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Long-Term Effects of Treatment

nicole109
Posts: 1
Joined: Feb 2017

Has anyone had hipocampal sparing whole brain radiation?

Hi everyone,
I have HER2 positive breast cancer with many brain metastases.  I've had Gamma Knife treatment in the past but new lesions keep developing so now I have been offered hippocampal sparing whole brain radiation as my only treatment option.  From reading all the posts about whole brain radiation, I am very reluctant to go ahead with this procedure, hippocampal sparing or not.    I currently have no symptoms but I will soon be unwell according to my oncologist.
Has anyone had this treatment and what side effects, short-term and long term, did they experience?

CSN_Anne
Posts: 40
Joined: Sep 2016

Private Message Spam

Hello everyone,

Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1 please do respond to it or share any of your information.

Jegac1 has now been blocked from the CSN site.

Again, I am sorry for the inconvenience. Please continue to report any email spammers or questionable behavior you see.

Best regards,

Cassie9
Posts: 1
Joined: Feb 2017

Removal of port

In Aug of 2016 my onc told me chemo would no longer work and gave me 7 mos to live. They have wanted to perform a port flush every8 weeks. I saw no need for that and now they want me to go through surgery for removal of the port. I was diagnosed with stage 4 colon cancer which matastized to liver and lung. Any thoughts?

Lucyred18
Posts: 1
Joined: Dec 2016

Getting sick a lot

I have completed chemotherapy and radiation almost 2 years ago.

Lately I have been getting sick left and right with all kinds of minor illnesses, such as cold , ear infection etc.. it seems to be a constant thing.  I do admit I do have a toddler that just started preschool .  Has anyone else experience this?  It just seems once I feel better I get sick again.  Has my immune system been compromised from chemo?

Looking forward to hearing feedback

thanks

majaved
Posts: 3
Joined: Dec 2016

Dry mouth

i had total thyroidectomy last year and this year i am going through Radioterapy.

can anyone tell me how long will it take after Radiotherapy things can be normal like dry throat etc.

i meant to have 30 sessions of Radiotherapy but due to early signs of sore throat my doctor thinks i am not able to cope with 30 sessions he did only 25 sessions of Radiotherapy. 

But now my sore Throat and dry mouth is killing me. i really appreciate if anyone can guide me how can get rid of this dry and sore throat.

Windboater-a
Posts: 1
Joined: Dec 2016

Incontinence temporary cure

Had an interesting occurence the other day. I've been incontinent since prostate treatment over a year ago. I went in for a cystascope examination and was totally continent when I came out. This continued for 9 hours and I could urinate normally. Has anyone experienced this before?

 

The exam was not successful as my bladder neck had restrictured to the point were they were unable to get the scope beyond the bladder neck, though they tried repeatedly

lacorota
Posts: 2
Joined: Aug 2016

Maintenance Tx for indolent, NHL

I completed induction Tx for indolent, NHL 3B, in December, 2015. My last scan, a month ago, was clean. The suggested maintenance Tx following induction was continuing with Rituxan only, 1 X every 2 months. But I had to quit, after 2 Tx, because the fatigue, mostly, was life-changing, epic-class.

Teashea's picture
Teashea
Posts: 89
Joined: Feb 2016

Who decides???

Last week I was having a bad day. I found this site and thought it would be good for me to have some people to interact with. People that are going through the same things I am going through. The same day My dad called me I told him I had considered assisted suicide, he hung up and I have not heard back from him. Then I came back on here to see if I had any response to my post. It appears it was flagged so I want to say thank you who ever decided my post was not worthy here.

michael26
Posts: 1
Joined: Mar 2012

Scar tissue from Neuroblastoma

Innocent

 

TartanToes's picture
TartanToes
Posts: 5
Joined: Feb 2016

Raditation Enteritis - So now I have a REALLY grumpy gut

Hi Everyone -

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