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Spinal Cord Tumor Journey

Sunday, September 14, 2008

We have switched gears here to the thing that has been the primary instigator all along - the lesion in my spinal cord. My neurosurgeon, Dr. Robert Q. Ingraham, believes that the lesion is a primary tumor, and he is surprised that I am mobile and able to get around without a cane or wheelchair. However, my legs are getting heavier and making it more difficult to stand and walk. If Dr. Ingraham schedules another appointment, I will tell him this.

Haven't heard from him about what he wants to do next and where I need to go for tissue samples and possible biopsy. I almost feel like if we don't get moving on treatment soon, my survival chances go down a bit every day that we delay. At this point even paralysis would be an option just to get to treatment. I really think that the nerve damage may be permanent, that the feeling in my torso and legs will never come back totally. I really hope that we hear from him tomorrow.

REMISSION

ON SEPTEMBER 10TH I WAS TOLD I AM IN REMISSION .I WAS DIAGNOSED MARCH 30 / 07 WITH STAGE FOUR NON/HODGESKINS LYMPHOMA I WANT TO HELP PEOPLE TO GET DIAGNOSED EARLY For SYMPTOMS I had and how I finally got help please write me.Thanks and don't give up Donna

Stage iv lung cancer

I was diagnosed with stage iv lung cancer 2 monts ago & going thru chemo. I don't know what the future has in store for me but I pray it will get better than this. I lost my voice so I can't talk on the phone. I feel tired & run down all the time. I look forward to sleep. I watch TV & read most of the time. My husband is very kind but I feel sorry for him because he has to take care of everything by himself. I need all the encouragement I can get.

soccerfreaks's picture

"If you need someone you can bleed on..." 09/09/08

(Rolling Stones reference)

With this Coumadin thing, I have to watch out for bleeding. It is designed to allow you to stay home while you recover from blood clots, which is a great thing, as I have a certain antipathy for hospitals.

It is a blood thinner, as we have already talked about. I have to go in weekly and get checked out by OncoMan and his staff for levels of something or other, and this means more sticks, more vials, and then some adjustments. I went from 5mg to 2.5, then back to 5mg, for example, in the span of three weeks. Interesting.

And they tell you, right up front, if you have any sort of bleeding, even the kind you might normally expect, like bleeding from the gums after brushing your teeth, call the doctor immediately.

soccerfreaks's picture

"...A whiter shade of pale" (Reprise) 09/09/08

A couple of follow ups are in order.

I did make it home, albeit in a very uncomfortable way, confirming my suspicion that drunks drive better than sick people (I know MADD people will be MADD, but I am just telling my story).

And I proceeded to barf several more times, thus belying the notion that this was some sort of anticipatory nausea gig on my part.

More likely, I think, a minor bug or a piece of bad food. Who knows?

In fact, the entire way home, my largest worry was that I would barf inside of my car, my baby. And that perhaps I might also cause an accident when I did so.

soccerfreaks's picture

"...A whiter shade of pale" 09/09/08

(A reference from Procol Harum)

This past week has been one of those weeks (okay, two weeks... I lose track).

Nothing to complain about, but a bit different.

To begin with, I managed to get my butt into the Chemo Palace, all by myself, for the beginning of the last cycle Thursday before last. They took my blood, as they usually do, but we are now up to four vials, for some reason, and after that they took a slender tube of more of me that came from a box labeled 'TB'. To me, that means tuberculosis, so I had to ask about that, and I did it in the wrong way.

Note to self: Don't ask a question by answering it.

what happened

i am 59 years old diagnosed 3 wks ago with colon cancer and i am so scared i don't know the stage yet i feel so stupid because I DON'T KNOW WHERE TO START & WHAT QUESTIONS I SHOULD BE ASKING CAN SOMEONE PLEASE WALK ME THRU THIS I DEPERATELY NEED HELP I KNOW IT IS A MASS ON THE RIGHT ASCENDING WALL AND HAS BEEN THERE FOR 3 TO 4 YEARS. THANK YOU FOR ANY HELP U CAN GIVE ME AS THIS IS ALL NEW TO ME. THANKS AGAIN

lack of notification

I was recently diagnoses with Breast CA (NeuroEndricne type tumor) . I have dutifully recieved my mammograms yearly at my OB/Gyn office. When I felt a lump this past june i fels some relieve knowing that in Oct. 07 it was clear. Much to my dismay this was not the case, the tumors were present on the Oct. 07 scan and I was not propperly notified so for 10 months I was walking around with the cancer. I am not only angry with the process at the doctors office for notification, but feel a very sences off loss and betryal due to my relationshiop with a GYN I have had for 17 years. I cannot go back to him due to this breach in trust.

peachez's picture

FINAL CHEMO

AND I THOUGHT I WAS ALL ALONE IN THIS FIGHT AGAINST BREAST CANCER!!! I GET MY FINAL CHEMO ON THE 15TH OF SEPT, THANK GOD!!!! IT HAS BEEN A LONG TRYING 17 MONTHS. WISH I WOULD HAVE SIGNED UP SOONER BUT I DID'NT HAVE A COMPUTER THEN. NOW I HAVE TO FOCUS ON MY RECONSTUCTION JUST WONDERING WHAT THATS GOING TO BE LIKE, IS THERE ANYONE THAT CAN GIVE ME SOME INFO ON THAT.THANK YOU

Cancer and the KY Derby

Introduction: In Louisville the KY Derby isn't just a two minute horse race on a late Saturday afternoon. It's a two week festival before the first Saturday in May and a few activities post Derby.

Cancer and the Kentucky Derby

I never thought that cancer and a famous horse race could ever be connected. I received the diagnosis of breast cancer on Monday May 3,2004 with the feel of the Kentucky Derby still in the air.

Dr. W, a very nice and very good looking doctor, did the biospy. On his way out he said, "We think it's benign." My unspoken thought: with MY genetic background, I don't know about that.

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