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scarlett21's picture

Project: Staircase

My legs and hips feel worse today. It's extra tough to walk and go up and down the stairs, it takes me a good minute and a half to go up 13 steps. My parents say it's because of the weather. I hope that's the case. I'm allowed 1 alcoholic drink a day and I sincerely wish we had alcohol in the house. Just one of those days. On a positive note: Project Runway All-Stars is on tonight! This is a really good season.

lewiszamora64's picture


MariaRivet's picture


After several Mammograms and Ultrasounds showing calcifications in my left breast a Biopsy was recommended and i was diagnosed with Benign Flat Epithelial Atypia, High Risk and referred to a surgeon. I met with the surgeon and she wants to do an MRI in a couple of months once the Hematoma from the Biopsy has healed. She also wants the Atypia removed.

scarlett21's picture


My doctor's appointment went pretty much as expected. He confirmed that I am MRD- which is great. He didn't give me his final opinion on which course of treatment to take but he did give a third treatment option. I would take blinatumomab continuously for 28 days then start a 2-3 year maintenance program. My case is going to be presented at a conference on Thursday for majority opinion so I should be getting my doctor's final opinion next week. I met with the fertility nurse and she laid out options for every course of treatment.

scarlett21's picture

Firefly Lane

I'm reading a book called Firefly Lane by Kristin Hannah. I was really enjoying the book until the end when (SPOILER ALERT! Don't read the next part if you want to or are currently reading this book!) Katie gets a rare form of breast cancer that metastasized to her brain and now she's dying. It was kind of a shock and now I'm having a hard time finishing the book. I don't have that many pages left so I plan on powering through.

scarlett21's picture

Bath Time

Sometimes, you have to enjoy the little things in life. Sometimes, those little things make a huge impact. I took a bath tonight. I probably stayed in longer than I should have, but it was wonderful. While soaking in the tub, reading my book, it was just like when I didn't have cancer, I wasn't worried about my next doctor's appointment or whether or not I needed a bone marrow transplant. It was just me, in the tub reading my book. Who knew something as simple as a bath can be so healing?

Adenocarconoma in body of pancreas

Looking for pancreatic patients who have non retractable  tumors.  I’m currently doing chemo to try to shrink my 2.7 cm tumor located in the body of my pancreas.  

Woonsocket Rhode Island


My wife and I have supported ACS for many years with relay for lifes and so fourth...but back 6 years ago I had prostate cancer It was taken out and all was good until 1-11-2019.

Now I have bladder cancer the tumor is on the inside wall of the bladder as well as the outside wall touching the pelvic bone.

I started chemo two weeks ago now on  the 13th of Feb I will be starting my second treatment.

RobLee's picture

World NET Cancer Awareness Day

This past Saturday, Nov 10th, was World NET Cancer Awareness Day. Never heard of it? Neither had I. Their motto is "Not All Cancer is Pink". I had fully intended to post an update, but ten days home from the hospital things are just now starting to settle down. As expected I was unable to eat or drink anything for several days. On day six I finally had solid food, but have had frequent diarrhea ever since. Just last week I finally learned that the mass was benign. Whew! But during the ordeal I gained a lot of NET Cancer Awareness.

Inspired2013's picture

Nearly done

Im happy to say chemo is nearly done. Treatment 11 of FOLFOX is this Friday and number 12 will be two weeks later. It has been a long 7 1/2 months to be sure. After my three month scan, we will meet with surgery to talk about and plan my total colectomy and hysterectomy. I don’t like doing it, but I know doing both is in my best interest. I’m still not sure when to remove my ovaries. It also remains to be seen whether both surgeries can be done at the same time.


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