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Have an announcement? Complete and submit an announcement submission request form. Announcements are selected based on relevance and available space. Selection does not imply endorsement by the American Cancer Society.

Friday, July 20, 2018 - 12:23pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Friday, July 20, 2018 - 12:15pm

Purpose: The American Cancer Society is testing a modified version of the Cancer Survivors Network (CSN) and is inviting you to try it. This research is being done in collaboration with Carnegie Mellon University and is sponsored by the National Institutes of Health.

 

Procedure: Your participation is voluntary.  If you agree, you will use a modified version of CSN to participate in the community.  You will have access to all CSN content, and any posts or comments you make will be added to the CSN community, just as they are now. What is new is that you will see recommendations for content and other members that might interest you. These recommendations are based on what you have read on CSN. As you read more discussion threads, the recommended content and members will be updated. You will occasionally receive a survey to get your feedback on the new interface. We will also ask about the relevance and value of the recommended content.   These surveys will take less than three minutes to complete, and you will receive them at most once per week. We will also invite a small number of members to give more extensive feedback through a phone interview.

 

To participate in this trial, click this link: Yes, I’ll use the new CSN interface.  You can always opt-out later by clicking ‘the use the traditional CSN design’ button on your CSN user profile.

 

Principal investigators:

Robert Kraut, PhD

Herbert A. Simon Professor of Human-Computer Interaction

Carnegie Mellon University

Pittsburgh PA 15213

412 268-7694

robert.kraut@cmu.edu

 

Tenbroeck Smith

Director of Patient Reported Outcomes Research, Behavioral Research Center

American Cancer Society

Atlanta GA

 

tenbroeck.smith@cancer.org

For more information, contact:
Robert Kraut
(412) 268-7694
robert.kraut@cmu.edu
Thursday, July 19, 2018 - 9:31am

Event (e.g.conference, teleconference, fundraiser, etc.)

Thursday, July 19, 2018 - 9:30am

CancerCare, in collaboration with the American Cancer Society, offers free workshops on a variety of cancer-related topics. Unless otherwise noted, all workshops take place from 1:30 - 2:30 pm Eastern Time. For details and to register for a workshop, call 800-813-HOPE (4673), or visit the CancerCare website at www.cancercare.org/connect.

 

8/23 – Highlights from the 2018 American Society of Clinical Oncology (ASCO) Annual Meeting, Part I of Your Guide to the Latest Cancer Research and Treatment (1:30-3:00 pm ET)

8/28 – Highlights from the 2018 American Society of Clinical Oncology (ASCO) Annual Meeting, Part II of Your Guide to the Latest Cancer Research and Treatment (1:30-3:00 pm ET)

9/13 – The Emerging Role of Immunotherapy in the Treatment of Lymphoma

10/18 – Living with Metastatic Breast Cancer

11/13 – Genomic Testing and Current Trends in the Treatment of Non-Small Cell Lung Cancer

For more information, contact:
Lorena Tan Wang
800-813-HOPE (4673)
connect@cancercare.org
Thursday, April 26, 2018 - 2:32pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Thursday, April 26, 2018 - 2:30pm

Want to help researchers understand why people choose, or decline, to participate in cancer clinical studies? Click the link below to learn more.

 

https://goo.gl/forms/1iHsLp2RFuRT3SVR2

 

Participants will be entered to win a $50 Amazon gift card. By being a part of this study, you will help researchers identify reasons people may or may not participate in clinical studies. With a better understanding of those reasons, researchers may be able to improve the clinical study process and experience for future patients, such as yourself.

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider

For more information, contact:
Kathryn Gardner
krgardner@atsu.edu
Thursday, April 19, 2018 - 9:33am

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Thursday, April 19, 2018 - 9:30am

If you’ve taken on caregiving for a loved one in recent years and face the challenges of balancing the healthcare needs of your loved one with your own needs, we want to hear your views.

The role of the caregiver, particularly in medical decision-making, is a role taken on urgently, without warning – and often with little expertise.  Yet the needs, challenges and issues that we face as we voluntarily care for loved ones with chronic and/or debilitating illnesses or conditions can be overwhelming and time-consuming.

Our hope is that your insights will help lead to better support for caregivers in this important role. More than 70 organizations are partnering on this survey because of their keen interest in helping you, the caregiver, as you navigate medical and care decisions that affect you and your loved one.

Findings from the survey will be published, shared widely through our partners’ networks and posted on the Rx4good website. If you have questions about the survey, please contact us at info@rx4good.com.

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
Rachel Cannady
Tuesday, April 10, 2018 - 2:53pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Tuesday, April 10, 2018 - 2:45pm

We are conducting a research study about people affected by head and neck cancer. 
 
If you have ever been diagnosed with any kind of head and neck cancer, we are interested in hearing from you!
 
The purpose of the study is to 1) examine the priorities and preferences of patients with head and neck cancer in regards to discussing and receiving information about sexuality (sexual function and sexual wellbeing) from healthcare professionals and 2) examine patient perceptions of existing self-report measures used to assess sexuality in patients with head and neck cancer.

If you are over the age of 21 and have access to a computer, you may be eligible to participate.

Participation will only require filling out online surveys, and you will receive a $10 gift card for your participation. 

We hope the results from this study will help to create resources about sexuality for future patients with head and neck cancer. 

If you are interested in participating, please go to: 
https://redcap.vanderbilt.edu/surveys/?s=HYLHYHRN79 

You can also call 615-343-1838, toll free 1-833-402-8664 or email Dr. Bethany Rhoten and her research team (vusnoncresearch@vanderbilt.edu) with any questions you may have about this research study.

