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Woonsocket Rhode Island


My wife and I have supported ACS for many years with relay for lifes and so fourth...but back 6 years ago I had prostate cancer It was taken out and all was good until 1-11-2019.

Now I have bladder cancer the tumor is on the inside wall of the bladder as well as the outside wall touching the pelvic bone.

I started chemo two weeks ago now on  the 13th of Feb I will be starting my second treatment.

RobLee's picture

World NET Cancer Awareness Day

This past Saturday, Nov 10th, was World NET Cancer Awareness Day. Never heard of it? Neither had I. Their motto is "Not All Cancer is Pink". I had fully intended to post an update, but ten days home from the hospital things are just now starting to settle down. As expected I was unable to eat or drink anything for several days. On day six I finally had solid food, but have had frequent diarrhea ever since. Just last week I finally learned that the mass was benign. Whew! But during the ordeal I gained a lot of NET Cancer Awareness.

Inspired2013's picture

Nearly done

Im happy to say chemo is nearly done. Treatment 11 of FOLFOX is this Friday and number 12 will be two weeks later. It has been a long 7 1/2 months to be sure. After my three month scan, we will meet with surgery to talk about and plan my total colectomy and hysterectomy. I don’t like doing it, but I know doing both is in my best interest. I’m still not sure when to remove my ovaries. It also remains to be seen whether both surgeries can be done at the same time.

Newly diagnosed with Nodular Lymphocyte Predominant Hodgkin's Lymphoma

Dx 1/2/2019  with NLPHL.  Have not started treatment yet.  Am hoping I can find a treatment that doesn't include cytoxan, adriamycin, vincristine, bleomycin, dacarbazine.  I have done tons of research and am hoping to find a lymphoma specialist who would consider Zevalin or R&B, or R&RM.  Not likely but won't start any chemo until I have satisfied myself that there were no other viable options.  I've had 2 friends die from bleo and adria respectively.  One was a beloved physician I worked with and the other was a lovely nurse who was like a mother to me.


Hi all, I am brand new to this site. I was diagnosed last week with mmmt carcinomasarcoma.

Today I had cat scans.  Need to wait till Monday for results  I am so scared and literally shocked  I need all the positive vibes and advice you all have  I am being treated by a doctor with MD Anderson  I hope we have chosen correctly  I would love to hear from anyone on this frightening journey  




eug91's picture


Posts of mine that I wanted to save that were lost in the January 2019 CSN OUTAGE-


So I've joined your club-

Dec 05, 2018

...not that I was given a choice in the matter, but as of this week I've got kidney cancer. 

Jacky2270's picture

Just been diagnosed with Mantle B cell Lymphoma

Hi, My name is Jacqueline (Jacky).


I have just been diagnosed 3 days ago with Mantle B cell Lymphoma. I had no symptoms beside a swollen gland in my right leg. Furter echograms showed some swollen glands under my right arm and some small ones close the tha fat of my intestines. Next week I will have my first petscan done and after this they will determine treatment. I am very scared. All i see online is that there is no cure and susrvival rate is very low. Hope i can find other that can relate to what I have and can give me some feedback.



Tinatheloop's picture


   It comes out of nowhere.  One minute Im cruising...looking at the advantages of this new found single life.....


....then....I open his underwear drawer and break down into tears.


 I have heard this is the rough period...a few weeks after the death....when everyone is getting on with their life, the thank you notes for cards are sent....only thing left is to face  a pile of mail, and try to figure out how to obtain a death certificate i.


Hospice helped me with that problem, they are so wonderful.


NewHere's picture

Summary Since The Beginning

I should have been adding to blog as I went along.  But this give the whole lowdown from the start almost four years ago.How and when did you learn about your cancer?A check-up in December, 2014 showed "something" that should be checked out, more as a matter of caution (and what I thought was probably too much "over medicine" :) ) right before the holidays. Scan was set for January, 2015. Came back as looking like cancer. Biopsy confirmed, and had resection February, 2015. Chemo coming in the next few weeks (March or April, 2015). Chemo started March, 2015.

Topaz_77's picture

Here We Go!

It has been an interesting week or so. I finally found out the results of all of my tests and I now know I have metastatic breast cancer. The Radiology Oncologist‘s exact words were “It’s worse than we thought.” I wanted to say, “Skip the dramatics, doc, and just give it to me straight!” I like to point out the blessings in every negative situation if I can.


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