CSN Login
Members Online: 3

You are here

Coronavirus/COVID-19

What cancer patients, their families, and caregivers need to know about COVID-19.

Announcements

Have an announcement? Complete and submit an announcement submission request form. Announcements are selected based on relevance and available space. Selection does not imply endorsement by the American Cancer Society.

Monday, May 18, 2020 - 10:09am

Event (e.g.conference, teleconference, fundraiser, etc.)

Monday, May 18, 2020 - 10:15am
Free Upcoming CancerCare Connect® Education Workshops

Free Upcoming CancerCare Connect® Education Workshops

CancerCare workshops take place over the telephone or as a webcast online.

www.cancercare.org/connect

 

CancerCare, in collaboration with the American Cancer Society, offers free workshops on a variety of cancer-related topics. Unless otherwise noted, all workshops take place from 1:30 - 2:30 pm Eastern Time. For details and to register for a workshop, call 800-813-HOPE (4673), or visit the CancerCare website at www.cancercare.org/connect.

 

5/21 – Coping with the Stresses of Caregiving When Your Loved One Has Chronic Lymphocytic Leukemia (CLL)

5/27 – For Caregivers: Practical Tips to Cope with Your Loved Ones’ Bladder Cancer, Part II of Life with Bladder Cancer

5/29 – Advances in the Treatment of Gastrointestinal Stromal Tumors (GIST)

6/2 – Progress in the Treatment of Lung Cancer, Part I of Life with Lung Cancer

6/4 – Treatment Update on Mantle Cell Lymphoma (MCL)

6/9 – Living with Chronic Myelogenous Leukemia (CML)

6/11 – Progress in the Treatment of Multiple Myeloma, Part I of Life with Multiple Myeloma

6/15 – Progress in the Treatment of Myelodysplastic Syndrome (MDS)

6/16 – Current Perspectives in Cancer Survivorship

6/17 – The Benefits of Clinical Trials for Triple Negative Breast Cancer

6/18 – What are Biosimilars? Understanding Their Role in Cancer Treatment: Current and Future Perspectives

6/19 – Living with Acute Myelogenous Leukemia (AML)

6/22 – Understanding Diagnostic Technologies and Biomarkers

6/23 – For Caregivers: Practical Tips for Coping with Your Loved One’s Lung Cancer, Part II of Life with Lung Cancer

6/24 – Treatment Adherence: Taking Your Pills on Schedule – Why It Is So Important

6/25 – Coping with the Stresses of Caregiving When Your Loved One Has Multiple Myeloma, Part II of Life with Multiple Myeloma

 

For more information, contact:
Lorena Tan Wang
800-813-HOPE (4673)
connect@cancercare.org
Sunday, May 10, 2020 - 6:08pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Sunday, May 10, 2020 - 6:00pm

Hello! My name is Anthony Cavalier and I am graduate student studying clinical psychology. As a cancer survivor myself, I know from personal experience how emotionally challenging cancer and its treatment can be. In part to help make some positive meaning out of my own experience, I’m studying individuals’ attitudes toward, and need for, mental health services during this difficult time. With this in mind, would you please take a few minutes to answer this confidential survey? Please note that your name or identifying information will not appear anywhere in my dissertation or related papers. Thank you, and I will be happy to send the results of my research to anyone who is interested. I wish you all well on this journey.

Survey Link:
https://docs.google.com/forms/d/e/1FAIpQLSf7QkbCvnsv5CsKXYl_vRHKab8tAKOD...

If you are currently experiencing psychological distress and would like help, below are several links to national mental health services, along with descriptions of their services:

•National Suicide Prevention Lifeline: 1-800-273- TALK (8255)
The Lifeline provides 24/7, free and confidential support for people in distress, and prevention and crisis resources for you or your loved ones.

•Substance Abuse and Mental Health Services Administration (SAMHSA) National Helpline: 1-800-662-HELP (4357)
The SAMHSA National Helpline is a confidential, free, 24-hour-a-day, 365-day-a-year, information service for individuals and family members facing mental and/or substance use disorders. This service provides referrals to local treatment facilities, support groups, and community-based organizations. Callers can also order free publications and other information.

•National Alliance on Mental Health (NAMI) HelpLine: 1-800-950-NAMI (6264)
The NAMI HelpLine can be reached Monday through Friday, 10 am–6 pm, ET. The NAMI HelpLine is a free, nationwide peer-support service providing information, resource referrals and support to people living with a mental health conditions, their family members and caregivers, mental health providers and the public.

For more information, contact:
Anthony Cavalier
215 932-2935
acavalier90@gmail.com
Thursday, May 7, 2020 - 2:06pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Thursday, May 7, 2020 - 2:00pm

Want to help develop a “virtual librarian” for women with ovarian cancer and their families? 

If you or a family member has been diagnosed with ovarian cancer, we would like to invite you to participate in the HELPeR (Health E-Librarian with Personalized Recommender engine) research study at the University of Pittsburgh. Participation in this study will help us to better understand the information needs and preferences of women with ovarian cancer and their family members. We are especially interested in what information is most valuable to you when you are searching for online information, support, and resources related to ovarian cancer. 

• You will be asked to participate in an interview that will take no more than 1 hour. The interview will be scheduled at a convenient time for you and could be done in person, over the telephone or by video meeting.

• Your decision about whether to participate in this study will not have any impact on your usual care. 

You may be eligible for this study if:

• You are 18 years or older

• You or a family member have been diagnosed with ovarian cancer 

• You have access to a computer and the Internet

 

There is no cost to you for participating.

Compensation ($50) will be provided.

