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Announcements

Have an announcement? Complete and submit an announcement submission request form. Announcements are selected based on relevance and available space. Selection does not imply endorsement by the American Cancer Society.

Friday, July 19, 2019 - 7:09pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Friday, July 19, 2019 - 7:00pm

The American Cancer Society’s Cancer Survivors Network is conducting a survey of active CSN members to help us learn about the impact of online health communities. Members who have been active on the site recently will receive an email with a link to the survey, as well as a link to opt out of the survey. Your participation will help us to understand the benefits of using the Cancer Survivors Network and to improve the experiences of the thousands of people who visit this community.  

 If you agree to participate, you will be asked to fill out an online survey at three separate times over the next nine months. The questionnaire takes about 15 minutes to complete.  The email invitation will be sent on Monday, 7/23/2019. 

 This research is a partnership between ACS and investigators at Carnegie Mellon University and is funded by the US National Institutes of Health. 

 Thank you in advance for your participation.  

American Cancer Society’s Cancer Survivors Network® (CSN) Survey Consent Form 

This is a study of the benefits of using CSN intended to inform efforts to improve the experiences of CSN members. This study is conducted by the American Cancer Society, Carnegie Mellon University and the University of Pittsburgh. 

Procedures 

You will be asked to fill out an online questionnaire three times over the next nine months. The survey will ask about your use of CSN, your health, ways you cope with cancer, your social support, your mood and other topics. It takes about 15 minutes. To determine how using CSN influences health outcomes, the research team will compare participants' use of CSN with their answers on the survey. 

Participant Requirements 

Participation in this study is limited to CSN members age 18 or older who are residents of the USA. 

Risks 

The risks and discomfort associated with participation in this study are no greater than those in completing other online surveys. You are free to skip questions that make you feel uncomfortable. If you need cancer information or referral to local services, you can contact the American Cancer Society at 1-800-227-2345, 24 hours a day and speak to a trained Cancer Information Specialist. 

Benefits 

You will not receive direct benefit from participating in this study. The information you provide may help improve CSN and produce knowledge about the benefits of online health support groups. 

  

Compensation & Costs 

There is neither compensation nor cost to you if you participate. If you decide not to participate, this will not affect any services you receive from CSN. 

Confidentiality 

All responses will be kept anonymous, and your information will be held in strictest confidence, as defined by the CSN terms of service. All study data are stored on a secure, password protected server and kept confidential to the extent possible by law. Personal identifiers (e.g., your name, email address, and IP address) will not be used in the study. Published findings, reports, presentations or other shared information will not contain information that can be linked to individual CSN members. 

Right to Ask Questions & Contact Information 

If you have any questions about this study, you should feel free to contact one of the following. 

 Hillary Grice 

Digital Program Manager 
American Cancer Society 

512-997-3854 

HILLARY.GRICE@CANCER.ORG 

Robert E Kraut 

Herbert A. Simon Professor Emeritus of Human-Computer Interaction 

Carnegie Mellon University 

412 268-7694 

ROBERT.KRAUT@CMU.EDU 

  

If you have questions about the ethics of this study, you should contact the Research Regulatory Compliance Office at Carnegie Mellon University. Email: IRB-REVIEW@ANDREW.CMU.EDU or Phone: 412-268-7166. 

Consent 

 By completing the survey, you are agreeing to participate in this study. 

  

American Cancer Society, Inc. 
250 Williams St. 
Atlanta, GA 30303 
CANCER.ORG | 1.800.227.2345 

For more information, contact:
Hillary Grice
Thursday, July 18, 2019 - 9:32am

Event (e.g.conference, teleconference, fundraiser, etc.)

Thursday, July 18, 2019 - 9:30am
Free Upcoming CancerCare Connect® Education Workshops

Free Upcoming CancerCare Connect® Education Workshops

CancerCare workshops take place over the telephone or as a webcast online.

www.cancercare.org/connect

 

CancerCare, in collaboration with the American Cancer Society, offers free workshops on a variety of cancer-related topics. Unless otherwise noted, all workshops take place from 1:30 - 2:30 pm Eastern Time. For details and to register for a workshop, call 800-813-HOPE (4673), or visit the CancerCare website at www.cancercare.org/connect.

