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Multiple Myeloma

Posts: 21
Joined: Aug 2016

Gives up before necessary

My husband was diagnosed two years ago with multiple myeloma after his right hip and pelvis collapsed.  He was in severe pain and underwent radiation for about three months. During that time I did everything for him.  When the radiation was done and his tumor gone and he was no longer in pain or on pain meds he was left with a limp needing a cane.  However he spends most days in bed all day. He has over the last year become mean, sarcastic and self centered. He refuses to use the cane most times and between that and his lack of grooming lately has made him an embaressment.

Posts: 150
Joined: Jul 2011

Struggling --- would appreciate your help

Hi there - I am new to this discussion board but not new to the site. I was previously on here in support of my mom who was diagnosed with colon cancer over 5 years ago. She is now in remission thank GOD; however, my father was diagnosed last month with stage 2 multiple myeloma. He has the Bence Jones Protein kind ... I am still not up to speed on all the MM terminology and what anything really means. Just here to get my feet wet and draw from your experiences to help my dad.

hopeful in tally
Posts: 52
Joined: Apr 2010


I posted a question early in October and have been disappointed to not receive any responses.  I am a breast cancer survivor and I got so much support from this website when I was going through treatment in 2010.  I returned when my brother was diagnosed with Multiple Myeloma and had a stem cell transplant to get some advice that I could share with him.  So far, I have not seen any posts.  I would appreciate any signs of support or advice for my brother who is now 50 days out from his Birthday (of the transplant).  He is tired and suffers greatly from neuropothy in his feet.

Mary from NJ's picture
Mary from NJ
Posts: 50
Joined: Apr 2016

Free Educational Conference in Phila, PA 11/18/2016

I wanted to share the following information with all who may be in the Philadelphia, PA area and interested in attending in person (or via livestream for those not in the area or not able to attend in person):

OPEN TO THE PUBLIC:  FREE Educational Conference  - Focus on Leukemia, Lymphoma, Myeloma, and Bone Marrow/Stem Cell Transplantation  - Friday, November 18, 2016:  7:30 am - 2:15 pm at the Hilton Philadelphia City Avenue  (4200 City Ave, Phila, PA 19131)

Posts: 6
Joined: Jun 2016

Experience with & side effects of Revlimid?

Can anyone share with me their personal experience using Revlimid for Follicular Non Hodgkin Lymphoma.  I’m especially interested in the side effects. This is my third relapse in six years and my doctor says to only expect a 30-40% success rate and the side effects as he describes them are nasty. Going back to chemo and radiation is not an option. I am self employed with two businesses and my ability to get out and about and stay active is paramount to my happiness and well being. Thank you for sharing any personal experiences you have had using Revlimid.

Posts: 1
Joined: Jun 2016

Cemo does not work!!!!!

My Husband has Muliple Myeloma, he got it from Agent Orange in Viet Nam. I joined the dicusstion group for one reason and that reason is  to tell Cemo and Radiation do not work. There have been cures for Cancer since the 1920s. My husband was on that posison for 4 years did he get any better NO. This last year his cancer doctor told us if he did not go back on cemo he would be dead in 2 months. I asked how she slept at night putting all the these poor pepole on a cocktail of crap that they know does not work and in fact it causes cancer.

North Carolina Girl
Posts: 2
Joined: Mar 2016

90 years old w/ Multi Myeloma

My mom found out she has Multi Myeloma at 90..in Feb 2016.. She has opted out of treatment.. She is very tired.. No other symptoms As of now...Blood work first taken was 3.5.. Two weeks later 3.8... She is under Hospice now.. Doctor gave her up to two months to live..She was very sick with bladder infection now that that is cleared up she is doing a lot better.. Except for being tired.. They are going to do another blood test to see if the numbers have changed any..

Posts: 2
Joined: Dec 2015

Dendritic cell vaccination

Have just watched most of Ty Bollinger's 'The Truth About Cancer' and learned about dendritic cell therapy.  Has anyone done this?  How are you now?  I don't know if this is good for MM or not.   Your own cells are used to make a vaccine that wakes up the T-cells to destroy the cancer cells or other abnormal cells.  Normal cells are not destroyed so the immune system is not compromised.  Would love to hear about more therapies as well.

CSN_Rowan's picture
Posts: 88
Joined: Nov 2013

Planned Outage on 10/9

There will be a planned CSN outage on 10/9/15 from 5am-8am EST while the site undergoes some maintenance. We apologize for the inconvenience.


CSN Support Team

Posts: 1
Joined: Aug 2015

Fathers who could care less about your condition!

Sadly,my twin brother was recently diagnosed with multiple myeloma - a blood cancer & neither my father nor stepfather could seem to care less!!!:(.

Unfortunately,my mother passed away from lung cancer 2 1/2 years ago.It's been about 2 years since I saw my stepfather & about 2 1/2 years or more since I saw my father & NEVER hear from either.Neither of them invites us to visit either...though both live a long distance away,which doesn't help!

Lately,I have been going to a cancer caregivers support group which helps & is great.:)


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