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CSN will briefly be down for maintenace on Thursday, 1/24 from 9:00pm-10:00pm EST. Thank you.

Announcements

Have an announcement? Complete and submit an announcement submission request form. Announcements are selected based on relevance and available space. Selection does not imply endorsement by the American Cancer Society.

Wednesday, January 9, 2019 - 11:44am

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Wednesday, January 9, 2019 - 11:30am

 

My name is Kathryn Thibedeau and I am a fourth-year doctoral student in clinical psychology at William James College. I am writing to request your participation in my doctoral research project.  The goal of my study is to explore possible benefits and end-of-life concerns experienced by individuals who have been diagnosed with cancer.

This study is for any individual who has been diagnosed with cancer regardless of stage and/or disease status. Individuals whose cancer is in remission are also qualified to take this study.

To participate in the survey, you must:

  • Be 18 years or older
  • Have been diagnosed with cancer (excluding non-melanoma skin cancers)
  • Can read and write in English
  • Have not experienced a psychiatric hospitalization in the past six months or be in severe emotional distress

This survey takes approximately 15 minutes to complete. Participants have the choice to enter a raffle to win a $50 Amazon gift card.

 

If you are interested in completing the survey, you may do so by clicking the following link: https://tinyurl.com/ybr399sa

 

If you know anyone who may be interested in completing this study, please forward this message to that individual.

 

Thank you!

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
Kathryn Thibedeau
kathryn_thibedeau@williamjames.edu
Tuesday, December 18, 2018 - 5:25pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Sexual dysfunction is common among men after receiving prostate cancer treatment. Many couples stop sexual activity when the patients have sexual dysfunction, but some remain sexually active.

If you have received prostate cancer treatment, please consider joining a short survey (~15 minutes) assessing what strategies patients use to maintain sexual activity. Data from this study can potentially be used by health care providers to advise prostate cancer patients on how to remain sexually active.

The survey can be accessed by clicking: http://j.mp/2QxSDid

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

 

For more information, contact:
Erik Wibowo
64 3 470 4692
erik.wibowo@otago.ac.nz
Tuesday, December 18, 2018 - 9:48am

Event (e.g.conference, teleconference, fundraiser, etc.)

Friday, January 18, 2019 - 3:45am
Free Upcoming CancerCare Connect® Education Workshops

Free Upcoming CancerCare Connect® Education Workshops

CancerCare workshops take place over the telephone or as a webcast online.

www.cancercare.org/connect

 

CancerCare, in collaboration with the American Cancer Society, offers free workshops on a variety of cancer-related topics. Unless otherwise noted, all workshops take place from 1:30 - 2:30 pm Eastern Time. For details and to register for a workshop, call 800-813-HOPE (4673), or visit the CancerCare website at www.cancercare.org/connect.

 

2/5 – Progress in the Treatment of Follicular Lymphoma

2/11 – Treatment Update on Liver Cancer and Managing the Cost of Care

2/21 – Update on Glioblastoma in Adults

3/5 – Medical Update on Ovarian Cancer

3/7 – Update on Chronic Lymphocytic Leukemia (CLL)

3/15 – Upcoming Trends in Renal Cell Cancer

3/18 – Advances in the Treatment of Colorectal Cancer

For more information, contact:
Lorena Tan Wang
800-813-HOPE (4673)
connect@cancercare.org
Tuesday, October 16, 2018 - 11:32am

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Tuesday, October 16, 2018 - 11:30am

 

Quit2Heal is a free innovative new research study of a smartphone app to help U.S. cancer patients quit smoking. Quitting smoking can be very difficult, and even more difficult with the added stress of a cancer diagnosis, but patients who quit smoking heal better and recover faster from treatment.  If you decide to join the Quit2Heal study, you will receive free access to the Quit2Heal app and up to $35 for completing a 2-month follow-up survey. To learn why other patients are joining Quit2Heal and to see if signing up for this ground-breaking resource could be right for you or someone you love, visit www.Quit2Heal.org

 

 

 The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
Jonathan Bricker
877-250-6641
Quit2Heal@fredhutch.org
Tuesday, October 9, 2018 - 4:52pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Wednesday, August 8, 2018 - 8:45am

My name is Michael Verile. I am a counseling psychology student at the University at Albany, and the principal investigator on a study titled Illness Self Concept and Mental Adjustment to Cancer. I am posting on this forum in the hope that you would be able to assist by serving as a participant in my study by taking this 20-25 minute survey. The only criterion is that the participants have carried a diagnosis for one or more of the following five forms of cancers (Breast cancer, Lung cancer, Prostate cancer, Colon cancer or Rectal cancer) within the past 3 years.

Attached is a link to the survey as well as the informed consent for our study ( https://www.psychdata.com/s.asp?SID=180430 ).  The study has been approved by the University at Albany Institutional Review Board [protocol number: 18-E-050-01].

If you have questions about this research study, you may contact the principal investigator Michael Verile at: mverile@albany.edu or my faculty advisor Hung-Bin Sheu at: hsheu@albany.edu.

Thank you for considering assisting me in this research. If you need any more information I will be happy to get it to you.

