costs here have skyrocketed and the networks are limited. UGH!
3 year checkup coming up....
Hi fellow cancer survivors and those in treatment: I am due for my 3 year checkup (Pet scan) and am getting anxious. You would think this gets easier, and it does, but a week before the check up I am just as nervous. It is this feeling of not knowing and thinking it will be ok but then... constantly questioning. I feel…
A question for women ....
Are you able to have comfortable, vaginal sex post treatment? Really? If so ... What helped you? do u have vaginal stenosis? Scars? How did u get beyond all this to get back sexual intimacy? My perineum is so friable that it bleeds when I wipe to hard ... And I use gentle wet ones. I need a frank, no **** discussion of…
Research anal cancer, dysplasia .... A place to learn and thought provoking
http://www.ucsfhealth.org/joel.palefsky see link here re; UCSF physician renowned in area of anal dysplasia and infectious disease ... See his long list of publications ... i found this interesting. He deals with a "high risk" group ... So risk factors are real and to be considered. Ucsf deals with dysplasia ... In men an…
Sandysp
Hello sandysp...been thinking of u! How are u? Doing ok?
No workouts for me!
I hired a trainer to help me develope more stamina.... She was awesome.. we used 2pound weights and kept things to the light side of a workout..... BUT!!!... I was only gone from her gym about half an hour when my feet started to burn, ankles, wrists, and hands hurt....bad. Still trying to get over it. NEVER felt like such…
Back to the OR
I have been having a rough couple of weeks with pain, itching, bleeding, etc... I have seen the doctor twice in the last 4 weeks and I will be having a biopsy in the OR this Thursday the 24th, was hoping to go in last week but no openings to be had, doc was all booked. Last scope was at the end of August and was all good,…
Brachytherapy
Did anyone have brachytherapy in combination with their external radiation and chemotherapy? http://en.m.wikipedia.org/wiki/Brachytherapy
Happy Birthday Martha!
I hope you had a wonderful day! Turning 60 is quite a victory for cancer survivors!
Laz's pathology report.
Great news! Everything they removed was Dead cancer. There was so much crap in there, it's scary. The fibrous tissue that used to be the cancer was the size of a walnut. Plus a big abscess and 17 lymph nodes. All negative. I have to go through 5 rounds of chemo and should be done. Let's pray that's all that is. All of you…
Residual mass after CT-RT for anal Cancer
Hello everyone, I am not a cancer survivor but my father is. I hope its ok for me join this network. My father completed standard CT (Mitomycin-C + 5FU two cycles) + RT (60Gy/30 fractions on IGRT) protocol for anal cancer (squamous cell carcinoma) for a 9 x 7 x 5 cm mass that had invaded his left posterior acetabular…
mskcc october presentation
http://www.analcancerfoundation.org/2013/10/16/october-anal-cancer-forum-an-inspiring-and-educational-evening/?utm_source=Patients&utm_campaign=851288f62b-Thank_You_for_Attending_Anal_Cancer_Forum+10_16_20&utm_medium=email&utm_term=0_6f25b0debe-851288f62b-417506453
Two years after tx..
Side effects that are not accepted as side effects! Blood in urine with no infection. Feet burning.. Started not so bad during tx now keeps me awake some nights and ankles get weird electrical shocks in them.... Wrists and thumbs following suite... Unpredictable "crappy" days.... Chemo brain... Sigh!! flip side, NED.…
WHAT IS A REAL SECOND OPINION.
When I was diagnosed I got plenty of "second" opinions, but I believe these were not incompletely independent second opinions. I had my oncologist and my radiation oncologist of the same institution, which is good as long as it is just routine chemo. As soon as you have options of different chemo drugs or type of…
I'm starting to hate the letter "C"
Diagnosed 3-B in January 2013; completed treatment 28 March. Had great response & 2 good PET scans; doctors were very optimistic. But a biopsy done during a sigmoidoscopy last week revealed we didn't get it all. Spent the week-end doing research, and am frankly having a hard time wrapping my mind around the next step.…
Home, sweet home!
The trip went well, my wife made a nest for me in the hatchback and I was very comfortable. When we got home it shocked me how colorful our home is after the pale colors of the hospital. We have to rearrange a few things, because I can't sit for awhile and have to roll in and out of the bed. My sister in law made me…
Leaving hospital today.
I have been here a week and as it has been planned they are letting me go home. My brother is coming to get our stuff since my wife has been here with me the whole time we have some laguagge. She will drive us home that will take about two hours. Have to make stops cuz I can't sit yet, so ill be laying down on the back…
last post for while
this will be my last post for a while.... I got this from a google search NaturalNews) A widely used chemotherapy drug causes damage to the brain that can last for years after treatment is completed, according to a study conducted by researchers from the University of Rochester and published in the Journal of Biology. "It…
New Treatment for Advanced Anal Cancer
My oncologist, Dr. Howard Safran, was recently on a segment of WJAR NBC 10 discussing a new treatment for advanced anal cancer. At my office visit last week he was excited to share the success of treating advanced anal cancer patients with the HPV vaccine in addition to radiation and chemo. Although the treatment would not…
when choosing
Patient-to-patient volunteer arrangements are commonplace after treatments conclude. Maybe patient-to-patient pairings ought to be offered when helping people make informed decisions regarding their treatments before they begin, pairing people who have had the treatments with those about to embark upon it. Contrary to how…
Seeking info about Clinical trial for metastasis (mets) called Rigosertib
Hey, I just started this clinical trial I was dx with mets to the lungs about a year ago. Primary was Tonsil I was wondering if anyone here knows anyone who has taken this drug in previous clinical trials the drug / chemo is called Rigosertib. Rigosertib works by blocking cell division in cancer cells and causing them to…
Oct. 9 Forum
Would love to see some kind of summary of the Forum discussion of long-term side effects and quality-of-life concerns after treatment. Was this a valuable and informative event? What side effects were discussed, and were there any valuable suggestions made for ways to deal with them?
meeting at sloan kettering...any info???
i was hoping to hear about some hints as to how to handle side effects after chemo and radiation for anal cancer----those of you who went , please tell me what they said about those issues....i am 4 years post and still have bleeding and pain .....the pain is better but the bleeding is still there....also my thinking and…
scan results tomorrow
Having a little trouble falling to sleep tonight with my scan results pending until tomorrow. I know you all understand the waiting. Praying all is clear. If so,I will be two years out. While I was going through treatment I told myself that I would have a blue stripe put in my hair if I could make it. Perhaps it was the…
Update from Laz.
Dear Friends, I'm back amongst the living again. Or shall we say amongst the awakened. Yesterday the sungery lasted between 11 am to 9pm. Everything went really well, I barelly had any nausea and the pain is minimal. I sleep a lot, but they always wake you for something. Everybody is so kind an professional. This afternoon…
Good Wishes for Laz
Laz, I hope you will check in here today prior to your surgery tomorrow. I just wanted to let you know that you have been on my mind these past few days and that I am sending good wishes and prayers your way. May tomorrow go well and I hope your recovery is a smooth one. We will be anxious to hear from you as soon as…
Getting ready for the surgery.
I was doing so good so far. As I'm getting closer to the 8th, I'm looking more and more into what the surgery is gonna be like And what it is going to involve. This is a mix of natural curiosity and mental preparation. First I got myself familiar with the colostomy and it feels like I'm comfortable with that now. Then…
Good to know.....
If I do find out that I have AC, it's good to see the majority of people survive it. Have there been many people here that didn't? And, was it because it spread elsewhere?

Anal Cancer

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