CSN Login
Members Online: 13

You are here

Member Resource Library

malarci's picture

Cutaneous Lymphoma Foundation

Type: 
Organization
Description: 

The Cutaneous Lymphoma Foundation is an independent, nonprofit patient advocacy organization dedicated to supporting every person with cutaneous lymphomas by promoting awareness and education, advancing patient care, and facilitating research.
Cutaneous lymphoma is a general term for many lymphomas of the skin including: cutaneous T-cell lymphoma, mycosis fungoides, lymphomatoid granulomatosis, S

Contact information: 
PO Box 374 Birmingham MI 48012 phone: 248-644-9014 fax: 248-644-9014

A Caregiver's Story: Coping with a Loved One's Life-Threatening Disease

Type: 
Book
Description: 

The book offers hope and encouragement to those newly diagnosed with cancer and to their loved ones. The author became her husband's caregiver in 1998, just one year after she was herself cared for while battling Guillain Barre, a rare and serious disease.
Doctors offered little hope for her husband's survival from CNS lymphoma, but Ann vowed to be the best caregiver she could be. She offers here a loving, encouraging environment to help steer readers through difficult times. The book, she says, can be a support group for anyone looking for information.

Source: 
iuniverse
Author/Speaker/Performer: 
Ann Brandt
Publish date: 
December 2007

Down To The Marrow

Type: 
Book
Description: 

Catherine Stone had always been fearless until she was diagnosed with a truly wicked disease, non-Hodgkin Lymphoma.
Suddenly, she was wandering through a high tech world of PET Scans, spleen biopsies, and stem cell transplants, refusing to show anyone how terrified she was. The strength to overcome fear and fight her illness came from writing. Healthcare system adventures co-mingle with memories from the past that she believed might contain roadmaps to victory. Through this process of remembering and recording, Catherine completely forgot she was supposed to be conquering fear. Instead, through the typing of thousands of words she and fear made a wary peace. Down to the Marrow is a celebration of the richness that life offers. For better or worse, with strength, humor, and remembrance, the author reminds us all how the many minutes of our lives are connected and, if we trust this connection, it will hold us together through the most horrendous of times.

Source: 
Bryant Park Press, Inc.
Author/Speaker/Performer: 
Catherine Ann Stone
Publish date: 
2007

Visions for Cancer Recovery

Type: 
Article
Description: 

From the moment of diagnosis, take advantage of this remarkable Integrative Visual Therapy program that is intended as a daily companion to traditional cancer treatments.

Experience a series of deep-relaxation and stress-reduction techniques, before taking a revolutionary glimpse inside the body where scientifically-based animation represents the process of apoptosis, or cancer cell elimination.

Source: 
Integral Visions
Contact information: 
phone: 952 922 8291 mary@integral-visions.com
Author/Speaker/Performer: 
E’Louise Ondash, RN
isletcell's picture

Carcinoid/ NET info

Type: 
Web site
Description: 

Novartis site with very good info

isletcell's picture

Caring for Carcinoid foundation

Type: 
Web site
Description: 

Very good info for carcinoid and neuroendocrine paitents.

isletcell's picture

Carcinoid Cancer Foundation

Type: 
Web site
Description: 

Very good info for Neuroendocrine and Carcinoid paitents

LisaLama's picture

I Am Not My Breast Cancer

Type: 
Book
Description: 

This is a new book taken from an online Breast Cancer Support Group called First Person Plural. 800 women from 49 states and several other countries participated. The discussions were compiled into a book. The book is described on the cover with the following words: "Women talk openly about love and sex, hair loss and weight gan, Mothers and Daughters, and being a woman with Breast Cancer." I was one of the women who contributed and after reading the book, I have to say I am proud to be a part of this project.

Source: 
HarperCollins
Author/Speaker/Performer: 
Ruth Peltason
Publish date: 
2008
MaryJayee7's picture

Christians Overcoming Cancer

Type: 
Organization
Description: 

Christians Overcoming Cancer is a faith-based, non-profit organization passionate about helping Central Ohio cancer patients SUCCEED on their ROAD TO RECOVERY through Awareness, Emotional Support and Financial Relief.

We strive to educate low-to-moderate income men and women, especially those aged 18-45 in Central Ohio, of the importance of performing monthly self exams, early detection, seeking treatment immediately and gaining awareness.

We are an information resource for those who have been diagnosed with cancer or for those who provide support for a family member or friend while in treatment.

We support those diagnosed, through individual and group contact, with a 24 hour support network of individuals from various walks of life, willing to listen, attend treatment and help them understand the battle they face.

We offer various solutions to financial challenges individuals in treatment face as a result of seeking treatment or providing care for a family member.

Contact information: 
PO Box 307133 Columbus OH 43230 phone: 614-808-4447 info@christiansovercomingcancer.com

Fighting Cancer with the Help of Your Catholic Faith

Type: 
Book
Description: 

Very helpful book for me. I wish I had this book right after I found out about my cancer, but found it even more helpful after I found it. It does help me as I talk to others about what I am going through. The book is true by it saying that Cancer is a lonely disease. It is but with the help of this book. I learned to find peace with my illness and accepting cancer is a little easier even though I have still have fears of it coming back. I feel I can accept it if it chooses to come back.

Source: 
Our Sunday Visitor Publishing Division
Author/Speaker/Performer: 
Lorene Hanley Duquin
Publish date: 
2005

Pages