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Have an announcement? Complete and submit an announcement submission request form. Announcements are selected based on relevance and available space. Selection does not imply endorsement by the American Cancer Society.



Looking for Survivors to Interview for Oncology Publication
Tuesday, April 13, 2021 - 9:45am

Opportunity to Get Involved (e.g. advocacy, volunteer)

Tuesday, April 13, 2021 - 9:30am
Jo Cavallo

 

Hello,

I write a column called the Patient’s Corner in The ASCO Post, a partnership publication between Harborside and the American Society of Clinical Oncology (ASCO), which is read by oncology physicians, researchers, and other oncology professionals. The column is a first-person description of how people are affected by cancer. I’m looking for cancer survivors who are interested in being interviewed about their experience of having cancer. The interviews I conduct are done over the phone and take about 30 minutes.

Here is a link to a column so you can see the format: https://ascopost.com/issues/april-25-2020/a-clinical-trial-saved-my-life/.

If you are interested in being interviewed for the Patient’s Corner column or if you have questions regarding the column, please contact me at jcavallo@hbside.com; 212-463-9288. Please include some brief information about your cancer, including your type of cancer.

Thank you so much for your consideration.

Best,

Jo Cavallo

Senior Editor and Correspondent

The ASCO Post

 

For more information, contact:
Jo Cavallo
2124639288
jcavallo@hbside.com
Senior Editor and Correspondent


Piqray Patient Recruitment--Breast Cancer Patients
Monday, March 29, 2021 - 3:08pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Monday, March 29, 2021 - 1:45pm

My name is MJ DeCoteau and I am the executive director of Rethink Breast Cancer (www.rethinkbreastcancer.com) – a Canadian patient group dedicated to building community for young women dealing with breast cancer and providing support and resources to help them live the best quality of life.

The Canadian government will soon be reviewing the use of Piqray (alpelisib) to treat hormone receptor (HR)-positive, human epidermal growth factor receptor 2 (HER2)-negative, PIK3CA-mutated, advanced or metastatic breast cancer after disease progression following treatment with an aromatase inhibitor in combination with a CDK4/6 inhibitor. Rethink Breast Cancer will be making a submission to ensure that patient voices are represented and considered during the review process.

Does this survey apply to you?

We are looking for patients with HR-positive, HER2-negative, PIK3CA-mutated, metastatic breast cancer and patients who have been treated with Piqray to talk about their treatment experience.

YOU DO NOT NEED TO LIVE IN CANADA TO PARTICIPATE.

If you are interested in talking about your experiences, we would like to ask you to complete this survey: https://www.surveymonkey.com/r/piqray

If you would like to speak with us directly about your cancer or treatment experience, you can contact me at survey@rethinkbreastcancer.com.

MJ DeCoteau
Founder + Executive Director
Rethink Breast Cancer

 

For more information, contact:
MJ DeCouteau
survey@rethinkbreastcancer.com


Free Upcoming CancerCare Connect® Education Workshops
Thursday, March 18, 2021 - 10:34am

Event (e.g.conference, teleconference, fundraiser, etc.)

Thursday, March 18, 2021 - 9:30am
Free Upcoming CancerCare Connect® Education Workshops

Free Upcoming CancerCare Connect® Education Workshops

CancerCare workshops take place over the telephone or as a webcast online.

www.cancercare.org/connect

 

CancerCare, in collaboration with the American Cancer Society, offers free workshops on a variety of cancer-related topics. Unless otherwise noted, all workshops take place from 1:30 - 2:30 pm Eastern Time. For details and to register for a workshop, call 800-813-HOPE (4673), or visit the CancerCare website at www.cancercare.org/connect

 

3/18 – Update on Glioblastoma in Adults

3/22 – Progress in the Treatment of Follicular Lymphoma

3/23 – Update on the Treatment of Endometrial Cancer

3/25 – Update on Chronic Lymphocytic Leukemia (CLL), Part I of Living with Chronic Lymphocytic Leukemia (CLL)

3/29 – Advances in the Treatment of Gastric Cancer

3/30 – Adjusting to Your Blood Cancer Treatment Over Time: Challenges and Opportunities of Taking Your Treatment on Schedule

3/31 – Emerging Importance of Telemedicine/Telehealth Appointments in Communicating with Your Health Care Team

4/6 – Update on Small Cell Lung Cancer Treatments

4/7 – Updates on Clinical Trials: How They Work

4/8 – Current Perspectives on the Treatment of Chronic Lymphocytic Leukemia (CLL), Part II of Living with Chronic Lymphocytic Leukemia (CLL)