 

Please call (412) 496-8268 or Email: helper@pitt.edu for more information to participate. 

 

For more information, contact:
Young Ji Lee
(412) 496-8268
helper@pitt.edu
Thursday, May 7, 2020 - 6:40am

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Thursday, May 7, 2020 - 6:30am

Researchers at Queen’s University Belfast and the University of Aberdeen, invite you to take part in an online research study investigating the impact of the COVID-19 (coronavirus) pandemic on caregivers and patients with cancer, pre-cancerous conditions and rare diseases.

PLEASE have your experiences counted by completing this survey: https://www.surveymonkey.co.uk/r/IMPACCTsurvey  

For more information, contact:
Lesley Anderson
0044 7557245916
l.anderson@qub.ac.uk
Thursday, April 30, 2020 - 4:09pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Thursday, April 30, 2020 - 4:00pm

 

The current pandemic is affecting cancer patients, survivors, caregivers, and health care providers in ways that few others understand. The American Cancer Society Cancer Action Network is conducting a survey to better comprehend these challenges, and we hope you will consider participating.

This anonymous survey includes questions about the health care, economic, emotional, and physical impacts of COVID-19 on cancer patients, survivors, and caregivers.

Please take 10 minutes today to tell us how the COVID-19 outbreak is affecting you as a (cancer patient, survivor, caregiver, or healthcare provider).

The survey closes on Thursday, May 14 and may be taken on any internet-connected computer, tablet, or smart phone. 

For more information, contact:
Amy Farner
Thursday, October 17, 2019 - 2:23pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Thursday, October 17, 2019 - 1:00pm

The Laboratory for Brain and Cognitive Health Technology at McLean Hospital is collaborating with the National Cancer Institute to implement a study looking at cognition in those who have been affected by cancer.

The study takes about an hour and includes completing 2 questionnaires about your background and then completing 12 cognitive tasks that look at your attention and cognitive style. At the end, you will get your scores on these tests and how they compare to others who have completed the same tests.

Eligibility:

1) We are seeking women and men who have a current or past diagnosis of cancer between the ages of 18 and 89.

2) However, you cannot be currently receiving treatment for cancer (e.g. surgery, chemotherapy, radiation therapy, or hormonal therapy etc.)

Benefits:

You will receive no direct benefits from your participation in this study. However, you will be given feedback on your performance on the tests at the end of the study. In addition, we hope this study will provide information that will further cancer researchers’ understanding of cognition in cancer affected individuals and appropriate tests to use to examine brain health in people who have had cancer.

Contact Person:

If you have any questions about this study or your eligibility, please email: bachtech@mclean.harvard.edu . Please mention "Cancer Study" in your message.

To participate in this study, please follow this link:

https://testmybrain.org/launch/nci_bridgestudy/NCIentry.php?g=a

 

 

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

 

 

For more information, contact:
Todd Horowitz
2402766963
todd.horowitz@nih.gov
Monday, September 17, 2018 - 6:15pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Monday, September 17, 2018 - 6:00pm
Lauren Loughlin

The Association of Stigma and Self-Disclosure with Social Support, Mental Health, and Posttraumatic Growth Among Cancer Patients

This study examines experiences of living with cancer. You are being asked to complete a series of questionnaires that assess your experiences of stigma, self-disclosure, social support seeking and utilization, and mental health. In order to better understand how people experience cancer, we are interested in hearing the voices of cancer survivors. You will qualify for the study if you are 18 years old or older, have been diagnosed with any type of cancer six to eighteen months prior to participation in the study, and are currently post-treatment. The entire study will take about 45 minutes to complete. Your participation is completely voluntary and if you are uncomfortable at any time, you are welcome to stop answering the questions. Upon completing the survey, you will have the opportunity to voluntarily provide your email address in order to enter a drawing to win a $100 Amazon gift card.

Thank you for considering your participation. The study is confidential.
Please feel free to send this study to others who may qualify.
We appreciate your time.

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study. We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study. Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
Lauren Loughlin
8457051619
laurenloughlin@mail.adelphi.edu
Friday, July 20, 2018 - 12:23pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Friday, July 20, 2018 - 12:15pm

Purpose: The American Cancer Society is testing a modified version of the Cancer Survivors Network (CSN) and is inviting you to try it. This research is being done in collaboration with Carnegie Mellon University and is sponsored by the National Institutes of Health.

 

Procedure: Your participation is voluntary.  If you agree, you will use a modified version of CSN to participate in the community.  You will have access to all CSN content, and any posts or comments you make will be added to the CSN community, just as they are now. What is new is that you will see recommendations for content and other members that might interest you. These recommendations are based on what you have read on CSN. As you read more discussion threads, the recommended content and members will be updated. You will occasionally receive a survey to get your feedback on the new interface. We will also ask about the relevance and value of the recommended content.   These surveys will take less than three minutes to complete, and you will receive them at most once per week. We will also invite a small number of members to give more extensive feedback through a phone interview.

 

To participate in this trial, click this link: Yes, I’ll use the new CSN interface.  You can always opt-out later by clicking ‘the use the traditional CSN design’ button on your CSN user profile.

 

Principal investigators:

Robert Kraut, PhD

Herbert A. Simon Professor of Human-Computer Interaction

Carnegie Mellon University

Pittsburgh PA 15213

412 268-7694

robert.kraut@cmu.edu

 

Tenbroeck Smith

Director of Patient Reported Outcomes Research, Behavioral Research Center

American Cancer Society

Atlanta GA

 

tenbroeck.smith@cancer.org

For more information, contact:
Robert Kraut
(412) 268-7694
robert.kraut@cmu.edu