Cancer Survivors Network

his name is aaiden he tried to enter in this world on the fourth of july but instead held on 3wks only to be 3wks early after a very difficult pregnancy with different surgeries for kidney issues but he is 2 1/2 now and has been experiencing my different ills with no diagnosis in september a biopsy revealed he had interstitual palisading granuloma that were removed in oct and all nodules were binine since then he has been sleeping 15 plus hours has night sweats a cough that lingers that has been treated for pnenomonia complaints of belly pain daily and has had a bizarre swollen foot and groin area as if he had some cellulitus he has lymph nodes swollen in groin area he runs a low grade temp daily 100.2- 100.7 his color varies some days gray others yellow he has been hospitalized for a severe abdomial pain in nov with no real explanation they ran extensive labs with no signs of cancer not to mention he has had mrsa twice and every viral infection he has come in contact of we have seen his peditrician often and two oncolgist one of which he has seen monthly this will be his third visit he has lost a lil weight but has been resilliant despite all of this many see hes little dimples and that is it i am here with my story cause although he has a good dr over seeing him should i be doing more ordo i trust these drs to say he is just having childhood ills a lingering viral effect or do i continue to listen to my gut i have search many of nights ask lots of questions n end up with nothing except if it was cancer it would be here i hope for some insight the people hear are amazing and r true heros in my eyes they r fighters n survivors pls anyone

This is going around Facebook and I think it's a wonderful idea.
I love this idea!! Mattel should make a Barbie with no hair so that every little girl fighting cancer feels beautiful!! Put her in pink, name her HOPE and send the proceeds to St. Jude.
I watched my daughter battle melanoma and I just finished my chemo for breast cancer. Hair loss is a major issue for women but can be devastating for youngsters.
Wonder how we can get this idea to spread?

hi.. I am a mom of a survivor of Rabdo.. she is 6 yrs out.. she was diagnosed at age 4 with stage 4..her tumor sat on her uterus and was all over her abdomine area... she was treated for two yrs.. did the national protocal.. she and her tumor were so responsive to her chemo and radiation we blessed..

we are now having side affect issues with her treatments and I am beyond scared... did you have any side affect issues with bone growth? as of right now we are not sure how many eggs she has..im considering having them harvested b/c they are expecting her to have a very low amount.. and if she will have the correct amount of hormones for regular development into womanhood.. is there anyone who can help with this?

I’m not sure if this is the right place to find some advice but I hope it is,
I’m from the UK & I am finding it very difficult to find anyone who is or has been in my position as Lymphoma in children is rare.
My two year old son has had enlarged lymph nodes for about nine months, it was first noticed with two in his neck but since then this has multiplied to more in his neck and also two in the groin.
I wasn’t really concerned at first, I was hoping the doctors were going to say it was fairly normal for them to have swollen lymph nodes. But as they have multiplied and his face is pale and in areas blue & purple my concerns are increasingly growing, his blood tests came back normal but this did not satisfy me it doesn’t feel right.

Hello Everyone,
I am the sister of a cancer survivor. My brother Chris was diagnosed at age 7 with Astrocytoma grade III. He is now 31 and continues to deal with an array of medical issues due to the aftereffects of radiation and chemotherapy. He started his own website in order to help him deal with his emotional and physical pain. I would love for him to be able to connect with more survivors of childhood cancer..When I write childhood cancer survivors, I mean those who were diagnosed when they were under 18. Please, please take the time to visit his website: cancerlifeandme.com He wr

I AM LOOKING FOR ANYONE WHO WAS TREATED FOR A.L.L FROM THE MID 70,S THROUGH THE LATE 80,S. WOULD LIKE TO DISCUSS ANY LATE EFFECTS. I AM NOW 37 YEARS OLD, WAS DIAGNOSED IN 76 AND WENT THROUGH APP. 12 YEARS OF CHEMO/RAD "3 RELAPSES" ENDING IN 1988. I WOULD JUST LIKE TO COMPARE NOTES AND SEE IF ANYONE WITH A SIMILAR HISTORY IS HAVING SIMILAR PROBLEMS. PLEASE CONTACT ME AT MM91174@YAHOO.COM

A friend of mine's daughter was diagnosed with stage 3b melanoma, she is 12. She has had surgery to remove the cancer and all the lymphnodes is her affected leg.

My friend is very (over) protective of her daughter and has always done everything to sheild her daughter from any discomfort. My friend is dragging her feet on getting her daughter treatment. She is afraid of the side effects of traditional treatment and is looking into experimental options, which so far have NOT shown to be effective.

Can anyone tell me what can be said to this woman to get her to start treatment? She has even mentioned that her daughter really likes Halloween and wants to put off treatment until after then! She was diagnosed in July. I and her other friends and her husband are at wits end. As it is, she only has a 50% survival rate is she DOES get treatment. If she doesn't, it goes down to 30%, although since she is a child I'm hoping her resilience will improve her odds. I know it must be tough to make these decisions. I'm a breast cancer survivor and did what I had to do to stay alive for my kids, but it's different when the treatment is for a child, especially one who can't tolerate any type of discomfort. Any advice is welcome.

My sister who is 16 years was diagnized with nasopharyngeal cancer last year on April. You can easily see the growth on both sides her neck. we were advised to go through both chemotherapy and radiotherapy which we didn't do. Can you advise

I am a 32 year survivor of what my doctors all called "osteogenic sarcoma." Everyone else just called it bone cancer. I was treated in Sloan Kettering at Memorial Hospital in New York, but my surgery, recovery, and subsequent chemotherapy all occurred in the child's floor. For some reason that I can't remember, the doctors said my cancer was usually prevalent in children. Anyone have any idea whether this is true?

Hi,

As I posted earlier, my 5 yrs old daughter earned her wings a week back. She was battling against the deadly ATRT brain cancer. We had only one child and at this point in time we are all shattered. She was our life and we are not able to think anything beyond her loss.

While we would never be able to stop missing her, many of my relatives & friends want us to have another baby as early as possible so that the void is filled.

One worry which is troubling us now is that even if we plan for a second kid whats the assurance that it won't have an ATRT? How to ascertain that what happened to my daughter was all sporadic and not genetic.