4/9 – Advances in the Treatment of Renal Cell Cancer

4/14 – Taking Your Pills on Schedule: Why It Is So Important in Managing Cancer

4/15 – Treatment Update on Mantle Cell Lymphoma (MCL), Part I of Living with Mantle Cell Lymphoma

4/22 – Coping with the Stresses of Caregiving When Your Loved One Has Mantle Cell Lymphoma (MCL), Part II of Living with Mantle Cell Lymphoma

4/28 – Treatment Update in Oral and Head and Neck Cancer

5/3 – Progress in the Treatment of Myelodysplastic Syndromes (MDS)

5/5 – Update on the Treatment of Bladder Cancer, Part I of Living with Bladder Cancer

5/6 – Progress in the Treatment of Multiple Myeloma

5/10 – Update on CAR T Cell Therapy

5/12 – Update on Diffuse Large B-Cell Lymphoma (DLBCL)

5/13 – Life with Graft vs. Host Disease (GVHD) Post Allogeneic Stem Cell or Bone Marrow Transplantation: New Treatment Approaches

5/17 – What’s New in Diagnostic Technologies for People Living with Solid Cancer Tumors, Part I of The Role of Diagnostic Technologies in Transforming the Treatment of People Living with Cancer

5/19 – Understanding the Role of Immunotherapy in Treating Cancer, Part I of New Trends in Immunotherapy

5/20 – Progress in the Treatment of Non-Hodgkin Lymphoma (NHL)

5/26 – Managing the Side Effects of Immunotherapy, Part II of New Trends in Immunotherapy

For more information, contact:
Lorena Tan Wang
800-813-HOPE (4673)
connect@cancercare.org
CancerCare Connect® Education Workshops


Metastatic Breast Cancer Survey - Tukysa (tucatinib)
Monday, March 1, 2021 - 11:16am

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Monday, March 1, 2021 - 11:00am

My name of MJ DeCoteau and I am the executive director of Rethink Breast Cancer (www.rethinkbreastcancer.com) – a Canadian patient group dedicated to building community for young women dealing with breast cancer and providing support and resources to help them live the best quality of life.

The Canadian government will soon be reviewing the use of Tukysa (tucatinib) to treat HER2-positive metastatic breast cancer and Rethink Breast Cancer will be making a submission to ensure that patient voices are represented and considered during the review process.

Does this survey apply to you?

We are looking for patients with HER2-positive locally advanced unresectable or metastatic breast cancer and patients who have been treated with Tukysa to talk about their treatment experience.

YOU DO NOT NEED TO LIVE IN CANADA TO PARTICIPATE.

If you are interested in talking about your experiences, we would like to ask you to complete this survey: https://www.surveymonkey.com/r/Tukysa

If you would like to speak with us directly about your cancer or treatment experience, you can contact me at MJ@rethinkbreastcancer.com.


MJ DeCoteau
Founder + Executive Director
Rethink Breast Cancer

 

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
MJ DeCoteau


Social support needs and networks of cancer survivors and caregivers during COVID-19 pandemic
Wednesday, December 2, 2020 - 9:47pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Wednesday, December 2, 2020 - 2:30pm

Cancer survivors and their care partners often turn toward their social networks for help and support, but the COVID-19 pandemic can make this difficult. Access to clinical care and support services may be limited. Social distancing may change the nature and timing of regular social interactions, making it harder to get support from their usual network of family and friends.

Our study team wants to better understand survivors’ and caregivers’ social support needs, networks, and interactions during the pandemic, and how these connect with stress and wellbeing. This will help us develop strategies for improving or maintaining social support and wellbeing during crises, and beyond.

We are enrolling cancer survivors who received at least one cancer diagnosis in the past 5 years and who have a care partner or close support person who is also willing to participate. Both participants must be 18 years old or better. All study activities are completed online or by phone, so no travel or in-person contact is required. Participants will receive up to $150 in gift cards for completing the study.

 

 

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

 

 

For more information, contact:
Kristin  Cloyes
801-548-8840
snasi-study@utah.edu


Physical Activity Study for Colorectal Cancer Survivors

Tuesday, November 17, 2020 - 2:20pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Tuesday, November 17, 2020 - 7:15am
Physical Activity Research Study for Colorectal Cancer Survivors

Have you or a loved one been impacted by colorectal cancer? Are you seeking to become more active during or

after your recovery? We have an opportunity for you!

 

Colorado State University researchers are looking for colorectal cancer survivors to participate in a virtual physical

activity intervention!

 

The study includes 24 online sessions of aerobic and resistance training (2 times a week for 12 weeks) led by a

qualified instructor. There is no cost to you for participating.

 

To see if you are eligible, please contact us!

 

 

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
Mary Hidde
970-491-4653
patplab@colostate.edu
Physical Activity for Treatment and Prevention Laboratory


Breast Reconstruction Satisfaction Survey

Sunday, November 15, 2020 - 10:59pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Sunday, November 15, 2020 - 10:45pm
Christina Kontzias

Breast cancer survivors who have undergone breast reconstruction, we would like to hear about your breast reconstruction experience! Please respond here if you are at least 18 years old and have been diagnosed with breast cancer and had reconstruction following mastectomy.

 

Post-mastectomy breast reconstruction experiences vary from person to person.  The objective of this study is to examine and better understand the experience surrounding post-mastectomy breast reconstruction. By doing so, we hope to shed light on ways in which surgeons can better understand the experiences of diverse patient populations and identify patients who may need more extensive support in order to obtain optimal results following post-mastectomy breast reconstruction. 
 
 
Researchers at Virginia Commonwealth University will use your survey responses for RESEARCH purposes to learn about breast cancer survivors’ views on their breast reconstruction. By responding to this survey, you are giving permission to have your responses used in the research study. If you do not wish to be included in the research, do not respond to this survey. Participating is completely voluntary, and we will NOT collect your name or any other identifying information. Your responses will be kept confidential with researchers at Virginia Commonwealth University
 
   
4) Any questions about this project can be directed to: 

Christina Kontzias

MD Candidate

kontziasc@vcu.edu

Kandace McGuire, MD

Department of Surgery

kandace.mcguire@vcuhealth.org

 

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

 

 

For more information, contact:
Christina  Kontzias


Recruitment for study: Pancreatic cancers impact on family resilience and coping
Friday, October 9, 2020 - 1:43pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Wednesday, October 13, 2021 - 1:30pm

Has the diagnosis of pancreatic cancer impacted your family? If so, you are invited to take part in a research study about how families cope after the diagnosis of panceatic cancer. This research study is being conducted to better understand how individuals diagnosed with pancreatic cancer and their family support person cope together through the diagnosis and treatment. It is hoped that the findings of this research can help mental health and medical proiders in understanding how to better help not only the patients but the important support persons that are also coping along with their loved ones. Please reach out to the number and email provided if you or someone you know is willing to help provide indepth stories of your personal experiecne with pancreatic cancer. 

 

 

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

 

For more information, contact:
Shah Hasan
812-646-6966
Shah.hasan@slu.edu


IMPaCCt Study
Thursday, May 7, 2020 - 6:40am

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Thursday, May 7, 2020 - 6:30am
https://www.surveymonkey.co.uk/r/IMPACCTsurvey

Researchers at Queen’s University Belfast and the University of Aberdeen, invite you to take part in an online research study investigating the impact of the COVID-19 (coronavirus) pandemic on caregivers and patients with cancer, pre-cancerous conditions and rare diseases.

PLEASE have your experiences counted by completing this survey: https://www.surveymonkey.co.uk/r/IMPACCTsurvey  

For more information, contact:
Lesley Anderson
0044 7557245916
l.anderson@qub.ac.uk
IMPaCCT Study


The Association of Stigma and Self-Disclosure with Social Support, Mental Health, and Posttraumatic Growth Among Cancer Patients
Monday, September 17, 2018 - 6:15pm

Research study, clinical trial, focus group,etc (Requires IRB review and certification. See here for guidelines.)

Monday, September 17, 2018 - 6:00pm
Lauren Loughlin

The Association of Stigma and Self-Disclosure with Social Support, Mental Health, and Posttraumatic Growth Among Cancer Patients

This study examines experiences of living with cancer. You are being asked to complete a series of questionnaires that assess your experiences of stigma, self-disclosure, social support seeking and utilization, and mental health. In order to better understand how people experience cancer, we are interested in hearing the voices of cancer survivors. You will qualify for the study if you are 18 years old or older, have been diagnosed with any type of cancer six to eighteen months prior to participation in the study, and are currently post-treatment. The entire study will take about 45 minutes to complete. Your participation is completely voluntary and if you are uncomfortable at any time, you are welcome to stop answering the questions. Upon completing the survey, you will have the opportunity to voluntarily provide your email address in order to enter a drawing to win a $100 Amazon gift card.

Website: http://tinyurl.com/YourCancerStudy

Thank you for considering your participation. The study is confidential.
Please feel free to send this study to others who may qualify.
We appreciate your time.

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study. We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study. Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

For more information, contact:
Lauren Loughlin
8457051619
laurenloughlin@mail.adelphi.edu

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

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