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Childhood Cancers

Posts: 8
Joined: Feb 2006

Anyone look into stem cell treatments for muscle/bone atrophy/wasting from radiation treatments?

I am wondering if anyone as looked into this?  I had hodgekins at age 6 and the radiation treatments caused a lot of atrophy and muscle wasting.


Posts: 2
Joined: Aug 2016

Bladder Rhabdomyosarcoma and local contril

my my two year old son has bladder rhabdomyosarcoma that is now in the urethra. The original vac/ vi regimen didn't respond and we are doing radical bladder removal in a week. Has anyone done is or have any advice? Excuse this font! 

email Jeannie

Posts: 3
Joined: Nov 2014

Not the type of survivor we're looking for?!

I recently had a startling email from a non profit event director. See I'm a painter andwas browsing Craigslist for art gigs to get my paintings out there. I stumble across what I thought was a perfect gig. They were looking for artists to do demonstrations and donate pieces for a local event to help raise money for childhood cancer research. As a survivor of ALL at one year I thought it was a perfect fit. So I emailed the guy/gal that I was a local artist and cancer survivor happy to help.  

Posts: 2
Joined: Apr 2010

2 Broken bones and cysts

My 14 year old son is a Wilms Tumor survivor.  Despite an obstruction a few year ago, he is relatively healthy.  During a baseball game he broke his left hand.  3 weeks later he broke his right wrist during another game. 2 broken bones in 3 weeks.  During the xray and CT scan, they also indicated that he had cysts.  I know sometimes ganglion cyst (which in themselves are not a big deal), are misdiagnosed. They just kind of said it in passing, but this is an orthoped that has not reviewed his history.

Posts: 4
Joined: Apr 2016

Coming to terms with it at 24, help please

Hey all,

I have always religiously avoided these things, but I think that's part of the problem and why I'm here. I need to know if anything of this stuff sounds familiar because I realize it's starting to hamstring my life a bit.

Background: Army officer, 24, from New York. Had ALL as a kid around 3, went into remission quickly but was in and out of the hospital a lot for a long time with the remedial chemo etc., think it finally ended around age 8.

I need to know if any of the following sounds familiar, is it a problem, and how did you deal with it?

Posts: 4
Joined: Jan 2016

Grade 3 anaplastic features - Pxa - 11 year old boy

My 11 year old son was diagnosed with a Pxa grade 3 with anaplastic features on Xmas eve


He had surgery with full resection and were just about to start 6 weeks radio therapy, along side 8 month oral chemo 


I'm desperate to speak to anyone who knows about the above and what your experiences have been.. 


Please please contact me on Kerriedenman@hotmail.com were based in the uk


We're desperate ...


Thank you in advance and I wish you all Health and happiness 


Kerrie xxx


Posts: 1
Joined: Nov 2015

Alternative Treatments

First, get sugar out of the patients diet now!!! Cancer loves sugar, when the patient is better and you want to introduce sugar back into their diet, please  become informed about the difference between processed and non processed food! Raw is best!

Second, I am not here to debate treatment.

I am here to help, to provide infomation and let you decide for yourself.

Sassy16's picture
Posts: 2
Joined: Oct 2015

I am a childhood cancer survivor I had ALL if anyone has questions

I am a 32 year old that has been cancer free since 1997. I was diagnosed when I was 4 years old and went through experimental chemotherapy treatments and spent a lot of time in the hospital. I lost my hair 5 times because of my chemo treatments. I wanted to write this post to help anyone that may have questions or just need to talk to someone who has been through the same thing. I went through a lot during my childhood. The thing that helped me out the most was the support of my family and friends.

CSN_Rowan's picture
Posts: 88
Joined: Nov 2013

Planned Outage on 10/9

There will be a planned CSN outage on 10/9/15 from 5am-8am EST while the site undergoes some maintenance. We apologize for the inconvenience.


CSN Support Team

Posts: 1
Joined: Aug 2015

Diffused Gliomatosis Cerebri



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