Announcements

If you’ve taken on caregiving for a loved one in recent years and face the challenges of balancing the healthcare needs of your loved one with your own needs, we want to hear your views.

The role of the caregiver, particularly in medical decision-making, is a role taken on urgently, without warning – and often with little expertise.  Yet the needs, challenges and issues that we face as we voluntarily care for loved ones with chronic and/or debilitating illnesses or conditions can be overwhelming and time-consuming.

Our hope is that your insights will help lead to better support for caregivers in this important role. More than 70 organizations are partnering on this survey because of their keen interest in helping you, the caregiver, as you navigate medical and care decisions that affect you and your loved one.

Findings from the survey will be published, shared widely through our partners’ networks and posted on the Rx4good website. If you have questions about the survey, please contact us at info@rx4good.com.

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

My name of MJ DeCoteau and I am the executive director of Rethink Breast Cancer (www.rethinkbreastcancer.com) – a Canadian patient group dedicated to building community for young women dealing with breast cancer and providing support and resources to help them live the best quality of life.


We are looking for woman with HER2-positive early breast cancer and women who have been treated with Herceptin-Perjeta (pertuzumab-trastuzumab) combination therapy to talk about their treatment experience. We welcome feedback from women in the United States and other countries.


The Canadian government will soon be reviewing the use of Herceptin-Perjeta to treat HER2-positive early breast cancer that is node-positive or hormone receptor-negative, and Rethink Breast Cancer will be making a submission to ensure that patient voices are represented and considered during the review process.


If you are interested in talking about your experiences, we would like to ask you to complete this survey: https://www.surveymonkey.com/r/R76HZXY


If you would like to speak with us directly about your cancer or treatment experience, you can contact Shawna Rich-Ginsberg at shawna@rethinkbreastcancer.com.


We would also like to invite your family or friends to talk about their experience caring for a patient being treated with ribociclib: https://www.surveymonkey.com/r/RD79RF3


MJ DeCoteau

Founder + Executive Director

Rethink Breast Cancer

The above announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

Hello,

My name is Basem Gayed and I am a third year dental student at the University of Connecticut School of Dental Medicine. I am working on customer discovery efforts related to a proposed new product for mouth ulcers as a result of cancer treatment. This project is being led by Dr. Rajesh Lalla and is part of the Accelerate UConn program which seeks to advance the development of new products.

We are interested in collecting information on the possible need for a new medication to reduce pain due to oral mucositis (mouth sores due to cancer treatment). If you had mouth sores due to chemotherapy or radiation therapy, we would greatly appreciate it if you can take an anonymous survey at the link below. Your participation is voluntary. If you choose to participate, please complete the survey. While complete surveys will provide better data, you may skip questions that you do not feel comfortable answering. Your response to these questions should take between 2-5 minutes to complete. Completion of this survey signifies your consent to participate in the study. The information obtained may help in the development of a new treatment option for this problem. Your survey responses will be recorded in a de-identified manner i.e. no one will be able to connect your responses to your identity from the survey database. Therefore, your confidentiality will be protected.

Thank you for your time and consideration. If you have any questions, please send me an email at gayed@uchc.edu.

Sincerely,

Basem Gayed

Link to survey: https://goo.gl/forms/WbFGcU30BKd4gdgj1

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

The Psycho-Oncology Research Group of NUI Galway (Ireland) are carrying out a study that explores men's experience of prostate cancer. Completing this 10-minute anonymous survey will help us to better understand the changes men might experience following the difficult time of prostate cancer diagnosis and treatment. A better understanding of this experience will enable us to help future patients manage the impact of the illness. 

 If you have experienced prostate cancer, please consider completing this short survey. The questionnaire is completed entirely online in one session and gathers information about mens personal experience of prostate cancer. Further information about the study and contact information for the researchers can be found at this link:

https://docs.google.com/forms/d/e/1FAIpQLSciHb228lKpQEMlUzZT7LRHxOpSDOZImXjrcuhgR92o5uv0kQ/viewform?c=0&w=1

Many thanks for your contribution!

Jean Skelton

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.