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
Bethany Rhoten
615-343-1838
vusnoncresearch@vanderbilt.edu
Sunday, March 18, 2018 - 8:50pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Sunday, March 18, 2018 - 8:45pm

 

Swansea University is conducting research into people’s views and experiences of undergoing different types of bladder reconstruction - ClinicalTrials.gov Identifier: NCT03325231.  This research is funded by Tenovus Cancer Care to find out what types of bladder reconstruction best suit different lifestyles, as this can help in advising people facing this decision in the future.  The research involves completing a short (about 20 minutes), completely private and confidential, online survey – you will NOT be asked for any personal contact details.  The survey asks about your satisfaction with your bladder reconstruction, the interests you have, and how these have been affected post-surgery.  If you want more information, please contact Professor Phil Reed, the research lead (e-mail: p.reed@swansea.ac.uk).  If you wish to participate, this link will take you to the survey:

 

http://psy.swan.ac.uk/questionnaires/bladder_reconstruction_survey/ - many thanks for taking time to read this post.

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

 

For more information, contact:
Phil Reed
0044 (0)1792 602047
p.reed@swansea.ac.uk
Tuesday, March 6, 2018 - 9:38pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Friday, September 8, 2017 - 11:15am

Hello,

 

My name is Basem Gayed and I am a third year dental student at the University of Connecticut School of Dental Medicine. I am working on customer discovery efforts related to a proposed new product for mouth ulcers as a result of cancer treatment. This project is being led by Dr. Rajesh Lalla and is part of the Accelerate UConn program which seeks to advance the development of new products.

 

We are interested in collecting information on the possible need for a new medication to reduce pain due to oral mucositis (mouth sores due to cancer treatment). If you had mouth sores due to chemotherapy or radiation therapy, we would greatly appreciate it if you can take an anonymous survey at the link below. Your participation is voluntary. If you choose to participate, please complete the survey. While complete surveys will provide better data, you may skip questions that you do not feel comfortable answering. Your response to these questions should take between 2-5 minutes to complete. Completion of this survey signifies your consent to participate in the study. The information obtained may help in the development of a new treatment option for this problem. Your survey responses will be recorded in a de-identified manner i.e. no one will be able to connect your responses to your identity from the survey database. Therefore, your confidentiality will be protected.

 

Thank you for your time and consideration. If you have any questions, please send me an email at gayed@uchc.edu.

 

Sincerely,

Basem Gayed

 

Link to survey: https://goo.gl/forms/WbFGcU30BKd4gdgj1

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
Basem Gayed
gayed@uchc.edu
Tuesday, March 6, 2018 - 2:50pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Tuesday, March 6, 2018 - 2:45pm

What was your experience with the financial costs of cancer treatment?

This study, conducted by researchers at the University of Louisville, is about the impact of cancer treatment on the financial well-being and quality of life of cancer survivors.

We are inviting volunteers who have been diagnosed with breast cancer or blood (Leukemia, Lymphoma, or Myeloma) cancer within the past five years to participate in this study.

This study is open to men and women 18 years and older. It involves taking a 20-30 minute online survey and it is completely anonymous.

By better understanding your experiences we may be able to help others navigate the financial terrain of cancer.

If interested in participating follow this link to the survey.
https://qmsweb.louisville.edu/blue/a.aspx?l=3325_1_AAAAAAAAaB8

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study. We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study. Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
Lisa Smith
502-472-0724
Lcsmit11@louisville.edu
Wednesday, February 28, 2018 - 11:01pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Monday, January 8, 2018 - 11:00am

The Psycho-Oncology Research Group of NUI Galway (Ireland) are carrying out a study that explores men's experience of prostate cancer. Completing this 10-minute anonymous survey will help us to better understand the changes men might experience following the difficult time of prostate cancer diagnosis and treatment. A better understanding of this experience will enable us to help future patients manage the impact of the illness. 

 If you have experienced prostate cancer, please consider completing this short survey. The questionnaire is completed entirely online in one session and gathers information about mens personal experience of prostate cancer. Further information about the study and contact information for the researchers can be found at this link:

https://docs.google.com/forms/d/e/1FAIpQLSciHb228lKpQEMlUzZT7LRHxOpSDOZImXjrcuhgR92o5uv0kQ/viewform?c=0&w=1

Many thanks for your contribution!

Jean Skelton

 

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

 

For more information, contact:
Jean Skelton
jean.skelton@yahoo.ie
Friday, December 8, 2017 - 12:44pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Thursday, December 7, 2017 - 3:00pm

Dear Prostate Cancer Patients:

If you are gay or bisexual man, between the age of 18 and 75, and have been previously treated for prostate cancer, we would like to invite you to participate in our current research study.

Twenty minutes to one hour of your time may influence treatment of future patients.

There is a significant knowledge gap concerning sexual function for prostate cancer patients in the men who have sex with men (MSM) community, because all of the existing assessment tools are designed for the heterosexual population. The goal of this study is to develop a survey to assess sexual function after prostate cancer treatment specific for MSM. Increased knowledge in this area can help guide future patients in treatment decisions.

Your participation will involve completion of a set of questions online. Your response can help us refine this list and develop the survey. No personal information will be collected in the survey and all your response will be kept confidential. This study is being supported by the UBC British Columbia Cancer Agency Research Ethics Board.

Please consider participating in this important study by following the link:

www.Thissurvey.com/compass

If you need any further information, please contact our study coordinator Dr. Erik Wibowo at erik.w@dal.ca

We look forward to hearing from you.

 

 

Principal Investigator:

Tsz Kin (Bernard) Lee, MD, Radiation Oncology, British Columbia Cancer Agency, Abbotsford Cancer Centre

Contact Number: 1-877-547-3777; Email: Bernard.Lee@bccancer.bc.ca

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study. We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study. Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
Tsz Kin Lee
18775473777
Bernard.Lee@bccancer.bc.ca

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