Announcements

Hello,

My name is Basem Gayed and I am a third year dental student at the University of Connecticut School of Dental Medicine. I am working on customer discovery efforts related to a proposed new product for mouth ulcers as a result of cancer treatment. This project is being led by Dr. Rajesh Lalla and is part of the Accelerate UConn program which seeks to advance the development of new products.

We are interested in collecting information on the possible need for a new medication to reduce pain due to oral mucositis (mouth sores due to cancer treatment). If you had mouth sores due to chemotherapy or radiation therapy, we would greatly appreciate it if you can take an anonymous survey at the link below. Your participation is voluntary. If you choose to participate, please complete the survey. While complete surveys will provide better data, you may skip questions that you do not feel comfortable answering. Your response to these questions should take between 2-5 minutes to complete. Completion of this survey signifies your consent to participate in the study. The information obtained may help in the development of a new treatment option for this problem. Your survey responses will be recorded in a de-identified manner i.e. no one will be able to connect your responses to your identity from the survey database. Therefore, your confidentiality will be protected.

Thank you for your time and consideration. If you have any questions, please send me an email at gayed@uchc.edu.

Sincerely,

Basem Gayed

Link to survey: https://goo.gl/forms/WbFGcU30BKd4gdgj1

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

Purpose: The American Cancer Society is testing a modified version of the Cancer Survivors Network (CSN) and is inviting you to try it. This research is being done in collaboration with Carnegie Mellon University and is sponsored by the National Institutes of Health.

Procedure: Your participation is voluntary.  If you agree, you will use a modified version of CSN to participate in the community.  You will have access to all CSN content, and any posts or comments you make will be added to the CSN community, just as they are now. What is new is that you will see recommendations for content and other members that might interest you. These recommendations are based on what you have read on CSN. As you read more discussion threads, the recommended content and members will be updated. You will occasionally receive a survey to get your feedback on the new interface. We will also ask about the relevance and value of the recommended content.   These surveys will take less than three minutes to complete, and you will receive them at most once per week. We will also invite a small number of members to give more extensive feedback through a phone interview.

To participate in this trial, click this link: Yes, I’ll use the new CSN interface.  You can always opt-out later by clicking ‘the use the traditional CSN design’ button on your CSN user profile.

Principal investigators:

Robert Kraut, PhD

Herbert A. Simon Professor of Human-Computer Interaction

Carnegie Mellon University

Pittsburgh PA 15213

412 268-7694

robert.kraut@cmu.edu

Tenbroeck Smith

Director of Patient Reported Outcomes Research, Behavioral Research Center

American Cancer Society

Atlanta GA

tenbroeck.smith@cancer.org

Our research team at Tulane University is conducting an online survey of individuals with cancer histories. The survey takes about 10 minutes and asks about people’s beliefs about their health and healthcare, feelings and behaviors, and demographics. All responses are anonymous and you will not be re-contacted after completing the survey. We hope that the study will build knowledge that can help individuals with cancer to be more satisfied with their care.

If you are interested in participating in the survey, please follow the link below to the study's homepage:

http://tulanestudy.com/

We would be happy to answer any questions you may have (Principal Investigator: Laura Perry, BS, lperry5@tulane.edu,(504) 865-5331; Faculty Mentor: Michael Hoerger, PhD, MSCR, mhoerger@tulane.edu, (504) 314-7545).

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.

What was your experience with the financial costs of cancer treatment?

By better understanding your experiences we may be able to help others navigate the financial terrain of cancer. Researchers at University of Louisville Kent School of Social Work are conducting a study about the impact of cancer treatment on the financial well-being and quality of life of cancer survivors. Participation involves completing a 20-30 minute web-based questionnaire. To be eligible for the study, you must be 18 years or older, have been diagnosed with breast cancer or blood (Leukemia, Lymphoma, or Myeloma) cancer within the past five years.

This study is supported through a Doctoral Training Grant from the American Cancer Society and has been approved through the University of Louisville IRB: 17.0187.

We need your help! How did you manage the costs of your cancer treatment?

If interested in participating follow this link to the survey.

https://qmsweb.louisville.edu/blue/a.aspx?l=3325_1_AAAAAAAAaB8

The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study. We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study. Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.