CSN Login
Members Online: 16

You are here

Multiple Myeloma

North Carolina Girl
Posts: 1
Joined: Mar 2016

90 years old w/ Multi Myeloma

My mom found out she has Multi Myeloma at 90..in Feb 2016.. She has opted out of treatment.. She is very tired.. No other symptoms As of now...Blood work first taken was 3.5.. Two weeks later 3.8... She is under Hospice now.. Doctor gave her up to two months to live..She was very sick with bladder infection now that that is cleared up she is doing a lot better.. Except for being tired.. They are going to do another blood test to see if the numbers have changed any..

Posts: 2
Joined: Dec 2015

Dendritic cell vaccination

Have just watched most of Ty Bollinger's 'The Truth About Cancer' and learned about dendritic cell therapy.  Has anyone done this?  How are you now?  I don't know if this is good for MM or not.   Your own cells are used to make a vaccine that wakes up the T-cells to destroy the cancer cells or other abnormal cells.  Normal cells are not destroyed so the immune system is not compromised.  Would love to hear about more therapies as well.

CSN_Rowan's picture
Posts: 87
Joined: Nov 2013

Planned Outage on 10/9

There will be a planned CSN outage on 10/9/15 from 5am-8am EST while the site undergoes some maintenance. We apologize for the inconvenience.


CSN Support Team

Posts: 1
Joined: Aug 2015

Fathers who could care less about your condition!

Sadly,my twin brother was recently diagnosed with multiple myeloma - a blood cancer & neither my father nor stepfather could seem to care less!!!:(.

Unfortunately,my mother passed away from lung cancer 2 1/2 years ago.It's been about 2 years since I saw my stepfather & about 2 1/2 years or more since I saw my father & NEVER hear from either.Neither of them invites us to visit either...though both live a long distance away,which doesn't help!

Lately,I have been going to a cancer caregivers support group which helps & is great.:)

Posts: 1
Joined: May 2015

Happy Mothers Day Quotes

Happy Mothers Day Quotes http://www.mothersdayquotesz.com/

Posts: 2
Joined: May 2015

Is anyone dealing with diverticulitis with your Myeloma chemo?

I am concerned how/ whether to go forward with SCT and get the high dose Melphalan or cytoxin because of the effect it will have on my intestines. With a history of severe diverticulosis and the constipation/ diarrhea battle already going on with my VRD meds I can see there will be even further bowel irritation and even possible bowel perforation with the Dex and the neutropenic state.  

How has anyone else dealth with this? 

HillBillyNana's picture
Posts: 107
Joined: Jun 2009

Friend recently diagnosed with Multiple Myeloma - advice welcome

I have a friend who was diagnosed in June 2014 with Multiple Myeloma. He is working on getting treatment. So far, he has been taking chemo pills (revlamide). Now he is going to Little Rock for further treatment, recommended by the PCP in Fort Smith.  In Little Rock he was told about stem cell treatment. Has anyone here received such a treatment? What is involved? How is it carried out?

CSN Support Team
Posts: 45
Joined: Sep 2014

Private Message Spam

Hello everyone,

Thank you to those who've alerted us to the spamming from earlier today, and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this. If you received a message, please do not respond or share any of your information. 

The user, drjulius, has been blocked.


Going forward, please continue to report any spammers or questionable behavior to us. 





CSN Support Team

Posts: 7
Joined: Jun 2014

New Recommendations For Use Of MRI In Diagnosing Myeloma

Recommendations for the use of magnetic resonance imaging (MRI) in multiple myeloma are presented in a consensus statement published online Jan. 20, 2015 in the Journal of Clinical Oncology. Meletios A. Dimopoulos, MD, from the National and Kapodistrian University of Athens School of Medicine in Greece, and colleagues used data published through March 2014 to develop recommendations for the value of MRI in multiple myeloma.

Posts: 7
Joined: Jun 2014

Precision Medicine in Multiple Myeloma

The American Society of Hematology published a statement this week on the White House’s proposed 2016 budget for a new Precision Medicine Initiative. The White House is asking Congress to approve $31.3 billion in NIH funding for a new Precision Medicine Initiative to identify genetic drivers of disease to provide more personalized treatment to patients.

So what exactly is precision medicine in myeloma?


Subscribe to RSS - Multiple Myeloma