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

 

For more information, contact:
Michael Verile
mverile@albany.edu
Monday, September 17, 2018 - 6:15pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Monday, September 17, 2018 - 6:00pm
Lauren Loughlin

The Association of Stigma and Self-Disclosure with Social Support, Mental Health, and Posttraumatic Growth Among Cancer Patients

This study examines experiences of living with cancer. You are being asked to complete a series of questionnaires that assess your experiences of stigma, self-disclosure, social support seeking and utilization, and mental health. In order to better understand how people experience cancer, we are interested in hearing the voices of cancer survivors. You will qualify for the study if you are 18 years old or older, have been diagnosed with any type of cancer six to eighteen months prior to participation in the study, and are currently post-treatment. The entire study will take about 45 minutes to complete. Your participation is completely voluntary and if you are uncomfortable at any time, you are welcome to stop answering the questions. Upon completing the survey, you will have the opportunity to voluntarily provide your email address in order to enter a drawing to win a $100 Amazon gift card.

Thank you for considering your participation. The study is confidential.
Please feel free to send this study to others who may qualify.
We appreciate your time.

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study. We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study. Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
Lauren Loughlin
8457051619
laurenloughlin@mail.adelphi.edu
Tuesday, September 11, 2018 - 3:53pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Tuesday, September 11, 2018 - 2:45pm

Have you had one of the following surgeries or procedures?

  • Coronary Artery Bypass Graft (CABG)
  • Treatment for Kidney Stones
  • Hernia Repair Surgery
  • Spinal Fusion
  • Kidney Diaslysis
  • Hip Replacement Surgery
  • Mastectomy or Lumpectomy

Or have you been hospitalized for any of the following conditions?

  • COPD (Chronic Obstructive Pulmonary Disease)
  • Psychosis
  • Bleeding from the Large Intestine
  • Acute Kidney Injury

See if you're eligible to participate in our study by filling out this quick form.

Those who are elected to participate in a 30-minute phone call will receive $25!

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
Jonah Harris
3012942890
jonahharris@westat.com
Thursday, August 16, 2018 - 10:03pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Thursday, August 16, 2018 - 10:00pm
Erik Wibowo
Online

Many men have poor sleep after prostate cancer treatment. If you've been diagnosed with prostate cancer, please consider joining an online study to identify what factors are associated with sleep problems in prostate cancer patients.

Dr Erik Wibowo from the University of Otago in New Zealand is leading a sleep study on prostate cancer patients and is seeking participants. Data from this study could be used by clinicians to optimize treatment for patients and partners who experience sleep problems.

The study comprises an online questionnaire which takes about 45 minutes to complete. Participants can enter into a raffle for a chance to win a $100 NZD VISA gift card. Click the link to take part in the study.  http://j.mp/2tpIHxW

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
Erik Wibowo
+6434704692
erik.wibowo@otago.ac.nz
Friday, July 20, 2018 - 12:23pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Friday, July 20, 2018 - 12:15pm

Purpose: The American Cancer Society is testing a modified version of the Cancer Survivors Network (CSN) and is inviting you to try it. This research is being done in collaboration with Carnegie Mellon University and is sponsored by the National Institutes of Health.

 

Procedure: Your participation is voluntary.  If you agree, you will use a modified version of CSN to participate in the community.  You will have access to all CSN content, and any posts or comments you make will be added to the CSN community, just as they are now. What is new is that you will see recommendations for content and other members that might interest you. These recommendations are based on what you have read on CSN. As you read more discussion threads, the recommended content and members will be updated. You will occasionally receive a survey to get your feedback on the new interface. We will also ask about the relevance and value of the recommended content.   These surveys will take less than three minutes to complete, and you will receive them at most once per week. We will also invite a small number of members to give more extensive feedback through a phone interview.

 

To participate in this trial, click this link: Yes, I’ll use the new CSN interface.  You can always opt-out later by clicking ‘the use the traditional CSN design’ button on your CSN user profile.

 

Principal investigators:

Robert Kraut, PhD

Herbert A. Simon Professor of Human-Computer Interaction

Carnegie Mellon University

Pittsburgh PA 15213

412 268-7694

robert.kraut@cmu.edu

 

Tenbroeck Smith

Director of Patient Reported Outcomes Research, Behavioral Research Center

American Cancer Society

Atlanta GA

 

tenbroeck.smith@cancer.org

For more information, contact:
Robert Kraut
(412) 268-7694
robert.kraut@cmu.edu
Tuesday, April 10, 2018 - 2:53pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Tuesday, April 10, 2018 - 2:45pm

We are conducting a research study about people affected by head and neck cancer. 
 
If you have ever been diagnosed with any kind of head and neck cancer, we are interested in hearing from you!
 
The purpose of the study is to 1) examine the priorities and preferences of patients with head and neck cancer in regards to discussing and receiving information about sexuality (sexual function and sexual wellbeing) from healthcare professionals and 2) examine patient perceptions of existing self-report measures used to assess sexuality in patients with head and neck cancer.

If you are over the age of 21 and have access to a computer, you may be eligible to participate.

Participation will only require filling out online surveys, and you will receive a $10 gift card for your participation. 

We hope the results from this study will help to create resources about sexuality for future patients with head and neck cancer. 

If you are interested in participating, please go to: 
https://redcap.vanderbilt.edu/surveys/?s=HYLHYHRN79 

You can also call 615-343-1838, toll free 1-833-402-8664 or email Dr. Bethany Rhoten and her research team (vusnoncresearch@vanderbilt.edu) with any questions you may have about this research study.

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
Bethany Rhoten
615-343-1838
vusnoncresearch@vanderbilt.edu

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