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Have an announcement? Complete and submit an announcement submission request form. Announcements are selected based on relevance and available space. Selection does not imply endorsement by the American Cancer Society.

Saturday, April 21, 2018 - 10:03am

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Saturday, April 21, 2018 - 10:00am

Lymphoma Patient Survey – Experience with CAR-T Therapy for DLBCL

 

If you have or had Diffuse Large B Cell Lymphoma (DLBCL) and have been treated with CAR-T therapy, you can help by completing our survey.

 

Lymphoma Canada is preparing a submission for the pan¬Canadian Oncology Drug Review (pCODR):

 

CAR-T therapy for relapsed Diffuse Large B Cell Lymphoma (DLBCL)

 

The survey provides us with the patient input required for the submission. pCODR uses this information to help them make recommendations to provinces and territories regarding funding for new cancer drugs.

 

You do not need to live in Canada to complete this survey.

 

BY COMPLETING THIS SURVEY, YOU ARE PART OF THE PROCESS THAT MAY HELP PATIENTS GAIN ACCESS TO THIS TREATMENT IN CANADA.

 

The survey will be open until midnight Pacific Time on Friday, May 11, and should only take 10 minutes of your time.

 

You may access the survey by clicking the link below.

 

Patient Experience Survey - CAR-T therapy for DLBCL

 

Please share and help us spread the word.

 

Thank you for your support.

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider

 

For more information, contact:
Elizabeth Lye
elizabeth@lymphoma.ca
Thursday, April 19, 2018 - 9:38am

Event (e.g.conference, teleconference, fundraiser, etc.)

Thursday, April 19, 2018 - 9:30am
Free Upcoming CancerCare Connect® Education Workshops

CancerCare, in collaboration with the American Cancer Society, offers free workshops on a variety of cancer-related topics. Unless otherwise noted, all workshops take place from 1:30 - 2:30 pm Eastern Time. For details and to register for a workshop, call 800-813-HOPE (4673), or visit the CancerCare website at www.cancercare.org/connect.

 

5/2 – Managing the Side Effects of Immunotherapy, Part II of Immunotherapy: A Promising New Approach to Treating Cancer

5/7 – Treatment Update on Liver Cancer and Managing the Cost of Care

5/8 – Progress in the Treatment of Follicular Lymphoma

5/16 – Breast Cancer and Older Women

5/17 – Managing the Complications of Chronic Lymphocytic Leukemia (CLL)

5/23 – Update on Neuroendocrine Tumors

5/23 – Update on Diffuse Large B-Cell Lymphoma (4:00-5:00 pm ET)

5/24 – What are Biosimilars? Understanding Their Role in Cancer Treatments: Current and Future Perspectives

6/11 – Advances in the Treatment of Gastric Cancer

6/20 – Progress in the Treatment of Oral and Head and Neck Cancer

6/27 – Progress in the Treatment of Waldenstrom’s Macroglobulinemia

6/29 – Treatment Update for Adults Living with Acute Lymphocytic Leukemia (ALL)

For more information, contact:
Lorena Tan Wang
800-813-HOPE (4673)
connect@cancercare.org
Thursday, April 19, 2018 - 9:33am

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Thursday, April 19, 2018 - 9:30am

If you’ve taken on caregiving for a loved one in recent years and face the challenges of balancing the healthcare needs of your loved one with your own needs, we want to hear your views.

The role of the caregiver, particularly in medical decision-making, is a role taken on urgently, without warning – and often with little expertise.  Yet the needs, challenges and issues that we face as we voluntarily care for loved ones with chronic and/or debilitating illnesses or conditions can be overwhelming and time-consuming.

Our hope is that your insights will help lead to better support for caregivers in this important role. More than 70 organizations are partnering on this survey because of their keen interest in helping you, the caregiver, as you navigate medical and care decisions that affect you and your loved one.

Findings from the survey will be published, shared widely through our partners’ networks and posted on the Rx4good website. If you have questions about the survey, please contact us at info@rx4good.com.

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
Rachel Cannady
Tuesday, April 10, 2018 - 2:53pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Tuesday, April 10, 2018 - 2:45pm

We are conducting a research study about people affected by head and neck cancer. 
 
