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Multiple Myeloma

Posts: 1
Joined: Mar 2017

Stem Cell transplant or Chemo forever




My mother is 69, just diagnosed with MM 8\2016. Its been rough on her.  After her 2nd treatment she ended up in the hospital. Her Marrow was 90% cancer protein. They had to do 2 rounds of plasma Pheresis. When she was released she could no longer walk without assistance….


Posts: 1
Joined: Mar 2017

Found out sons father has stage 3 what do I do?!?

On Wednesday I found out my ten year old sons father has Stage 3 multiple myeloma. I am really lost here and don't even know what to write right now. We don't even have any answers really. where can I go for correct information or just a place to ask questions? 

Posts: 3
Joined: Feb 2017

Using A Rabbit Virus To Treat Multiple Myeloma

Treating multiple myeloma (MM) with myxoma virus (MYXV) eliminated a majority of malignant cells in preclinical studies, report investigators. Furthermore, introduction of MYXV had no impact on the bone marrow compartment and elicited a strong immune response that eradicated disease in some animals. (source mmdevelopment.org)

Posts: 3
Joined: Feb 2017

New Treatments To Extend Life For Multiple Myeloma Patients

Multiple myeloma patients are now living more than three times as long thanks to new, more effective treatments, and some of the most exciting things are the development of new drugs.  (source, details - mmdevelopments.org)


anmar42's picture
Posts: 1
Joined: Feb 2017


CherieLW's picture
Posts: 472
Joined: May 2013

Please need your help

I am heartbroken.  My father went through nasal cancer in 2013. I became a member of this site to get advice, tips, ideas on how to help my father through all of this. 

My dad recently was found to have a tumor on his forehead that went through to the other side of skull (no brain or organ involvement). After the biopsy, they did a pet scan and diagnosed my dad with multiple myeloma. 

Posts: 40
Joined: Sep 2016

Private Message Spam

Hello everyone,

Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1 please do respond to it or share any of your information.

Jegac1 has now been blocked from the CSN site.

Again, I am sorry for the inconvenience. Please continue to report any email spammers or questionable behavior you see.

Best regards,

Posts: 3
Joined: Feb 2017

Selinexor for Relapsed/Refractory Multiple Myeloma

recent news item - Patients with relapsed/refractory multiple myeloma (RRMM) for whom prior treatment with lenalidomide, pomalidomide, bortezomib, and carfilzomib fail have few treatment options. Selinexor (KPT-330) is a selective inhibitor of nuclear export (SINE) under development for the treatment of RRMM and other advanced hematologic malignancies. Selinexor induces cell death through apoptosis and autophagy. This dual mechanism is both novel and potentially synergistic with mechanisms already acted upon by drugs used in the treatment of patients with RRMM.

Sandy Nevels
Posts: 1
Joined: Dec 2016

Has anyone tried the drug Zelboraf

Just wondering if anyone has used or on the Chemo Zelboraf?

Posts: 23
Joined: Aug 2016

Gives up before necessary

My husband was diagnosed two years ago with multiple myeloma after his right hip and pelvis collapsed.  He was in severe pain and underwent radiation for about three months. During that time I did everything for him.  When the radiation was done and his tumor gone and he was no longer in pain or on pain meds he was left with a limp needing a cane.  However he spends most days in bed all day. He has over the last year become mean, sarcastic and self centered. He refuses to use the cane most times and between that and his lack of grooming lately has made him an embaressment.


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