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rose_angel's picture

A Patient's Guide to Chondrosarcoma

Type: 
Web site
Description: 

Written in easy to understand language, this site answers questions regarding Chondrosarcoma in layperson's terms.

rose_angel's picture

Chondrosarcoma Support Group

Type: 
Support group
Description: 

This is a support group for those with a diagnosis of Chondrosarcoma, for caregivers, and medical personnel and researchers who work with chondrosarcoma issues. Most activity in the group takes place online with emails back and forth among members. The group site also contains files, links, photos, etc.

Contact information: 
10 Carita Court Watsonville CA 95076-3513 phone: (831) 786-9795 chondrosarcoma_care@yahoo.com

Blood & Marrow Transplant Resources

Type: 
Web site
Description: 

One of the Internet's premier portals for information, encouragement, and support for those having or considering a bone marrow or stem cell transplant. Provides over 100 resources to help facilitate the patient's treatment and recovery process.

"Over 140 Things You Need to Know about Your Autologous Bone Marrow or Stem Cell Transplant"

Type: 
Book
Description: 

Mark Patton, "The World's Most Transplanted Person", has written this book to help anyone who is going to have or is considering a bone marrow or stem cell transplant. Mark has had five transplants over the past 14 years to treat his multiple myeloma.

There are now millions of transplant candidates in the U.S. Sadly, there are only around 50,000 of these procedures done each year. "Over 140 Things" shows patients how to find out if they are transplant candidates. It demystifies these procedures and lets patients look at transplants in a clear, objective manner. And, it explains how patients can take advantage of the enormous amount of resources available to facilitate their treatment and recovery.

The book is available on the Blood & Marrow Transplant Resources' Web site. The URL is www.BMTresources.org. It can also be purchased by sending a check or money order to: MGC Publications, 1208 E. Hermitage Rd., Bayside, WI 53217. The cost is $11.95, plus $3.50 shipping and handling. (Wisconsin residents please add 87 cents for sales tax.)

Institutions and organizations interested in purchasing the book in quantity should send an
e-mail to mytransplant@sbcglobal.net.

"Over 140 Things" has been cited as a valuable resource by the American Cancer Society, Susan G. Komen Breast Cancer Foundation, The Bone Marrow Foundation, International Myeloma Foundation, Coalition of Cancer Cooperative Groups, Cancer Federation, and many, many more.

Source: 
MGC Publications
Author/Speaker/Performer: 
Mark Patton
Publish date: 
May 2005
ritamarie's picture

Remissionroad.com

Type: 
Book
Description: 

A story of a Woman with four children to care for and her seven Cancers.

Source: 
None-Nota yet Published
Author/Speaker/Performer: 
Rita M. Smith
Publish date: 
None

Living Through Breast Cancer

Type: 
Book
Description: 

what a Harvard doctor and survivor wants you to know about getting the best care while preserving your self-image.

Source: 
McGraw Hll
Author/Speaker/Performer: 
Carolyn M. Kaelin, M.D.
Publish date: 
2005
BonnieR's picture

Minnesota Ovarian Cancer Alliance

Type: 
Organization
Description: 

Mission Statement
To create an awareness regarding early warning signs that may be indicative of ovarian cancer.
To create and promote resources for support, networking and education for women diagnosed with ovarian cancer in order to help them in their battle. To unite and educate individuals, the medical community and organizations in the fight to overcome ovarian cancer and advance research toward a cure.

Our Purpose
Ovarian cancer affects 1 in 55 women. Unfortunately, 75% to 80% are diagnosed in advanced stages greatly limiting life expectancy. This statistic has not changed in 20 years. This statistic can be changed through education and information to women and physicians about the risks and subtle symptoms of ovarian cancer.

Our Agenda
Advocacy and education of women and health care providers to promote awareness of symptoms, increase early detection and improve treatment methods. Provide support and networking for all those affected by this disease. Provide marketing, promotion and fundraisers to sustain our efforts and contribute to the ongoing research for a cure. Coordinate a speaker's bureau for community and local education.
Communications and coordination of local, state and national efforts to fight ovarian cancer.

Contact information: 
3751 Alabama Ave S St Louis Park MN 55416 phone: 952-890-8775 kgavin@mnovarian.org
shujintribble's picture

Angiosarcoma.org

Type: 
Web site
Description: 

With the passing of my wife (profile: JoanIRW), I finally took it upon myself to start a bulletin board system specifically for Angiosarcoma fighters, doctors, researchers, fund raisers and all the people supporting them.

For Doctors and Researchers: There is a section for only YOU to discuss various treatments and findings between each other; Hopefully this will be a boon to us all as it will help minimize "noise" between these much needed individuals.

Please help me make my promise to Joan a reality: "We will beat this for someone else... My Word."

herbal remedy

Type: 
Web site
Description: 

a herbal supplement that doctors are prescribing for cancer patients in england. it seems to have a good following and it saved Jenny my friends life, I just wanted you to know about it, i hadnt heard of it before jenny took it.

MaggieAnn's picture

Hope in the Face of Cancer, A Survival Guide for the Journey You Did Not Choose

Type: 
Book
Description: 

Excellent book. She's been there and she understands.

Source: 
Harvest House Publishers
Author/Speaker/Performer: 
Amy Givler, M.D.
Publish date: 
2003
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