This man survived osteosarcoma (so far) and brings some interesting perspective to how to prepare for and live with what feels like a death sentence (even if it isn't).
You can go to TED.com and get lots of blow-me-away seminars from lots of people about lots of subjects. This one I decided to add here because it is cancer-related and appeals to my notion that Hope and Humor are key ingredients to survival, along with taking the aggressive road to fighting cancer. I hope you enjoy. It lasts, I think, a little more than 20 minutes.
I cannot say enough good things about Gilda's Club in NYC! Everyone there has been wonderful...if you are in NYC and cancer is affecting you I urge you to to contact Gilda's Club. There are programs, lectures, workshops, arts and crafts....Noogieland for kids, support groups. If you have cancer, if you are a caregiver for someone with cancer, someone dear to you has cancer....literally anyone touched by cancer is welcome and it's all free.
This doctor is a leading expert in some of the more difficult thyroid cancers but also has findings in regards to Papillary thyroid cancer. Stating that RAI doses are NOT high enough initially and what this is doing is helping the cancer to become "immune." Thinking of it like someone taking too many antibiotics which ultimately results in higher tolerant diseases.
He argues against the concept that there is a lifetime limit of RAI and has given doses as high as 600-900 for people with lung mets like myself. He says it's important to find someone who will perform I-131 dosimetry which is a method used to find out what the highest dose an individual can tolerate without harming their bone marrow.
He is no longer taking new patients and I'm currently looking into other doctors who believe this same principle.
Director Thyroid Oncology Program University of Kentucky
Division of Endocrinology & Molecular Medicine
Director of Thyroid Cancer Research Lab
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