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Anal Cancer

Posts: 30
Joined: Dec 2016

"Coning down"?


I still have 6 sessions of radiation left, but my doctor mentioned to me today that after tomorrow, they will be "coning down" the radiation area. Has anyone been through this? Know exactly what to expect? (I did ask for an explanation, and the doc said it meant he was focusing the radiation on the just the tumor area, not the groin anymore.) I am asking because I'm hoping that it means I'll begin to feel some relief in the groin area since it will not be getting hit with the beams anymore? Thanks for any/all information you have to give!!



Posts: 2
Joined: Jan 2017

Vaginal stenosis


This seems to be a subject without a lot of discussion! I've seen only one woman who mentioned surgery for stenosis (I've messaged her...) but I wonder if anyone else has, and where. 

I am a year and 3 months out of treatment and still unable to "graduate" past the first (of 5) dilators. 

Is there anyone who had gotten help from their doctor regarding this? I'm willing to travel for hope! :) 

Cheers, Judy 

Helen321's picture
Posts: 1317
Joined: May 2012

Hard to find info on where lumps surface after APR

Hello all, jumping boards hoping someone on this one might know the answer.  I had an APR 4 years ago and have been cancer free since.  I went for a GYN checkup and told my doctor I felt a lump.  She said she felt nothing and it was just confusing because my vagina is now so distorted from the surgery.  I moved on. Went to another appt, no one felt the lump.  Last GYN appt, I told them again I'm still feeling this lump.  No one could feel it, scans were clean.  Now I am seriously feeling this lump, there are no if ands or buts about it, the lump is bigger.  They'll feel it this time.

Posts: 30
Joined: Dec 2016

Need some encouragement, please

As pathetic as it may sound, I just sat and cried for 20 minutes in my bath. I have 9 more sessions of radiation to go, and while I'm grateful that my chemo rounds are finished, I can't seem to get a grip on the next almost 2 weeks of radiation. The pain I'm having is pretty intense, and the "sunburn" in my groin area is rather bothersome. I have been using the burn cream (silverdene something) and taking warm baths with sitz soaks.  I feel weak and like I can't possibly get through NINE more sessions. Any words of wisdom or encouragement would be appreciated.

Posts: 5
Joined: Jul 2016

Immunotherapy squamous cell

Hey there

i have previsouly written a few months back, my mum is fighting anal cancer squamous cell carcinoma stage 4- tumor in rectal sphincter muscel and in near by lymph nodes, had the big surgery and hysterectomy, all nodes removed, then chemo and had a scan 6 months ago was clear it hadnt travelled at that point

yesterday her scan now shows its travelled( metasisized) to the lungs and attacked some of  the lymph nodes in groin.

Posts: 30
Joined: Dec 2016

Mineral Oil

Hi everyone!

I just wanted to pop on here and let those of you seeking relief for pain during BMs know that my doctor recommended consuming a tablespoon of mineral oil 1-2 times a day. I have had surprisingly good results from this over the past couple of days. I am not a doctor, so I'm not giving this out as medical advice, but hopeful that it might help a few others the way it seems to be helping me. I have 12 more radiation sessions to go and I think this may be a life-saver for me!  Good luck, and best wishes to all!



Posts: 1159
Joined: Oct 2011

Sorry for my absence

Hi everyone…..I must first apologize for my lack of posting lately. I have tried to read occasionally as I think about you all and how we inspire and encourage each other and how much more difficult this would all be without this forum!


don09's picture
Posts: 79
Joined: Dec 2009


Hi everyone,  first off I want to thank all of you for the responses I have recieved to each post I have written, you all have given me much encouragement, I hope I am able to give back all that you have given to me with the same positive support. I'm posting today because I am feeling pretty depressed, I think mainly over the whole cancer thing in general, I feel as though I have spent the last 7 years of my life addressing this disease, between treating lung cancer scans, and being anxious over those results. Now this.

Posts: 10
Joined: Oct 2011

metastasized sqamous cell anal cancer

In 2011 I was diagnosed with stage two anal cancer with no lymph node involvement and no spread from the anal area.  I underwent 33 radiations and chemo with 5Fu and mitomycin.  Five years later (late 2016) I was diagnosed with squamous cell anal cancer metastasizes to the lungs and peritoneum. Because I have chronic after effects from the radiation, the doctors have put me on Opdivo (experimental for this cancer).

Posts: 30
Joined: Dec 2016

2nd Picc Line and 33 total radiation sessions

Hi all!

I hope this post finds you well! I am having a Picc line placed tomorrow to begin my second (and hopefully final) round of chemo. Despite having already been through one Picc line placement, I am finding my anxiety to be off the charts. WHY?! 


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