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ola_ONB19's blog

Olfactory Neuroblastoma - 40 yo Woman - Seeking advice/connection

Hi, 

I’m a 40 yo female with (rare) diagnosis of right nasal cavity esthesioneuroblastoma or olfactory neuroblastoma, preliminary Hyams Grade 3, presumed Kadish Stage A.  On April 9th I underwent a craniotomy by an expanded endoscopic approach for resection of tumor. Negative margins were achieved. Plan for radiation therapy to follow.

Any one have similar diagnosis of ONB? I’m looking for any general advice or support? Has anyone used proton beam therapy instead of IMRT for radiation?

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