Announcements

Have you had one of the following surgeries or procedures?

• Coronary Artery Bypass Graft (CABG)
• Treatment for Kidney Stones
• Hernia Repair Surgery
• Spinal Fusion
• Kidney Diaslysis
• Hip Replacement Surgery
• Mastectomy or Lumpectomy

Or have you been hospitalized for any of the following conditions?

• COPD (Chronic Obstructive Pulmonary Disease)
• Psychosis
• Bleeding from the Large Intestine
• Acute Kidney Injury

See if you're eligible to participate in our study by filling out this quick form.

Those who are elected to participate in a 30-minute phone call will receive $25!

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

My name is MJ DeCoteau and I am the executive director of Rethink Breast Cancer (www.rethinkbreastcancer.com) – a Canadian patient group dedicated to building community for young women dealing with breast cancer and providing support and resources to help them live the best quality of life.

We are looking for woman with ER-positive, HER2-negative metastatic breast cancer and women who have been treated with Ibrance (palbociclib) in combination with Faslodex (fulvestrant) to talk about their treatment experience.

The Canadian government will soon be reviewing the use of Ibrance to treat ER-positive, HER2-negative metastatic breast cancer and Rethink Breast Cancer will be making a submission to ensure that patient voices are represented and considered during the review process.

YOU DO NOT NEED TO LIVE IN CANADA TO PARTICIPATE.

If you are interested in talking about your experiences, we would like to ask you to complete this survey: https://www.surveymonkey.com/r/VNRHDRB

If you would like to speak with us directly about your cancer or treatment experience, you can contact Shawna Rich-Ginsberg at shawna@rethinkbreastcancer.com.

We would also like to invite your family or friends to talk about their experience caring for a patient being treated with Ibrance: https://www.surveymonkey.com/r/VF9RRDG

MJ DeCoteau

Founder + Executive Director

Rethink Breast Cancer

Purpose: The American Cancer Society is testing a modified version of the Cancer Survivors Network (CSN) and is inviting you to try it. This research is being done in collaboration with Carnegie Mellon University and is sponsored by the National Institutes of Health.

Procedure: Your participation is voluntary.  If you agree, you will use a modified version of CSN to participate in the community.  You will have access to all CSN content, and any posts or comments you make will be added to the CSN community, just as they are now. What is new is that you will see recommendations for content and other members that might interest you. These recommendations are based on what you have read on CSN. As you read more discussion threads, the recommended content and members will be updated. You will occasionally receive a survey to get your feedback on the new interface. We will also ask about the relevance and value of the recommended content.   These surveys will take less than three minutes to complete, and you will receive them at most once per week. We will also invite a small number of members to give more extensive feedback through a phone interview.

To participate in this trial, click this link: Yes, I’ll use the new CSN interface.  You can always opt-out later by clicking ‘the use the traditional CSN design’ button on your CSN user profile.

Principal investigators:

Robert Kraut, PhD

Herbert A. Simon Professor of Human-Computer Interaction

Carnegie Mellon University

Pittsburgh PA 15213

412 268-7694

robert.kraut@cmu.edu

Tenbroeck Smith

Director of Patient Reported Outcomes Research, Behavioral Research Center

American Cancer Society

Atlanta GA

tenbroeck.smith@cancer.org

Want to help researchers understand why people choose, or decline, to participate in cancer clinical studies? Click the link below to learn more.

https://goo.gl/forms/1iHsLp2RFuRT3SVR2

Participants will be entered to win a $50 Amazon gift card. By being a part of this study, you will help researchers identify reasons people may or may not participate in clinical studies. With a better understanding of those reasons, researchers may be able to improve the clinical study process and experience for future patients, such as yourself.

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider