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Posts: 1
Joined: Feb 2016

AML- prepping for SCT

Hello- I'm new to this forum-- finally just had time to sign up!

I was diagnosed with AML 2/6/2016 and immediately put inpatient, ended up being there for 7 weeks, 3 rounds of chemo, and still not in remission.  

Posts: 1
Joined: Feb 2016

16 YR Survivor of Acute Monocytic Leukemia-Chronic Pain and Fatigue

My name is Chris. I was diagnosed with AML M5 october 1999, just after my 13th birthday, had full body radiation with chemo and had a perfect match for a transplant from my only brother and received a transplant just after Y2K. Things were alright for the years following, save for removal of a few skin cancers that had to be removed due to the radiation.

cchqnetman's picture
Posts: 106
Joined: Sep 2012

Prostate canccer survivor - now have Myelodysplastic Syndrome (MDS)

I was treated with High Dose Rate Brachytherapy for prostate cancer and at the time they said there was a small chance the radiation could cause a second cancer.  My doctors now think the MDS I have was caused by the radiation.  Looking at a 30% chance of cure with a stem cell transplant.  Has anyone else had similar experiences?


Best of luck to alll of us!





Posts: 15
Joined: Mar 2014

For those of you with Leukemia

I just wanted to survey and find out how old you all were at diagnosis and what were your labs like? WBC? neutrophils? anything else abnormal? I don't really have any symptoms but I am seeing a hematologist/oncologist at the moment and recently had some elveated labs which is unusual for me as I never get sick, not even a cold. I feel great right now. My doctor is running a blood smear and other tests on the labs that were drawn on tuesday. I'd just like to see where my labs compare to others. Wishing you all the best!!

Posts: 2
Joined: Nov 2015

B cell chronic lymphocytic leukemia

My grandfather has had two burn like skin patches on his shoulder. Those patches where biopsies.

Biopsy came back today as Cuteanous involvment by B cell chronic lymphocytic leukemia.

nothing on the biopsy says stage or ifs is aggressive or slow growing.


What surprises me is that his wbc was normal and so was his plattelte. blood work was fine. This is so strange to be. Could this biopsy be wrong ? 

has anyone experienced this and how where you treated.

Posts: 2
Joined: Oct 2015

Chemo Port for Bendamustine+ rituximab

Hi everyone,

I am preparing to undergo 6 months of chemo with the combination of Bendamustine+ rituximab. I was told by my doctor that I would require a port and am feeling anxious about the procedure and its effects. Anyone have any experience with this?

Thanks so much.

Posts: 1
Joined: Oct 2015

Philadelphia-negative B-Cell Adult ALL patient with complications.


I was diagnosed with the adult form of this acute disease over a year ago; had a relapse nearly a month. My oncologist has me on a new regimen hoping to eliminate the leukemic cells before we start the stem-cell transplant process. However, I am facing an acute medical complication that cannot be explained by the medical team.

CSN_Rowan's picture
Posts: 86
Joined: Nov 2013

Planned Outage on 10/9

There will be a planned CSN outage on 10/9/15 from 5am-8am EST while the site undergoes some maintenance. We apologize for the inconvenience.


CSN Support Team

Posts: 9
Joined: Aug 2015

White Blood Count

I wonder if anyone can answer this question.

My husband was diagnosed with CLL February 2013. When this horrible journey started, the WBC was 50,000. Mind you, in 2003 it was 20,000 - 30,000. But they did not know it was cancer. They thought it was his Crones Disease -they just thought it was high.


So all that time we could have maybe done something about it. What stinks is that his count never goes down -it's been climbing ever since. They were concerned about 20,000?

Two months ago, it was 151,500. Now we are looking at 191,000.

Posts: 4
Joined: Aug 2015

Treatment options/side effects for CLL leukemia

have had Cll leukemia x 5 years. Just had bone marrow biopsy and treatment to begin in couple weeks. My White blood cells are in the 20's lymph nodes count has doubled, spleen is much larger.

Could someone pls enlighten me on the types of treatment my oncologist will recommend and the expected side effects? Would greatly appreciate it. Had prostate cancer with surgery (when they found leukemia) and can answer questions if desired.




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