CSN Login
Members Online: 14

You are here


Posts: 1
Joined: Feb 2017

Support/advice needed- my father's battle with pleural mesothelioma

I'm on the brink of mental collapse. I don't know how/if this will help but even temporarily, I just want to offload in the form of written word vomit..

The backstory:

thedisgustingcancer's picture
Posts: 8
Joined: Feb 2017

How do you create intimacy

I am trying so hard to live a somewhat normal life with my husband with a trach with him in so much pain all the time. I try to rub his back or his legs and feet and he seems to resist every attempt of affection towards him. I have no idea what role to play anymore. I try to be a caregiver and he rejects me and says he can do everything himself. I try to be loving and he rejects my love I hug him he says it hurts to touch him. I am so lost in this relationship I get so much resentment projected at me for everything.

Posts: 1
Joined: Feb 2017

2 Cancers

Was not sure where to post this. My wife has stage IV leiomyosarcoma and has been through the ringer over the last 20 years. Just recently it has gotten more aggressive.  Now to add to the fun, last week she had a tumor removed from her rectum.  Now she has high grade invasive adenocarcinoma.  Anyone else fighting a war on 2 fronts.  We are working with Sloan kettering.  Would love to hear from those of you with a similar experience. Thanks !  Ji m

Posts: 10
Joined: May 2014

Suggestion for caregivers struggling with their roles

Like you, I have a husband who has been fighting cancer (in his case its Leiomyosarcoma - rare and aggressive). He has had three surgeries and three different chemotherapies in the three and a half years since his diagnosis. I have taken on the role of caregiver, appointment scheduler, accompanying him to every appointment and treatment, keep notes on his side effects and I am the one who asks most of the questions. In the middle of all this, he decided this is a good time to renovate our house, so we are also dealing with contractors and major household disruption.

Posts: 40
Joined: Sep 2016

Private Message Spam

Hello everyone,

Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1 please do respond to it or share any of your information.

Jegac1 has now been blocked from the CSN site.

Again, I am sorry for the inconvenience. Please continue to report any email spammers or questionable behavior you see.

Best regards,

Posts: 1
Joined: Feb 2017

Feeing lost

My husband is 36 years old and has been undergoing cancer treatment since 2013. He is terminally ill but still going through palliative treatment and some chemotherapy to try and prolong his life so far we have had 2 years of success. I am feeling lost lately because he has been more and more tired since starting this new treatment around 4 weeks ago. He has been more moody and tired and snapping at both myself and our 6 year old. I feel as though he is depressed and won't admit to it and he has every right to be, especially with everything he has and continues to go through.

Posts: 1
Joined: Mar 2009

My son has breast cancer

My son has stage 4 breast cancer and has now developed leptomenengial carcinomatosis. The outlook is very bleak. He's had WBR, taken Taxotere, now he's on Xeloda and has an Omaya Resevoir in his head so they can administer cyterobine directly into his brain and spinal canal. Glenn is 44 years old and is bigger than life . The docs and nurses always leave his room laughing. He is my first born and my buddy. I should be counting my blessings.

Posts: 3
Joined: Jan 2017

Advice and help needed. Please.

Posts: 2
Joined: Jan 2017

Overwhelmed - Can I just vent to someone who won't judge me, for once???

I guess I should start off with our backstory:

After a couple of appointments over the course of about a week that included two different cancer scans and a biospy, my mother in law was diagnoised with stage 4 lung cancer in both lungs and the lymphnods in March of 2015. When giving her diagnosis to us, they actually said that her cancer was incurable and that there was only one treatment option available and that "they would try to manage her symptoms to help give her the best quality of life that they could for as long as she had left".

Posts: 5
Joined: Jan 2017

Boyfriend left after depression from testicular cancer

Hey Everybody,

I don't know what to do in this situation or what to think so here I am reaching out to others that may have had similar situations or may have something to offer.


Subscribe to RSS - Caregivers