 

8/22 – Highlights from the 2019 American Society of Clinical Oncology (ASCO) Annual Meeting: Caring for Every Patient, Learning from Every Patient, Part I of Your Guide to the Latest Cancer Research and Treatment (1:30-3:00 pm EST)

8/27 – Highlights from the 2019 American Society of Clinical Oncology (ASCO) Annual Meeting: Caring for Every Patient, Learning from Every Patient, Part II of Your Guide to the Latest Cancer Research and Treatment (1:30-3:00 pm EST)

9/6 – New Trends in the Treatment of Thyroid Cancer

9/9 – Current Perspectives in the Treatment of Metastatic Gastric Cancer

For more information, contact:
Lorena Tan Wang
800-813-HOPE (4673)
connect@cancercare.org
Monday, July 1, 2019 - 4:00pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Monday, July 1, 2019 - 1:00pm

The Colorectal Cancer Alliance is calling on young-onset patients, survivors, and caregivers to take part in the 2019 young-onset colorectal cancer survey. Colorectal cancer patients are considered young-onset if they are diagnosed before they turn 50 years old. 

When it comes to raising awareness about this disease and changing how young-onset colorectal cancer is viewed, your story can literally save lives. But consider for a moment the power of thousands of stories presented together. This is an undeniable force.  Data from the survey will be analyzed by the Alliance to create a report detailing results, with distribution expected in the fall.

Take our survey. Help us tell the real story about young-onset colorectal cancer.

 

 

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
Ronit Yarden
2026280123
ryarden@ccalliance.org
Thursday, June 13, 2019 - 5:51pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Thursday, June 13, 2019 - 5:45pm

My name is MJ DeCoteau and I am the executive director of Rethink Breast Cancer (www.rethinkbreastcancer.com) – a Canadian patient group dedicated to building community for young women dealing with breast cancer and providing support and resources to help them live the best quality of life.

The Canadian government will soon be reviewing the use of Kadcycla to treat HER2-positive early breast cancer and Rethink Breast Cancer will be making a submission to ensure that patient voices are represented and considered during the review process.

Does this survey apply to you?

We are looking for women with HER2-positive early breast cancer and women who have been treated with Kadcycla (Trastuzumab emanstine) to talk about their treatment experience.

YOU DO NOT NEED TO LIVE IN CANADA TO PARTICIPATE.

If you are interested in talking about your experiences, we would like to ask you to complete this survey: https://www.surveymonkey.com/r/kadcyclasurvey


If you would like to speak with us directly about your cancer or treatment experience, you can contact Shawna Rich-Ginsberg at shawna@rethinkbreastcancer.com.

MJ DeCoteau
Founder + Executive Director
Rethink Breast Cancer

 

For more information, contact:
Adam Waiser
Wednesday, June 12, 2019 - 9:54am

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Wednesday, June 12, 2019 - 9:45am
Marianne Velma Weitz

 

 

 

Hello, my name is M Velma Weitz DrNP.  I am a Nursing PhD student in the Doctoral Nursing Department at Drexel University in Philadelphia Pa.I am a breast cancer survivor who has felt that yoga has made an impact on my life and recovery.

I am looking for women to participate in an anonymous online survey to explore how other women feel about their survivorship with yoga. This study it is important to help women through breast cancer survivorship.

Please participate in this survey if you are a female breast cancer survivor over 18 years of age and have been out of active breast cancer treatment.

Research Objective

Women who have received the diagnosis of breast cancer have increased levels of perceived stress. This study will see if yoga can help decrease that stress and see how much participation in yoga will produce that effect. The study answers the important question about the impact of yoga on the lives of women with breast cancer.

Who is eligible?

You should be between ages 18 years and over, and post treatment for breast cancer.

 

What is involved?

You will be asked to complete an anonymous online survey with 41 questions. 

No Study Visits
About 10-15 minutes of your time

For more information, contact:
M Velma  Weitz
267 359 5831
breastcancersurvey@drexel.edu
Wednesday, May 15, 2019 - 10:23pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Friday, May 15, 2020 - 10:15pm

Maurade Gormley is conducting breast cancer survivorship research funded by the National Institutes of Health at New York University Rory Meyers College of Nursing to better understand how Oncotype Dx® test results may influence health-related quality of life, distress, anxiety, depression, fear, and perceived risk of breast cancer recurrence. If you’ve received the Oncotype Dx® test and are willing to answer a series of questionnaires about your reaction to the test, please contact Maurade Gormley at (203) 767-6653 or via email at mh1847@nyumc.org to discuss eligibility and informed consent. Questionnaires will take approximately 15 to 30 minutes. You will receive a link to the questionnaires to complete online. You may be asked to participate in a telephone interview on a future date. The interview is voluntary. Thank you!

For more information, contact:
Maurade  Gormley
2037676653
mh1847@nyumc.org
Monday, April 1, 2019 - 6:07pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Monday, April 1, 2019 - 6:00pm

I am a health communication researcher requesting your help for a project to collect breast cancer patients’ and survivors’ stories of social support. Cancer Survivors Network is not sponsoring this research, but has reviewed my request and credentials and kindly allowed me to post my survey here.    

