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Jeffrey2's picture

Cancer its not the Bahamas

Truck driver 26 years running up an down the road an to loose all I have worked for to fight for my life. oh well never seen a dead man take his RVwith him started out with a ear hurting but no infection must be a bad back tooth . Antibiotics did notta. Got home off the road an 2 shots in my butt antibiotics an a staroid for boosters. It did nothing so sent to see a ear nose an throat. DR SINTEN HE TOLD ME CANCER JUST GREAT. .. Just what I need now . they take my right tonsil out but tell me the left one is just one big tumer an it spread.

New to this

Life can change so fast.  I have an auto immune disease. recently diagonised with chronic lymphocytic leukemia. After second visit to dr in a month & other conditions ruled out... now I have to go in and have a partial ulvaectomy   with biopsy.  I have approximately 7 node that are growing fast.  I don't know how to handle all this coming at me so fast.  Any suggestions?  Please

Take me away 

one day at a time

  hi everybody , i was done haveing treatment for throat and mouth cancer ( 7 chemos and 35 radiation treatments ) 5 months ago and also had to have a small piece of the top of tungue removed 5 weeks ago and i am still having a hard time swallowing solid foods ( i dream of hot dogs, pizza and cheesesteaks ) my doctors say have patience but sometimes i wonder if the pain  ( even though that"s manageable now ) will ever go away and if i will ever be able to eat a steak at ruth's criss again.

Itchy scalp

Four weeks into chemo and my hair has fallen out but I was not expecting my scalp to be so itchy and tender. Any good remedies or does it get better with time???


Hi Anyone, I had pelvic bone X-rays last June and am now suffering with chronic hip, pelvis, back and leg pain. MRI  good.  Taken lots of different meds- nothing helps. Dr thinks the pain is in my head. WRONG! Can this be radiation induced. HELP!!! Thanks. 

mapdan's picture

Stage 4 Throat cancer survivor

I was diagnosed with throat cancer last August 2016 and began treatment right away. I had 35 rounds of radiation and 7 chemo treatments. My last radiation treatment was October 17th. I am still dealing with all the effects of no taste or very limited taste and no saliva. 5 months after treatment. I lost 45 lbs and am trying to gain it back. I have read many blogs and have come to realization my taste may come back or may not and saliva is questionable. I am surviving on a new diet and trying new things.

What I wish my doctors had told me!!

We all know that the standard of care is simply not enough and if the cancer is not contained early on and actively managed, then it will most likely recur and progress. 

So I did some more research and this is what I found... personalized strategies that lead to better treatment results and longer time in remission: 

Anal Cancer Survivor

i was diagnosed with anal cancer 3 days before Christmas 2009 at age 52.  I started treatment February 9, 2010.  My chemo port was put into my chest and I was given a cassette type box of mitomysin and 5FU. Radiation started the same day. I was tattooed with a navy dot on each of my hips. And my cancer 'adventure' began. 

its not fun

Hello. I have just become a member of the CSN group. I was diagnosed a year ago with anal adenocarcinoma. I was told it was rare. I have been through 25 radiation and 8 chemo treatments, now in the recovery mode I suppose. Looking forward to discovering my new normal, whatever that could be. I am lucky and very grateful to be here today. A little dark cloud - CEA level a little over 6 - should I be worried? Really doesn't matter if I should or not - I am! Anyone have any experience or insight into this? Best wishes to all members, and thanks for any responses.   Marie

beemurguia's picture

RCC= Radical Nephrectomy

I was just diagnosed with Renal Cell Carcinoma.  My right kidney will have to be removed.  Looks like becoming a member here will be one of the first steps in reaching out to survivors, individuals who are either going through the same thing or who may know someone who is a survivor.  Im curious to know about the process, the recovery, the chances of reocurrance.  


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