If you have ever been diagnosed with any kind of head and neck cancer, we are interested in hearing from you!
 
The purpose of the study is to 1) examine the priorities and preferences of patients with head and neck cancer in regards to discussing and receiving information about sexuality (sexual function and sexual wellbeing) from healthcare professionals and 2) examine patient perceptions of existing self-report measures used to assess sexuality in patients with head and neck cancer.

If you are over the age of 21 and have access to a computer, you may be eligible to participate.

Participation will only require filling out online surveys, and you will receive a $10 gift card for your participation. 

We hope the results from this study will help to create resources about sexuality for future patients with head and neck cancer. 

If you are interested in participating, please go to: 
https://redcap.vanderbilt.edu/surveys/?s=HYLHYHRN79 

You can also call 615-343-1838, toll free 1-833-402-8664 or email Dr. Bethany Rhoten and her research team (vusnoncresearch@vanderbilt.edu) with any questions you may have about this research study.

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
Bethany Rhoten
615-343-1838
vusnoncresearch@vanderbilt.edu
Friday, March 23, 2018 - 11:03am

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Friday, March 23, 2018 - 10:45am

My name of MJ DeCoteau and I am the executive director of Rethink Breast Cancer (www.rethinkbreastcancer.com) – a Canadian patient group dedicated to building community for young women dealing with breast cancer and providing support and resources to help them live the best quality of life.


We are looking for woman with HER2-positive early breast cancer and women who have been treated with Herceptin-Perjeta (pertuzumab-trastuzumab) combination therapy to talk about their treatment experience. We welcome feedback from women in the United States and other countries.


The Canadian government will soon be reviewing the use of Herceptin-Perjeta to treat HER2-positive early breast cancer that is node-positive or hormone receptor-negative, and Rethink Breast Cancer will be making a submission to ensure that patient voices are represented and considered during the review process.


If you are interested in talking about your experiences, we would like to ask you to complete this survey: https://www.surveymonkey.com/r/R76HZXY


If you would like to speak with us directly about your cancer or treatment experience, you can contact Shawna Rich-Ginsberg at shawna@rethinkbreastcancer.com.


We would also like to invite your family or friends to talk about their experience caring for a patient being treated with ribociclib: https://www.surveymonkey.com/r/RD79RF3


MJ DeCoteau

Founder + Executive Director

Rethink Breast Cancer

 

The above announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
Shawna Rich-Ginsberg
shawna@rethinkbreastcancer.com
Sunday, March 18, 2018 - 8:50pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Sunday, March 18, 2018 - 8:45pm

 

Swansea University is conducting research into people’s views and experiences of undergoing different types of bladder reconstruction - ClinicalTrials.gov Identifier: NCT03325231.  This research is funded by Tenovus Cancer Care to find out what types of bladder reconstruction best suit different lifestyles, as this can help in advising people facing this decision in the future.  The research involves completing a short (about 20 minutes), completely private and confidential, online survey – you will NOT be asked for any personal contact details.  The survey asks about your satisfaction with your bladder reconstruction, the interests you have, and how these have been affected post-surgery.  If you want more information, please contact Professor Phil Reed, the research lead (e-mail: p.reed@swansea.ac.uk).  If you wish to participate, this link will take you to the survey:

 

http://psy.swan.ac.uk/questionnaires/bladder_reconstruction_survey/ - many thanks for taking time to read this post.

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

 

For more information, contact:
Phil Reed
0044 (0)1792 602047
p.reed@swansea.ac.uk
Tuesday, March 6, 2018 - 9:38pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Friday, September 8, 2017 - 11:15am

Hello,

 

My name is Basem Gayed and I am a third year dental student at the University of Connecticut School of Dental Medicine. I am working on customer discovery efforts related to a proposed new product for mouth ulcers as a result of cancer treatment. This project is being led by Dr. Rajesh Lalla and is part of the Accelerate UConn program which seeks to advance the development of new products.