 

Study specifics: I am interested in the role of social support in helping people deal with major life events such as changes in health. Your experiences dealing with breast cancer are important and can teach people how to help others cope with illness and recovery. In order to participate, all you need to do is complete and submit the online survey (link is below this message).  It will take about 8-10 minutes, depending on the details you provide. I think you will appreciate the kinds of questions that are included. This is completely anonymous. No personal identification information is collected.  

 

Study consent: Your decision to be involved in this project is completely voluntary.  Even if you begin the survey you can change your mind by closing it out. Participating in this survey has no effect on your status in this online community. No one will know who participated.  I hope you agree to participate in this project! Your responses will help us understand how best to support those who have been diagnosed with breast cancer.  If you have questions about the project, please feel free to contact me at the email address below.  If you plan to participate, and I hope you do, I would appreciate it if you could do so at your earliest convenience when you feel well enough.  Thank you!

 

PLEASE CLICK ON THIS LINK TO TAKE THE SURVEY (if link does not work, please copy and paste it into your browser URL): 

 

https://butler.az1.qualtrics.com/jfe/form/SV_6XzteNhb3U2CBkF

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

 

 

For more information, contact:
Rose Campbell
317-940-9357
rcampbel@butler.edu
Monday, March 4, 2019 - 9:15am

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Monday, March 4, 2019 - 9:00am
Dr. Baafi Okyere

 

Introduction to the Study

 

Principle Investigator: Dr. Baafi Okyere, Doctoral Student, William Carey University School of Nursing

 

 

You are invited to participate in a research study that will be conducted in order to investigate the health cost literacy of cancer patients.  Health cost literacy refers to a cancer patient’s ability to obtain, process, communicate, and use health-related cost information to make informed treatment decisions. The title of the study is “Identifying Cancer Patients at Risk for Low Health Cost Literacy.” The results of this study will be used to inform healthcare providers about which types of resources cancer patients need in order to improve their health cost literacy.
The results of this study will also be used to help the researcher meet the requirements for earning a doctorate of philosophy degree.

Please take the time to read the following information about the study. If you have any questions or concerns, please feel free to reach me at  bokyere358538@student.wmcarey.edu  or at (404) 932-0545. Participation in the study is strictly voluntary and you may withdraw at any time without harm or retaliation. There are no identifiable risks to the participants and no monetary rewards for participation.


 

If you wish to participate in this study, please respond "Yes" to  bokyere358538@student.wmcarey.edu  Once I receive your email, you will receive an email link from "Surveymonkey.com" with instructions to complete the survey. Participation in the study takes a total of between 5 to 10 minutes to complete.  Your name will not be affiliated with the surveys and the collected information kept under lock and key in a file cabinet at the researcher’s home. After the study has been published, the data will be destroyed. In addition, to maintain anonymity, the data will be reported as a group and no personal identifiers will be used.

 

For more information, contact:
Dr. Baafi Okyere
(404) 932-0545
bokyere358538@student.wmcarey.edu
Monday, February 4, 2019 - 6:36pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Monday, February 4, 2019 - 6:30pm

PI: Erik Wibowo, PhD (University of Otago)

Collaborator: Charlene Rapsey, PhD, PGDipCIPs (University of Otago)

Background: Sexual dysfunction is common among men after receiving prostate cancer treatment. Many couples stop sexual activity when the patients have sexual dysfunction, but some remain sexually active.

Aim: Our team plans to assess what strategies prostate cancer patients use to maintain sexual activity.

Eligibility: The study is open to all prostate cancer patients following treatment. 

Procedure: The survey takes about 15 minutes to complete and only needs to be completed once. At the end of the survey, participants can enter a raffle for a chance to win a $100 NZD gift card.

Potential Outcomes: Data from this study can potentially be used by health care providers to advice prostate cancer patients on how to remain sexually active.

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
Erik Wibowo
+6434704692
erik.wibowo@otago.ac.nz
Tuesday, October 16, 2018 - 11:32am

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Tuesday, October 16, 2018 - 11:30am

 

Quit2Heal is a free innovative new research study of a smartphone app to help U.S. cancer patients quit smoking. Quitting smoking can be very difficult, and even more difficult with the added stress of a cancer diagnosis, but patients who quit smoking heal better and recover faster from treatment.  If you decide to join the Quit2Heal study, you will receive free access to the Quit2Heal app and up to $35 for completing a 2-month follow-up survey. To learn why other patients are joining Quit2Heal and to see if signing up for this ground-breaking resource could be right for you or someone you love, visit www.Quit2Heal.org

 

 

 The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
Jonathan Bricker
877-250-6641
Quit2Heal@fredhutch.org

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