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Posts: 4
Joined: Jun 2016

Sarcomatoid features on Clear Cell Renal Cancer

My son-in-law just had a radical nephrectomy for a 13 cm tumor that took his left kidney.  The pathology says 60% sarcomatoid features with extensive necrosis.  I am wondering if anyone in this sarcoma forum has had any experience with this?


Posts: 1
Joined: Jun 2016

Low Grade Fibromyoxiod Sarcomas - Lungs

Hi all - I live in the UK and have recently been diagnosed with a rare form of cancer, a Low Grade Fibromyoxiod Sarcoma on my lungs.

Does anyone else on here have this type of cancer, or experience/knowledge of it? I'm keen to hear what other people have been offered in terms of treatment?

Thanks in advance

Posts: 2
Joined: May 2016

Leiomyosarcoma - choosing hospital and doctor in Toronto, Canada

My sister was diagnosed with uternine leiomyosarcoma. She lives in Toronto Canada. She is in shock and unable to figure things out. Could you help me?

1) Which hospital would you recommend? Mount Sinai or Sunnybrook hospital.

2) She had surgery to remove fibroid and the biopsy came back with leiomyosarcoma. She didnt have a ctscan yet.. What would be next steps? She hasnt been seen by oncologist yet.

3) What does OHIP insurance cover and what it doesnt cover? 

Thank you. appreciate your help.

Posts: 1
Joined: May 2016

possible liposarcoma 6inches above right ankle

Hi all, I just had a lump on lower right leg mri with contrast and it showed small mass 2cm with main blood supply and possible vascularities so oncologist is going to cut it out.  I am a little nervous they said it was going into the muscle and im not sure if i will be able to walk again or drive which is fine if they get the cancer liposarcoma is suspected. im just scared all about it, has anyone had experience with this in the ankle region 6 inches above.

Posts: 4
Joined: Apr 2016

Spindle Cell Sarcoma of the kidney


Posts: 2
Joined: Aug 2015

Help with cancer patient giving up

My 51 year old brother was diagnosed in july 2015 with sarcoma.  Multiple tumors throughout his body.  Just seemed to happen out of thin air.  Took two different rounds of chemo treatments, with unfavorable results.  Chemo did not work at all.  Had an appt. yesterday to get the results of his scans, and his dr.

Posts: 1
Joined: Nov 2015

Soft Tisue Sarcoma

My sister, who is 38 years old, was recently diagnosed with a spindle cell sclerosing highgrade rhabdomiosarcoma on her cheek. It started as a small lump on her right cheek. She had surgery to remove the sarcoma as well as the surrounding areas. Her doctor told her the tumor was 2.5 cm. Her surgeon and the oncologist both believed that all of the tumor was resected during surgery.

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Posts: 88
Joined: Nov 2013

Planned Outage on 10/9

There will be a planned CSN outage on 10/9/15 from 5am-8am EST while the site undergoes some maintenance. We apologize for the inconvenience.


CSN Support Team

Posts: 2
Joined: Jul 2015

Possible liposarcoma

Hello,  First time poster.  I started having horrible tibia pain in October 14.  The only time the pain occurred was at night when laying down (deep down, achy).  For months I haven't slept well.  I also have RA (4 years).  I had an apt in Dec with my Rheumatologist who ordered x-ray fory back and knee.  She since she couldn't feel anything the pain most likely was coming from kee or back.  I didn't have insurance at this time and didn't get the x-rays because it would have a waste of money. 3 weeks later I was back in the office .  By this time you could feel a lump.  Ordered x-ray.

Posts: 2
Joined: Aug 2015

cardiac sarcoma

Help. my 51 yo brother had a tumor removed from his heart in May. after further testing, other tumors were found in his body. after about 10 weeks, the tumor in his heart is back. he had trouble finding a dr who would treat him, but finally did. they were to start treatment today (aug 4) but he received a phone  call that he had to wait for insurance preauthorization. so he is still waiting, and the tumor is still growing. who can we talk to who can help us move this along? please, any information or leads would be so appreciated.


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