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Anal Cancer

don09's picture
don09
Posts: 73
Joined: Dec 2009

Hair question

I have been off chemo since the 11th of November, while on it I had no side effects what so ever, however after being disconnected I developed such bad mouth sores that my diet consisted of liquids.  They finally went away 2 days before Thanksgiving which made me really happy and I was able to not miss out on all the great food.  Now................My hair is shedding like crazy!  I did read that the 5fu does cause thinning but I am curious if any of you lost all your hair?  Also my white blood count is not quite back to the normal range yet, its a point below where it should be, and I am w

Lorikat's picture
Lorikat
Posts: 656
Joined: Jul 2011

Five years NED

Haven't been here for awhile..  FIVE years out and still NED....  so what's with my not wanting to do ANYTHING?  I should be incredibly happy and up for whatever!  Anyone else????

HapB
Posts: 4
Joined: Aug 2016

Thanksgiving

Hello fellow surviviors,

It was the night before Thanksgivng, six years ago, that I was diagnosed with Anal Cancer. What a long and painful journey it has been. During my treatment for anal cancer, they located another cancer, unrelated. When I finsihed treatment for anal cancer, I was treated for the second cancer. None of it was easy. Of all the things I am grateful for, the wonderful doctors and nurses, and my loving family, are at the top of my list. . They took great care of me and saved my life.

7890
Posts: 2
Joined: Nov 2016

Squamous cell rental tumor --- anyone?

clouse
Posts: 9
Joined: Oct 2016

Lost trust in VA

You can read my story under (misdiagnosed by VA). Due to the misdiagnosis (almost costing my life), I have lost all trust in the VA. The VA being my only health care (cancer being treated outside VA, at there cost under Tri West), I have only seen my primary once. I have been thru 3 primaries in 3 yes because they keep leaving. I feel my health care may be suffering because of this and don't know how to get past it. The VA health care system sucks! I know I am not the only unhappy vet where this is concerned. Any suggestions would be appreciated.

clouse
Posts: 9
Joined: Oct 2016

Mucus discharge

Mucus discharge started pretty early after starting radiation. Over half way. Passed a clot yesterday and it felt like giving birth. Having surgery after treatments. Does it get better?

Kmessier
Posts: 17
Joined: Nov 2016

Chemo therapy and diarrhea

I just finished my first round of chemo /radiation in having a severe time with diarrhea and with the radiation burns the diarrhea I can't sit period even using silvadine I can't tolerate aquapjir. I'm also taking lots of immodium but doesn't seem to help!!! Sitz baths work for a very short time but when I sit it stand I also start vomiting again !! I'm taking Zophran for the nausea it help but I can't take anything else for nausea I'm allergic!!

don09's picture
don09
Posts: 73
Joined: Dec 2009

mouth sores

Hi everyone, just wanted to thank those of you who responded to my previous post, you all have a lot of encouraging and hopeful words of wisdom which is valueable to me right now, so here I am again with another question, and some good news.  I finished my chemo yesterday and am officially disconnected, yeah freedom!

don09's picture
don09
Posts: 73
Joined: Dec 2009

WEIRD

Hi everyone, I am on my third day of chemo (F5U pump) radiation daily.  I have been given by my doctors so much literature about the chemo end of things, things to watch for, things to expect side effects and tips on how to manage them.  I must admit leading up to my start date I had much anxiety and I thought it would be the most grusome chemotherapy anyone would have to take.  To my surprise, and not to complain I have had no side effects at all, and I am extremely shocked.

Wenjaim10
Posts: 5
Joined: Oct 2016

Hip/thigh pain

I am in week 2 of radiation and my hips and thighs are killing me, anyone else have this problem? I am taking oxygenation ER 10mg every 12 hours and oxycodone 5mg for breakthrough with no relief. Any suggestions would be greatly appreciated.

Wendi

 

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