 

We are interested in collecting information on the possible need for a new medication to reduce pain due to oral mucositis (mouth sores due to cancer treatment). If you had mouth sores due to chemotherapy or radiation therapy, we would greatly appreciate it if you can take an anonymous survey at the link below. Your participation is voluntary. If you choose to participate, please complete the survey. While complete surveys will provide better data, you may skip questions that you do not feel comfortable answering. Your response to these questions should take between 2-5 minutes to complete. Completion of this survey signifies your consent to participate in the study. The information obtained may help in the development of a new treatment option for this problem. Your survey responses will be recorded in a de-identified manner i.e. no one will be able to connect your responses to your identity from the survey database. Therefore, your confidentiality will be protected.

 

Thank you for your time and consideration. If you have any questions, please send me an email at gayed@uchc.edu.

 

Sincerely,

Basem Gayed

 

Link to survey: https://goo.gl/forms/WbFGcU30BKd4gdgj1

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
Basem Gayed
gayed@uchc.edu
Tuesday, March 6, 2018 - 2:50pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Tuesday, March 6, 2018 - 2:45pm

What was your experience with the financial costs of cancer treatment?

This study, conducted by researchers at the University of Louisville, is about the impact of cancer treatment on the financial well-being and quality of life of cancer survivors.

We are inviting volunteers who have been diagnosed with breast cancer or blood (Leukemia, Lymphoma, or Myeloma) cancer within the past five years to participate in this study.

This study is open to men and women 18 years and older. It involves taking a 20-30 minute online survey and it is completely anonymous.

By better understanding your experiences we may be able to help others navigate the financial terrain of cancer.

If interested in participating follow this link to the survey.
https://qmsweb.louisville.edu/blue/a.aspx?l=3325_1_AAAAAAAAaB8

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study. We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study. Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
Lisa Smith
502-472-0724
Lcsmit11@louisville.edu
Wednesday, February 28, 2018 - 11:01pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Monday, January 8, 2018 - 11:00am

The Psycho-Oncology Research Group of NUI Galway (Ireland) are carrying out a study that explores men's experience of prostate cancer. Completing this 10-minute anonymous survey will help us to better understand the changes men might experience following the difficult time of prostate cancer diagnosis and treatment. A better understanding of this experience will enable us to help future patients manage the impact of the illness. 

 If you have experienced prostate cancer, please consider completing this short survey. The questionnaire is completed entirely online in one session and gathers information about mens personal experience of prostate cancer. Further information about the study and contact information for the researchers can be found at this link:

https://docs.google.com/forms/d/e/1FAIpQLSciHb228lKpQEMlUzZT7LRHxOpSDOZImXjrcuhgR92o5uv0kQ/viewform?c=0&w=1

Many thanks for your contribution!

Jean Skelton

 

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

 

For more information, contact:
Jean Skelton
jean.skelton@yahoo.ie
Thursday, February 1, 2018 - 12:07am

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Friday, January 5, 2018 - 12:30pm

Hello! I am a PhD student in the School of Education at Walden University. I am completing a study that describes the self-learning experiences of women who use Facebook to learn about their breast cancer and how these experiences reflect the concepts of connectivism, a learning theory (Siemens, 2006). 


I am seeking 10 participants who are interested in describing their experiences using Facebook as a tool for learning about their breast cancer. You must meet the following criteria to be considered as a participant: 
1. A woman over the age of 21. 
2. A woman who had breast cancer or who is currently undergoing breast cancer treatment. 
3. A woman who is a member of a group or groups on Facebook dedicated to breast cancer, either in the past or currently.
4. A woman who identifies as using Facebook to learn about her disease.

Voluntary participation in this research includes participating in an audio recorded individual interview using a web conferencing tool, where I will ask you questions about your experiences related to learning about your breast cancer diagnosis. The initial interview will take approximately 60 minutes. I will send you a follow-up reflective questionnaire via a password protected site that will take approximately 30 minutes to complete. If you participate in the interview and the follow-up questionnaire, your total time commitment will be approximately 1.5 hours. I will keep all data confidential. 

How to Participate: 
If you would like to participate, please indicate your interest by completing the interest form found at this link. I will send consent forms to the first 10 individuals who respond to this inquiry and meet the criteria. 
If you have any questions about this study, please respond in the comment section of the form. 
Thank you!

https://app.smartsheet.com/b/form/e27f9dea189f4ef5957b1d8bcb3514db

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
KAREN WONDERGEM
6026703763
karen.wondergem@waldenu.edu

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