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Have an announcement? Complete and submit an announcement submission request form. Announcements are selected based on relevance and available space. Selection does not imply endorsement by the American Cancer Society.

Friday, May 17, 2019 - 9:26am

Event (e.g.conference, teleconference, fundraiser, etc.)

Friday, May 17, 2019 - 9:30am
Free Upcoming CancerCare Connect® Education Workshops

Free Upcoming CancerCare Connect® Education Workshops

CancerCare workshops take place over the telephone or as a webcast online.

www.cancercare.org/connect

 

CancerCare, in collaboration with the American Cancer Society, offers free workshops on a variety of cancer-related topics. Unless otherwise noted, all workshops take place from 1:30 - 2:30 pm Eastern Time. For details and to register for a workshop, call 800-813-HOPE (4673), or visit the CancerCare website at www.cancercare.org/connect.

 

 

5/20 – New Perspectives in the Treatment of Advanced Skin Cancer: Advanced Basal Cell and Squamous Cell Cancers, Part I of Living with Advanced Skin Cancer

5/22 – Trends in Oncology and Treatment Planning: What You Need to Know, Part I of Life with Cancer: A Guide to Getting the Best Care

5/23 – Coping with the Stresses of Caregiving When Your Loved One Has Multiple Myeloma

5/24 – Emerging Treatments for Metastatic Melanoma, Part II of Living with Advanced Skin Cancer

5/29 – Cancer and the Workplace: Understanding Your Legal Protections, Part II of Life with Cancer: A Guide to Getting the Best Care

6/10 Update on Clinical Trials: How They Work (4:00-5:00 pm ET)

6/11 – What’s New in the Treatment of Lung Cancer, Part I of Living with Lung Cancer

6/11 – Living with Chronic Myelogenous Leukemia (CML) (4:00-5:00 pm ET)

6/12 – Understanding the Costs of Care and Your Health Care Coverage, Part III of Life with Cancer: A Guide to Getting the Best Care (3:00-4:00 pm ET)

6/12 – Update on Triple Negative Breast Cancer, Part I of Living with Triple Negative Breast Cancer (4:00-5:00 pm ET)

6/13 – Progress in the Treatment of Non-Hodgkin Lymphoma (NHL)

6/13 – Update on Chronic Lymphocytic Leukemia, Part I of Living with Chronic Lymphocytic Leukemia (4:00-5:00 pm ET)

6/14 – Medical Update on Acute Myelogenous Leukemia (AML)

6/17 – For Caregivers: Care Coordination for Your Loved One Living with Cancer and Other Health Problems, Part IV of Life with Cancer: A Guide to Getting the Best Care

6/17 – Update on Cutaneous T-Cell Lymphoma (4:00-5:00 pm ET)

6/18 – New Trends in Cancer Survivorship

6/19 – Participating in Decision about Your Care, Part V of Life with Cancer: A Guide to Getting the Best Care

6/20 – Progress in the Treatment of Hodgkin Lymphoma

6/20 – Current Perspectives on the Treatment of Relapsed/Refractory Chronic Lymphocytic Leukemia (CLL), Part II of Living with Chronic Lymphocytic Leukemia (4:00-5:00 pm ET)

6/24 – Triple Negative Breast Cancer and Fear of Recurrence, Part II of Living with Triple Negative Breast Cancer (4:00-5:00 pm ET)

6/25 – For Caregivers: Practical Tips for Coping with Your Loved One’s Lung Cancer, Part II of Living with Lung Cancer

6/26 – Medical Update on Peripheral T-Cell Lymphoma (PTCL)

6/26 – Treatment Update on Pancreatic Cancer (4:00-5:00 pm ET)

6/27 – Coping with the Stresses of Caregiving When Your Loved One Has Triple Negative Breast Cancer, Part III of Living with Triple Negative Breast Cancer

For more information, contact:
Lorena Tan Wang
800-813-HOPE (4673)
connect@cancercare.org
Wednesday, May 15, 2019 - 10:23pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Friday, May 15, 2020 - 10:15pm

Maurade Gormley is conducting breast cancer survivorship research funded by the National Institutes of Health at New York University Rory Meyers College of Nursing to better understand how Oncotype Dx® test results may influence health-related quality of life, distress, anxiety, depression, fear, and perceived risk of breast cancer recurrence. If you’ve received the Oncotype Dx® test and are willing to answer a series of questionnaires about your reaction to the test, please contact Maurade Gormley at (203) 767-6653 or via email at mh1847@nyumc.org to discuss eligibility and informed consent. Questionnaires will take approximately 15 to 30 minutes. You will receive a link to the questionnaires to complete online. You may be asked to participate in a telephone interview on a future date. The interview is voluntary. Thank you!

