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Helping Your Children Cope With Your Cancer, A Guide For Parents and Families (Second Edition)

Type: 
Book
Description: 

Helping Your Children Cope With Your Cancer, A Guide For Parents and Families

Is it my fault Mom has cancer? Will I get cancer? What will happen if Mom dies?

These are just a few of the thoughts that children have when a parent is diagnosed with cancer. Now, this re-edited book, comprising 30 essays written by parents with cancer, their children and health-care experts, "provides an instant support group for families in which a parent has been diagnosed with cancer," reports the Susan G. Komen Foundation. And it "Provides valuable advice on how to discuss the impact of this disease on the whole family...," says Lance Armstrong.

When Peter van Dernoot's wife was diagnosed with terminal cancer in 1980, no one knew of resources available to help his children cope with their mother's illness. During a three year period, he collected essays, letters, poems and drawings from patients and their families, hoping that their first-hand experiences would help other parent guide their children to emotionally healthy lives, no matter what the outcome of the disease.

Every family deals with cancer differently, but parents and medical experts agree: Parents should talk to their children about cancer as soon as possible, in a way they can understand. If discussed properly, potentially frightening experiences such as hospital visits and hair loss can be transformed into positive events.

Cancer does not have to traumatize your children. Helping Your Children Cope With Your Cancer provides insights into your children's feelings, and options on how to reassure them. In support of this effort, Bristol-Myers Squibb has purchased 20,000 copies of the book for families who will benefit from it.

Category: Health & Fitness - Diseases - Cancer; Family & Relationships - Emotions; Family & Relationships - Death, Grief, Bereavement
Format: Trade Paperback
On Sale: October 17, 2006
Price: 15.95
ISBN: 978-1-57826-231-1 (1-57826-231-3)

Contact information: 
Available through: Hatherleigh Press, 5-22 46th Ave., Suite 200, Long Island City, NY, 11101, 1-800-528-2550 Available online through Hatherleigh Press http://www.hatherleighpress.com/catalog/display.pperl?isbn=9781578262311 Also available at: Amazon.com
Author/Speaker/Performer: 
Peter van Dernoot
Publish date: 
2006

Talking With My Treehouse Friends About Cancer

Type: 
Book
Description: 

Talking With My Treehouse Friends About Cancer, Interactive Workbook Helps Kids Cope with News That Parents Have Cancer
The first activity book of its kind, Talking with My Treehouse Friends about Cancer, provides a creative, informative outlet for children during a difficult time

“It is hard to think of an occurrence more disruptive to family life than the diagnosis of cancer in a parent or grandparent,” says Peter R. van Dernoot, founder of The Children’s Treehouse Foundation, an organization committed to providing support in these difficult situations. In connection with his efforts to help children cope with such heart-wrenching news, Peter van Dernoot has created a unique diary and workbook, Talking with My Treehouse Friends about Cancer.

This full-color activity book includes a variety of fun projects such as drawing, coloring, pasting, and writing, to encourage children to articulate their new emotions and questions. By finishing statements such as “I remember how I found about the cancer,” and drawing “chemo stopping the cancer,” children learn how to cope with the disease and its impact. Additionally, the book informs about cancer in an easily understandable and unthreatening manner, using metaphors to explain cancer’s spread and the side effects kids may witness. A must for any family dealing with a parent’s or grandparent’s cancer, Talking with My Treehouse Friends about Cancer communicates with children in a language they understand.

Contact information: 
Available through: Fulcrum Publishing, 4690 Table Mountain Drive, suite 100, Golden, CO 80403 Telephone: 800-992-2908 www.fulcrumbooks.com Also available at: Amazon.com
Author/Speaker/Performer: 
Peter van Dernoot

The Children's Treehouse Foundation

Type: 
Support groups
Description: 

Support and Information for Families, Professionals and Children
Program for children:

WHEN A PARENT HAS CANCER - Helping Children Cope with a Parent's Illness
Cancer center-based, support group-programs for the children whose parents have cancer:

CLIMB (Children's Lives Include Moments of Bravery) - A Program of The Children's Treehouse Foundation

This is a FREE 4-week program designed for children ages 6-12 years whose parent or primary caregiver has a cancer diagnosis. Children attend 4 weekly sessions focusing on a select topic each week. Each session incorporates activities and discussion time on the selected topic. The goal is to teach coping skills to help children deal with the stress that occurs when families are coping with a parent's cancer diagnosis. All sessions for children are facilitated by health care professionals who are experienced in the care of families coping with cancer. Topics include: Knowledge of Cancer and Treatments, Identifying Feelings (Happy, Confused, Sad, Scared, Mad), Coping with Feelings (Happy, Confused, Sad, Scared, Mad), Facilitating Communication.

