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Multiple Myeloma



Total items found: 117

Waiting to breathe
Posts: 7
Joined: Jan 2012
January 2, 2012 - 2:58am

In December 2011, I received a phone from my husband and he informed me that he has myeloma or carcinoma or something like that. So, I got off phone and started to read a few things about it. Still not sure if that is what he really has. Then, I saw INCUREABLE and after his 5 heart attacks, diabetes and one of the toughest years with my own health issues. he has it.
I just knew 2012 was going to be a better year for us. BAM!!! I get that call. My husband still wants to think that is all a mistake, even though we have seen the test results ourselves.  we are find out what stage and few other things on the 5th. The Dr. said chemotherapy every 4 days for 4 months. My husband doesn't want to know or hear anything about it. 


Waiting to breathe
Posts: 7
Joined: Jan 2012
January 2, 2012 - 2:58am

In December 2011, I received a phone from my husband and he informed me that he has myeloma or carcinoma or something like that. So, I got off phone and started to read a few things about it. Still not sure if that is what he really has. Then, I saw INCUREABLE and after his 5 heart attacks, diabetes and one of the toughest years with my own health issues. he has it.
I just knew 2012 was going to be a better year for us. BAM!!! I get that call. My husband still wants to think that is all a mistake, even though we have seen the test results ourselves.  we are find out what stage and few other things on the 5th. The Dr. said chemotherapy every 4 days for 4 months. My husband doesn't want to know or hear anything about it. 


Carmelo2911
Posts: 2
Joined: Dec 2011
December 6, 2011 - 2:28pm

Is anyone using Revamid...if so is your insurance company paying for it.

Thanks...Carmelo


obuoha
Posts: 6
Joined: Aug 2011
August 14, 2011 - 6:38am

Have been on 40mg dexamethasone since Feb 2010, am told its the reason for my deteriorating poor vision. I now have new lenses which is helping little. what else can i do. At the its going am likely to go blind shortly.


jdybarra8604
Posts: 1
Joined: Jun 2011
June 15, 2011 - 8:54pm

My dad was just diagnosed yesterday with MM. He is a relatively healthy 51 year old man with no chronic issues/diseases. This comes at a total shock. I am angry with everything, every one, anything, etc. I'm not angry with my dad, but I'm 'angry with the world'. My faith has been shaken, and I know that now is when you need faith. I'm tired of people telling me to have faith, because I'm so mad. I can't have faith right now. I'm an only child and a nursing student, so I have a lot of weight on my shoulders. I DO NOT resent my dad. If anybody, I want to be the one taking care of him.


Retsbew59
Posts: 2
Joined: Jun 2011
June 3, 2011 - 2:44pm

I was diagnosed in April. I have had a rod placed in my right Humerus. I have had a treatment with Zometa but no treatments for the myeloma. I have been refered for Stem cell transplant at University of MD.
Could anyone give me any insight into the transplant?


psalm23
Posts: 1
Joined: Apr 2011
April 27, 2011 - 6:41pm

Good Day,

My mother has been living with multiple myeloma for the past 3 1/2 years. Recently the chemotherapy was not yielding the kind of results necessary to keep the white blood cells in the fighting mode. Last week, my mom was admitted in hospice care (Gilchrist). The health professionals and staff are wonderful.

However, I am having a very hard time with this. My mom is my best friend. We did so much together. And now, I must begin to think about life without her. The pain that I experience is crippling!!!!!! I could really use any words of hope or peace.


mwallace1325's picture
mwallace1325
Posts: 758
Joined: Apr 2009
April 14, 2011 - 10:25am

Thank you for your answers and suggestions. At this point my friend is asymptomatic, smoldering myeloma, so next blood and bone scans in six months. I did share the information about the blog with her and it turns out she's been taking turmeric (sp?) for several months.

Thank you both again for your help.

marge


mwallace1325's picture
mwallace1325
Posts: 758
Joined: Apr 2009
April 2, 2011 - 9:17am

Good morning,
A very good friend of mine was recently diagnosed with myeloma. She doesn't seem to be proceeding with treatment, and isn't really forthcoming with alot of information. She was so supportive of me when I went thru breast cancer treatment, what can I do to be the most supportive of her during this time?
Thanks for your help.

marge


Rory1987's picture
Rory1987
Posts: 126
Joined: Nov 2009
March 26, 2011 - 5:21am

Is multiple myeloma really plasmacytomas that are in multiple sites? Do plasmacytoma tumors occur in all MM patients?

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