For more information, contact:
Maurade  Gormley
2037676653
mh1847@nyumc.org
Monday, April 1, 2019 - 6:07pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Monday, April 1, 2019 - 6:00pm

I am a health communication researcher requesting your help for a project to collect breast cancer patients’ and survivors’ stories of social support. Cancer Survivors Network is not sponsoring this research, but has reviewed my request and credentials and kindly allowed me to post my survey here.    

 

Study specifics: I am interested in the role of social support in helping people deal with major life events such as changes in health. Your experiences dealing with breast cancer are important and can teach people how to help others cope with illness and recovery. In order to participate, all you need to do is complete and submit the online survey (link is below this message).  It will take about 8-10 minutes, depending on the details you provide. I think you will appreciate the kinds of questions that are included. This is completely anonymous. No personal identification information is collected.  

 

Study consent: Your decision to be involved in this project is completely voluntary.  Even if you begin the survey you can change your mind by closing it out. Participating in this survey has no effect on your status in this online community. No one will know who participated.  I hope you agree to participate in this project! Your responses will help us understand how best to support those who have been diagnosed with breast cancer.  If you have questions about the project, please feel free to contact me at the email address below.  If you plan to participate, and I hope you do, I would appreciate it if you could do so at your earliest convenience when you feel well enough, but no later than May 31.  Thank you!

 

PLEASE CLICK ON THIS LINK TO TAKE THE SURVEY (if link does not work, please copy and paste it into your browser URL): 

 

https://butler.az1.qualtrics.com/jfe/form/SV_6XzteNhb3U2CBkF

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

 

 

For more information, contact:
Rose Campbell
317-940-9357
rcampbel@butler.edu
Friday, March 15, 2019 - 12:36pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Friday, March 15, 2019 - 12:00pm

The Research and Training Institute (RTI) at the Cancer Support Community (CSC) would like to ask you to participate in an online survey, which is part of our larger Cancer Experience Registry, so that we can learn more about the cancer caregiver community and what matters most to you. The Cancer Experience Registry is an online survey that attempts to capture the psychosocial impact of cancer. It covers topics that range from family and work life to financial and social impacts. 

If you would like to fill out the survey and share your experiences, please follow this link: https://www.cancerexperienceregistry.org/. To get started, all you need to do is complete three easy steps: agree to informed consent, submit your email, and indicate you are a caregiver.

If you want to learn more, please contact research@cancersupportcommunity.org

It is our hope that the valuable data gathered through the Cancer Experience Registry will help to improve the state of cancer care and increase understanding of the unique psychosocial impacts of cancer on the cancer caregiver community. We look forward to hearing about what’s important to you! 

For more information, contact:
Kelly Clark
Monday, March 4, 2019 - 9:15am

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Monday, March 4, 2019 - 9:00am
Dr. Baafi Okyere

 

Introduction to the Study

 

Principle Investigator: Dr. Baafi Okyere, Doctoral Student, William Carey University School of Nursing

 

 

You are invited to participate in a research study that will be conducted in order to investigate the health cost literacy of cancer patients.  Health cost literacy refers to a cancer patient’s ability to obtain, process, communicate, and use health-related cost information to make informed treatment decisions. The title of the study is “Identifying Cancer Patients at Risk for Low Health Cost Literacy.” The results of this study will be used to inform healthcare providers about which types of resources cancer patients need in order to improve their health cost literacy.
The results of this study will also be used to help the researcher meet the requirements for earning a doctorate of philosophy degree.

Please take the time to read the following information about the study. If you have any questions or concerns, please feel free to reach me at  bokyere358538@student.wmcarey.edu  or at (404) 932-0545. Participation in the study is strictly voluntary and you may withdraw at any time without harm or retaliation. There are no identifiable risks to the participants and no monetary rewards for participation.


 

If you wish to participate in this study, please respond "Yes" to  bokyere358538@student.wmcarey.edu  Once I receive your email, you will receive an email link from "Surveymonkey.com" with instructions to complete the survey. Participation in the study takes a total of between 5 to 10 minutes to complete.  Your name will not be affiliated with the surveys and the collected information kept under lock and key in a file cabinet at the researcher’s home. After the study has been published, the data will be destroyed. In addition, to maintain anonymity, the data will be reported as a group and no personal identifiers will be used.

 

For more information, contact:
Dr. Baafi Okyere
(404) 932-0545
bokyere358538@student.wmcarey.edu
Monday, February 4, 2019 - 6:36pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Monday, February 4, 2019 - 6:30pm

PI: Erik Wibowo, PhD (University of Otago)

Collaborator: Charlene Rapsey, PhD, PGDipCIPs (University of Otago)

Background: Sexual dysfunction is common among men after receiving prostate cancer treatment. Many couples stop sexual activity when the patients have sexual dysfunction, but some remain sexually active.

Aim: Our team plans to assess what strategies prostate cancer patients use to maintain sexual activity.

