CSN Login
Members Online: 4

You are here


Newly diagnosed with Nodular Lymphocyte Predominant Hodgkin's Lymphoma

Dx 1/2/2019  with NLPHL.  Have not started treatment yet.  Am hoping I can find a treatment that doesn't include cytoxan, adriamycin, vincristine, bleomycin, dacarbazine.  I have done tons of research and am hoping to find a lymphoma specialist who would consider Zevalin or R&B, or R&RM.  Not likely but won't start any chemo until I have satisfied myself that there were no other viable options.  I've had 2 friends die from bleo and adria respectively.  One was a beloved physician I worked with and the other was a lovely nurse who was like a mother to me.


Hi all, I am brand new to this site. I was diagnosed last week with mmmt carcinomasarcoma.

Today I had cat scans.  Need to wait till Monday for results  I am so scared and literally shocked  I need all the positive vibes and advice you all have  I am being treated by a doctor with MD Anderson  I hope we have chosen correctly  I would love to hear from anyone on this frightening journey  




eug91's picture


Posts of mine that I wanted to save that were lost in the January 2019 CSN OUTAGE-


So I've joined your club-

Dec 05, 2018

...not that I was given a choice in the matter, but as of this week I've got kidney cancer. 

Jacky2270's picture

Just been diagnosed with Mantle B cell Lymphoma

Hi, My name is Jacqueline (Jacky).


I have just been diagnosed 3 days ago with Mantle B cell Lymphoma. I had no symptoms beside a swollen gland in my right leg. Furter echograms showed some swollen glands under my right arm and some small ones close the tha fat of my intestines. Next week I will have my first petscan done and after this they will determine treatment. I am very scared. All i see online is that there is no cure and susrvival rate is very low. Hope i can find other that can relate to what I have and can give me some feedback.



Tinatheloop's picture


   It comes out of nowhere.  One minute Im cruising...looking at the advantages of this new found single life.....


....then....I open his underwear drawer and break down into tears.


 I have heard this is the rough period...a few weeks after the death....when everyone is getting on with their life, the thank you notes for cards are sent....only thing left is to face  a pile of mail, and try to figure out how to obtain a death certificate i.


Hospice helped me with that problem, they are so wonderful.


NewHere's picture

Summary Since The Beginning

I should have been adding to blog as I went along.  But this give the whole lowdown from the start almost four years ago.How and when did you learn about your cancer?A check-up in December, 2014 showed "something" that should be checked out, more as a matter of caution (and what I thought was probably too much "over medicine" :) ) right before the holidays. Scan was set for January, 2015. Came back as looking like cancer. Biopsy confirmed, and had resection February, 2015. Chemo coming in the next few weeks (March or April, 2015). Chemo started March, 2015.

Topaz_77's picture

Here We Go!

It has been an interesting week or so. I finally found out the results of all of my tests and I now know I have metastatic breast cancer. The Radiology Oncologist‘s exact words were “It’s worse than we thought.” I wanted to say, “Skip the dramatics, doc, and just give it to me straight!” I like to point out the blessings in every negative situation if I can.

RobLee's picture

Chapter twelve... Surgery number fourteen

It is now the day of surgery. Naturally I am scared, even though I have been through many surgeries before. All I can do now is hope that the surgeon is able to remove the tumor and that it is benign. As another October draws to a close, I can't help but think of all we have been thru in the past two years. Two years ago this week my wife and I were living in a motel, as we had just emptied our home of 33 years and were awaiting closing on the sale. Within six weeks she would be hospitalized and begin treatment for lymphoma.

WarriorS1's picture


This is my favorite time of the year. I probably mentioned this before. I am going to try my hand this week at making roasted red pepper soup and acorn squash soup. Two of my favorites.  My wife does not care for either but they just scream fall to me and I love the taste.

Tinatheloop's picture

Widow : 101

    You know when you have a nightmare.....and wake up.....think...." Thank God, it was just a bad dream"....wipe the sweat off your neck.....and go back to sleep?


    Same thing happens to me, but then I think...." oh, no....it is real."

Deal with it.


   It isnt too bad....I did have time through the months for melt downs...time to prepare...time to develop a plan.


  Sometimes I feel guilty, because there are advantages.  I make my own decisions.  I eat when I want....go to bed when I want.....



Subscribe to RSS - blogs