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Hi Anyone, I had pelvic bone X-rays last June and am now suffering with chronic hip, pelvis, back and leg pain. MRI  good.  Taken lots of different meds- nothing helps. Dr thinks the pain is in my head. WRONG! Can this be radiation induced. HELP!!! Thanks. 

mapdan's picture

Stage 4 Throat cancer survivor

I was diagnosed with throat cancer last August 2016 and began treatment right away. I had 35 rounds of radiation and 7 chemo treatments. My last radiation treatment was October 17th. I am still dealing with all the effects of no taste or very limited taste and no saliva. 5 months after treatment. I lost 45 lbs and am trying to gain it back. I have read many blogs and have come to realization my taste may come back or may not and saliva is questionable. I am surviving on a new diet and trying new things.

What I wish my doctors had told me!!

We all know that the standard of care is simply not enough and if the cancer is not contained early on and actively managed, then it will most likely recur and progress. 

So I did some more research and this is what I found... personalized strategies that lead to better treatment results and longer time in remission: 

Anal Cancer Survivor

i was diagnosed with anal cancer 3 days before Christmas 2009 at age 52.  I started treatment February 9, 2010.  My chemo port was put into my chest and I was given a cassette type box of mitomysin and 5FU. Radiation started the same day. I was tattooed with a navy dot on each of my hips. And my cancer 'adventure' began. 

its not fun

Hello. I have just become a member of the CSN group. I was diagnosed a year ago with anal adenocarcinoma. I was told it was rare. I have been through 25 radiation and 8 chemo treatments, now in the recovery mode I suppose. Looking forward to discovering my new normal, whatever that could be. I am lucky and very grateful to be here today. A little dark cloud - CEA level a little over 6 - should I be worried? Really doesn't matter if I should or not - I am! Anyone have any experience or insight into this? Best wishes to all members, and thanks for any responses.   Marie

beemurguia's picture

RCC= Radical Nephrectomy

I was just diagnosed with Renal Cell Carcinoma.  My right kidney will have to be removed.  Looks like becoming a member here will be one of the first steps in reaching out to survivors, individuals who are either going through the same thing or who may know someone who is a survivor.  Im curious to know about the process, the recovery, the chances of reocurrance.  

Stage 1 lung cancer

On the advice of our family Dr, because of age, family history and it was free, she suggested my husband have a cancer scan. He had one in October 2016. They found many nodules in his lungs and sent us to a pulmonary Dr. He wanted to wait 3 months and repeat the scan, in the mean time, he had a PET scan done and nothing glowed. In Feb 2017 he had another scan done, none of the nodules changed except one, it had doubled in size. He said where the tuner was it was very deep and next to a large blood vessel.

sunny101's picture

My identity

My haior was my identity. At my age to have natural brown hair, long, so many peopole complimented me. I felt young, and attractive. I looked like my daughters who also had long brown hair. Now 3 weeks after first chemo, as i slept it became matted to my head, falling out. I have to shave it tomorrow. the wig is cheap and stupid. I feel alone, no one understands.

RaggetyEarl's picture

Lingering pain

Throat and Adenoid cancer stage4. Surgery, 7 weeks of Kemo and Radiation. 186lbs to a very weak 123 lbs. Finshed Kemo on July 26th 2015. I've have on-going joint and muscle pain in my hands, hip, knees. Multitude of test! MRI, Cat Scans, Several studies. I dont like pain killers, so i live with night cramps from hell. Taking a fiber myalgia myopathy medicine that doesn't seem to work much.




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