Eligibility: The study is open to all prostate cancer patients following treatment. 

Procedure: The survey takes about 15 minutes to complete and only needs to be completed once. At the end of the survey, participants can enter a raffle for a chance to win a $100 NZD gift card.

Potential Outcomes: Data from this study can potentially be used by health care providers to advice prostate cancer patients on how to remain sexually active.

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
Erik Wibowo
+6434704692
erik.wibowo@otago.ac.nz
Tuesday, October 16, 2018 - 11:32am

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Tuesday, October 16, 2018 - 11:30am

 

Quit2Heal is a free innovative new research study of a smartphone app to help U.S. cancer patients quit smoking. Quitting smoking can be very difficult, and even more difficult with the added stress of a cancer diagnosis, but patients who quit smoking heal better and recover faster from treatment.  If you decide to join the Quit2Heal study, you will receive free access to the Quit2Heal app and up to $35 for completing a 2-month follow-up survey. To learn why other patients are joining Quit2Heal and to see if signing up for this ground-breaking resource could be right for you or someone you love, visit www.Quit2Heal.org

 

 

 The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
Jonathan Bricker
877-250-6641
Quit2Heal@fredhutch.org
Monday, September 17, 2018 - 6:15pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Monday, September 17, 2018 - 6:00pm
Lauren Loughlin

The Association of Stigma and Self-Disclosure with Social Support, Mental Health, and Posttraumatic Growth Among Cancer Patients

This study examines experiences of living with cancer. You are being asked to complete a series of questionnaires that assess your experiences of stigma, self-disclosure, social support seeking and utilization, and mental health. In order to better understand how people experience cancer, we are interested in hearing the voices of cancer survivors. You will qualify for the study if you are 18 years old or older, have been diagnosed with any type of cancer six to eighteen months prior to participation in the study, and are currently post-treatment. The entire study will take about 45 minutes to complete. Your participation is completely voluntary and if you are uncomfortable at any time, you are welcome to stop answering the questions. Upon completing the survey, you will have the opportunity to voluntarily provide your email address in order to enter a drawing to win a $100 Amazon gift card.

Thank you for considering your participation. The study is confidential.
Please feel free to send this study to others who may qualify.
We appreciate your time.

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study. We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study. Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
Lauren Loughlin
8457051619
laurenloughlin@mail.adelphi.edu
Thursday, August 16, 2018 - 10:03pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Thursday, August 16, 2018 - 10:00pm
Erik Wibowo
Online

Many men have poor sleep after prostate cancer treatment. If you've been diagnosed with prostate cancer, please consider joining an online study to identify what factors are associated with sleep problems in prostate cancer patients.

Dr Erik Wibowo from the University of Otago in New Zealand is leading a sleep study on prostate cancer patients and is seeking participants. Data from this study could be used by clinicians to optimize treatment for patients and partners who experience sleep problems.

The study comprises an online questionnaire which takes about 45 minutes to complete. Participants can enter into a raffle for a chance to win a $100 NZD VISA gift card. Click the link to take part in the study.  http://j.mp/2tpIHxW

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
Erik Wibowo
+6434704692
erik.wibowo@otago.ac.nz
Friday, July 20, 2018 - 12:23pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Friday, July 20, 2018 - 12:15pm

Purpose: The American Cancer Society is testing a modified version of the Cancer Survivors Network (CSN) and is inviting you to try it. This research is being done in collaboration with Carnegie Mellon University and is sponsored by the National Institutes of Health.

 

Procedure: Your participation is voluntary.  If you agree, you will use a modified version of CSN to participate in the community.  You will have access to all CSN content, and any posts or comments you make will be added to the CSN community, just as they are now. What is new is that you will see recommendations for content and other members that might interest you. These recommendations are based on what you have read on CSN. As you read more discussion threads, the recommended content and members will be updated. You will occasionally receive a survey to get your feedback on the new interface. We will also ask about the relevance and value of the recommended content.   These surveys will take less than three minutes to complete, and you will receive them at most once per week. We will also invite a small number of members to give more extensive feedback through a phone interview.

 

To participate in this trial, click this link: Yes, I’ll use the new CSN interface.  You can always opt-out later by clicking ‘the use the traditional CSN design’ button on your CSN user profile.

 

Principal investigators:

Robert Kraut, PhD

Herbert A. Simon Professor of Human-Computer Interaction

Carnegie Mellon University

Pittsburgh PA 15213

412 268-7694

robert.kraut@cmu.edu

 

Tenbroeck Smith

Director of Patient Reported Outcomes Research, Behavioral Research Center

American Cancer Society

Atlanta GA

 

tenbroeck.smith@cancer.org

For more information, contact:
Robert Kraut
(412) 268-7694
robert.kraut@cmu.edu

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