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pandora68's picture

Don't Sit in the Shade Forever

Type: 
Article
Description: 

A "survival guide" of sorts for neck and head cancer patients going through radiation therapy. Part of the BC Cancer Agency's Library.

Source: 
n/a
Contact information: 
phone: 604-732-4580 (Vancouver, BC Canada)
Author/Speaker/Performer: 
Ann McCutcheon

Multiple Myeoma Research Foundation

Type: 
Organization
Description: 

A website devoted to research and finding a cure for multiple myeloma. It offers support to patients, families and caregivers. It responds to the questions of newly diagnosed patients as well as keeps them informed of clinical trials and breakthroughs. The contributing editor is Kathy Guisti, herself a multiple myeloma survivor. Dr Ken Anderson, from the Dana-Farber Cancer Institute is on the board of directors, and is a leading researcher in finding a cure for this deadly disease.

Contact information: 
3 Forest Street New Canaan CT 06840 phone: 203-972-1250 fax: 203-972-1259 themmrf@themmrf.org

AdenoCarcinoma of Unknown Primary Online Support List

Type: 
Support group
Description: 

Free, unmoderated discussion list for patients, family, friends, researchers, and physicians, to discuss clinical and non-clinical issues and advances pertaining to cancers of unknown primary. This includes information about patient experiences, psychosocial issues, new research, clinical trials, and discussions of current treatment practices as well as alternative treatments. The quality of the exchanges is based on the monitoring of the list by a group of experienced volunteers. Information about ACOR (the Association of Cancer Online Resources, Inc), a highly respected 501 (c) (3) non-profit organization, incorporated in New York State, may be found at http://www.acor.org.

Contact information: 
Association of Cancer Online Resources (ACOR) NY NY joanmed@pacbell.net

VADguard

Type: 
Web site
Description: 

website shows a cushioning device that protects an inplanted chemotherapy port from pressure by an automobile seatbelt/shoulder strap.

Cancer, Shmancer

Type: 
Book
Description: 

If justice delayed is justice denied, the same can probably be said for health care. Early diagnosis is the key to effective treatment of most diseases. In TV star Fran Drescher's case, an accurate diagnosis came just in time. Cancer Schmancer is Drescher's fascinating, first-person account of her two-year battle with uterine cancer.

If you are expecting a woe-is-me recitation of a celebrity's encounters with an uncaring and evil healthcare system, this is not the book for you. It is, instead, a medical case history told in a frank and wonderfully humorous style. And it is a call to arms to any woman or man who anticipates seeking medical care in the future.

Drescher describes her visits to a series of healthcare professionals in an attempt to deal with recurring gynecological symptoms. Good and competent doctors failed to screen her for uterine cancer because Drescher fell outside the statistical parameters for the disease ? she was too young and too slender to be at risk. Uterine cancer was finally identified after a relatively simple test.

Her encounter with cancer is placed in rich context, interwoven with stories about her close-knit family, her dissolving marriage, career challenges, a new romance, her beloved dog, and the comforts and importance of close friendships. This is important material. It's a reminder that context is important when dealing with disease. Anyone who has ever experienced the modern healthcare system knows that as patients, we are rarely viewed in context. Yet our life stories, our fears, our hunches and our observations are as important to effective diagnosis and care as the medications and surgical intervention we receive. Unless we learn all that we can about our bodies and advocate for ourselves, we may miss out on the genuine benefits that modern health technology has to offer.

In that sense, Cancer Schmancer is as much a book for health care providers as it is for patients and their families. It serves up a gentle but clear warning to medical professionals: pay attention to what your patients say; pay attention to what your patients know.

As writer of non-fiction, Drescher is no Joan Didion. But she is the ideal messenger for this sometimes-discomfiting subject. Over the past decade, she has managed to craft an accessible and self-deprecating image that belies her beauty and comic talent. With this book she has succeeded in producing an entertaining read from a traumatic and life-changing experience. Most important, Drescher has done some important homework for all of us. As future patients, we should all pay attention to what she has to say.

Source: 
Warner Books
Author/Speaker/Performer: 
Fran Dreschler
Publish date: 
May 2002
whitneyd74's picture

Choose Hope

Type: 
Web site
Description: 

"Cancer Sucks" t-shirts are among the many cancer related items they carry at choosehope.com. I wore mine while I was in treatment, and still wear it today, in remission. I get the best comments, and it really makes people stop and think. When I was in treatment the other chemo patients always smiled when they saw it, and that was reason enough to wear it often!

Afterwords

Type: 
Book
Description: 

a collection of poems about loss

Source: 
Blue Unicorn Press
Author/Speaker/Performer: 
Ellen Steinbaum
Publish date: 
2001

Oncology Nursing Society

Type: 
Organization
Description: 

The Oncology Nursing Society (ONS) maintains a Web site for patients and caregivers, providing information on six common cancer treatment symptoms: fatigue, anorexia, pain, depression, neutropenia, and cognitive dysfunction.

Conversations

Type: 
Article
Description: 

Free monthly newsletter for survivors of ovarian cancer.

Source: 
CONVERSATIONS: THE INTERNATIONAL NEWSLETTER FOR THOSE FIGHTING OVARIAN CANCER
Author/Speaker/Performer: 
CONVERSATIONS: The International Ovarian Cancer Connection
Liebermj's picture

Gilda's Club Seattle

Type: 
Organization
Description: 

The mission of Gilda's Club is to provide places where people with cancer and their families and friends join with others to build social and emotional support as a supplement to medical care. Free of charge and nonprofit, Gilda's Club offers support and networking groups, lectures, workshops and social events in a nonresidential, home-like setting. Funding is solicited from individuals, corporations, and foundations.

Contact information: 
1400 Broadway Seattle WA 98122 phone: 206-709-1400 fax: 206-709-9719 info@gildasclubseattle.org
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