CSN Login
Members Online: 5

You are here

Multiple Myeloma

Posts: 6
Joined: Jun 2016

Experience with & side effects of Revlimid?

Can anyone share with me their personal experience using Revlimid for Follicular Non Hodgkin Lymphoma.  I’m especially interested in the side effects. This is my third relapse in six years and my doctor says to only expect a 30-40% success rate and the side effects as he describes them are nasty. Going back to chemo and radiation is not an option. I am self employed with two businesses and my ability to get out and about and stay active is paramount to my happiness and well being. Thank you for sharing any personal experiences you have had using Revlimid.

Posts: 1
Joined: Jun 2016

Cemo does not work!!!!!

My Husband has Muliple Myeloma, he got it from Agent Orange in Viet Nam. I joined the dicusstion group for one reason and that reason is  to tell Cemo and Radiation do not work. There have been cures for Cancer since the 1920s. My husband was on that posison for 4 years did he get any better NO. This last year his cancer doctor told us if he did not go back on cemo he would be dead in 2 months. I asked how she slept at night putting all the these poor pepole on a cocktail of crap that they know does not work and in fact it causes cancer.

North Carolina Girl
Posts: 2
Joined: Mar 2016

90 years old w/ Multi Myeloma

My mom found out she has Multi Myeloma at 90..in Feb 2016.. She has opted out of treatment.. She is very tired.. No other symptoms As of now...Blood work first taken was 3.5.. Two weeks later 3.8... She is under Hoe now.. Doctor gave her up to two months to live..She was very sick with bladder infection now that that is cleared up she is doing a lot better.. Except for being tired.. They are going to do another blood test to see if the numbers have changed any..

Posts: 2
Joined: Dec 2015

Dendritic cell vaccination

Have just watched most of Ty Bollinger's 'The Truth About Cancer' and learned about dendritic cell therapy.  Has anyone done this?  How are you now?  I don't know if this is good for MM or not.   Your own cells are used to make a vaccine that wakes up the T-cells to destroy the cancer cells or other abnormal cells.  Normal cells are not destroyed so the immune system is not compromised.  Would love to hear about more therapies as well.

CSN_Rowan's picture
Posts: 88
Joined: Nov 2013

Planned Outage on 10/9

There will be a planned CSN outage on 10/9/15 from 5am-8am EST while the site undergoes some maintenance. We apologize for the inconvenience.


CSN Support Team

Posts: 1
Joined: Aug 2015

Fathers who could care less about your condition!

Sadly,my twin brother was recently diagnosed with multiple myeloma - a blood cancer & neither my father nor stepfather could seem to care less!!!:(.

Unfortunately,my mother passed away from lung cancer 2 1/2 years ago.It's been about 2 years since I saw my stepfather & about 2 1/2 years or more since I saw my father & NEVER hear from either.Neither of them invites us to visit either...though both live a long distance away,which doesn't help!

Lately,I have been going to a cancer caregivers support group which helps & is great.:)

Posts: 1
Joined: May 2015

Happy Mothers Day Quotes

Happy Mothers Day Quotes http://www.mothersdayquotesz.com/

Posts: 2
Joined: May 2015

Is anyone dealing with diverticulitis with your Myeloma chemo?

I am concerned how/ whether to go forward with SCT and get the high dose Melphalan or cytoxin because of the effect it will have on my intestines. With a history of severe diverticulosis and the constipation/ diarrhea battle already going on with my VRD meds I can see there will be even further bowel irritation and even possible bowel perforation with the Dex and the neutropenic state.  

How has anyone else dealth with this? 

HillBillyNana's picture
Posts: 107
Joined: Jun 2009

Friend recently diagnosed with Multiple Myeloma - advice welcome

I have a friend who was diagnosed in June 2014 with Multiple Myeloma. He is working on getting treatment. So far, he has been taking chemo pills (revlamide). Now he is going to Little Rock for further treatment, recommended by the PCP in Fort Smith.  In Little Rock he was told about stem cell treatment. Has anyone here received such a treatment? What is involved? How is it carried out?

CSN Support Team
Posts: 47
Joined: Sep 2014

Private Message Spam

Hello everyone,

Thank you to those who've alerted us to the spamming from earlier today, and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this. If you received a message, please do not respond or share any of your information. 

The user, drjulius, has been blocked.


Going forward, please continue to report any spammers or questionable behavior to us. 





CSN Support Team


Subscribe to RSS - Multiple Myeloma