Contact information: 
http://www.childrenstreehousefdn.org/support.html for a listing of different Centres in various States that offer this program.
Author/Speaker/Performer: 
various depending on where it is held

Look Good Feel Better (for women facing cancer)

Type: 
Organization
Description: 

This is a TOTALLY FREE one time get together where professionals in your area get together and donate their time to help you learn about how to take care of your skin and tricks for looking your best during treatments. They will talk about different kinds of wigs and/or head treatments like scarfs and turbans. Believe me, if you lose your hair, and it is in cool weather, you will freeze. You lose a lot of heat through your head. A terry cloth turban is invaluable and inexpensive. They teach you so much about things you wouldn't eve think about probably.

Even if you don't wear make up there are things you need to know about taking care of your skin during treatments.

And you come away with a lot of free name brand skin care products that are good for you during treatments and also a lot of free name brand cosmetics which are all donated by the companies. Each person gets products that will work best with their skin types and cosmetics for their skin colours etc.

It truly makes you feel better! It is offered on a regular basis in Cancer Centres all over the US and Canada. It IS FREE but you do need to register to attend however.

Source: 
My local Cancer Centre is where I learned about it
Contact information: 
Look on the website for the one-time get together closest to you. You won't regret it.

Bendamustine (Treanda)

Type: 
Web site
Description: 

I searched Bendamustine on Youtube.com and found some good listening material. There are positive vibes for everyone in these videos! even one from M.D. Anderson in the States!

Latest videos uploaded March 15, 2011 American Society of Hematology (ASH)
=====================================
http://www.youtube.com/watch?v=AxsUA4vNtps ASH 2010 history 50 years old
http://www.youtube.com/watch?v=cEDRVueEYp0 ASH 2010 mantle cell lymphoma 2003 Europe Study
http://www.youtube.com/watch?v=iMhNVAtQ6TE&NR=1 ASCO 2010 Dr Rummel

Older but still valuable in my opinion:
http://www.youtube.com/user/ecancertv?blend=19&ob=5#p/a/u/2/OjYznUXT9Ac Prof Karol Sikora – on UK health care vs US
http://www.youtube.com/watch?v=rEDNldZeYfE Sept 16, 2010
http://www.youtube.com/watch?v=tqmlzk_9ZdA ASH Dec 18, 2009
http://www.youtube.com/watch?v=JOvvZFF2F4k&feature=related July 10, 2009 M.D. Anderson, US

http://www.youtube.com/watch?v=poWiTIcwbKg&feature=related watchful waiting from a personal experience
http://www.youtube.com/watch?v=08GQNcwXjnM&feature=related anxiety & the fear from a personal experience

A fun version: Gene Wilder Talks about Non-Hodgkins Lymphoma 2007
http://www.youtube.com/watch?v=eiKdTtzVK_U&feature=related

as of 4/27/11 Gene Wilder is alive and will be 78 on 6/11/11 as 11+ year survivor of NHL (if my calculations are correct) http://www.deadoraliveinfo.com/dead.nsf/wnames-nf/wilder+gene

Janelle

Source: 
American Society of Hematology (ASH) 2010
Author/Speaker/Performer: 
Dr Rumme
Publish date: 
March 15, 2011

The Skin Cancer Foundation

Type: 
Web site
Buckwirth's picture

The Emperor of All Maladies

Type: 
Book
Description: 

A History of Cancer and its Treatment.

An excellent resource for understanding our disease and how the current treatments came into being. Well written and easy to understand.

Author/Speaker/Performer: 
Siddhartha Mukherjee

E-books and other resources for caregivers

Type: 
Web site
Description: 

www.permanenthouseguestinfo.com is a blog for family caregivers featuring advice on how to stay sane with an in-law living in one's home and in the middle of one's marriage. The site also has links to various resources a caregiver might need to make their job easier while taking care of a disabled relative (typically a parent or parent-in-law).

Contact information: 
e-mail at fortress73@juno.com Snail-mail: PO Box 398 Monmouth OR 97361
Author/Speaker/Performer: 
Jonathan Taylor

BreastCancer.org

Type: 
Web site
Description: 

BreastCancer.org...especially helpful for metestatic Breast Cancer.

Contact information: 
online: BreastCancer.org
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