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Cancer Family Care

Type: 
Organization
Description: 

Cancer Family Care is a great organization available to help cancer patients and their families. They have been a great help for me in providing counseling service to work through the emotional baggage I haven't been able to face alone and in helping me get back on my feet. Additionally, I can't believe how much knowledge they have and I'm getting help figuring out medical care, testing I have not been able to afford in two years, help navigating the disabiltiy system and overall support. I wouldn't survive without them.

The Wellness Community

Type: 
Organization
Description: 

The Wellness Community is a wonderful resource to help cancer patients and their families. They offer may wonderful free meetings and classes to help work through the emotional stuff and learn to cope. I wish I could do something big to support them and return the favor of all they have done to support my journey.

If you need help, this is a wonderful place to begin! They are a national organization with locations in many cities.

CancerCare

Type: 
Organization
Contact information: 
Woodbury 11797

Hand-foot syndrome help

Type: 
Article
Description: 

Colon and breast cancer patients who take Xeloda know the side effect Hand-Foot Syndrome (HFS) or Palmar-Plantar Erythrodysesthesia (PPE). A study at a university in Turkey looked at the use of henna in treating PPE. This webpage tells you how to use it. Reference to the Turkish study is given.

Source: 
Webpage
Author/Speaker/Performer: 
Monique Doyle Spencer

ReForma

Type: 
Web site
Description: 

Three years ago, Plastic Surgeon Luis A. Vinas, MD, FACS, stood in his plastic surgery center and listened to an anxious breast reconstruction patient ask him the same question that other patients had asked when they viewed what had been their nipple area:
“Doctor, isn’t there something that can make my breast whole again?”

All that was available was the option of nipple reconstruction. But the results of nipple reconstruction, no matter how skilled the surgeon, were often poor.

Dr. Vinas put together a focus group of breast cancer survivors. Their goal: to help create a beautiful and practical prosthetic nipple that they would want to wear. The prosthetic nipple had to be as lifelike as possible. It had to be thin, resilient, hypo allergenic, and self-adhering. It had to be translucent so a woman’s skin tone would blend in with the nipple’s coloration for a perfect match. It had to mold perfectly to the contours of a woman’s breast for a natural look. And it had to be reusable so women could afford it.

A whole new manufacturing process was developed to give the nipple the natural look and feel that the patients desired. One of the very first women to try ReForma thanked us for our long task with words that will always stay with our company: “for the first time in ten years, I feel whole again.”

Living Conversations

Type: 
Web site
Description: 

Living Conversations is a celebration of breast cancer survival.

Through the stories of women who are now on the other side of their breast cancer diagnosis and treatment, the site offers hope, inspiration and courage for the many women, family members and network of supporters, affected by this disease.

Living Conversations is a social site where survivors can share their stories through text, photos and videos, and connect with each other. We support the Catalyst for the Cure breast cancer research project at Dana Farber Cancer Institute.

Barnsie's picture

WebMagic Hodgkin's Support Forums

Type: 
Web site
Description: 

This board is dedicated solely to Hodgkin's Lymphoma survivors and caregivers. It has a very active community, and lots of information on the disease, treatments (both conventional and trials), as well as support in getting through this!

There is also a Non-Hodgkin's forum here as well.

meucat's picture

Father's Love Letter

Type: 
Web site
Description: 

If you are feeling out of sorts, depressed, alone, unloved please take the time to check this site out and watch the video to find out how much you are loved :)

click on Watch Father's Love Letter Videos (middle), sit back and enjoy!

gdpawel's picture

Weisenthal Cancer Group

Type: 
Web site
Description: 

In 2006, Medicare officially recognized cancer chemosensitivity tests as a special test category in Federal Regulations (42 CFR 414.510(b)(3), 71 FR 69705, 12/01/2006). The are now known as Oncologic In Vitro Chemoresponse Assays.

As with any other laboratory tests in cancer medicine, the determination of the efficacy of chemoresponse assays is based on clinical correlations (comparisions of laboratory results with patient response). The "standard" of retrospective correlations between treatment outcomes and laboratory results is sufficient in the case of ALL laboratory tests. It is what established FDA-approval for the test kit.

The decision had been made that the assay is a perfectly appropriate medical service, worthy of coverage on a non-investigational basis. What is of particular significance is that they abandoned the artificial distinction between "resistance" testing and "sensitivity" testing and are providing coverage for the whole FDA-approved kit. Drug "sensitivity" testing is merely a point a little farther along on the very same continuum which "resistance" testing resides.

Cell-based assay tests based on "cell-death" have proven very effective in identifying novel treatment combinations for a variety of cancers. The value of cell-death assays is that they can and do accurately predict clinical outcomes and define novel chemotherapeutic synergies. It can help see what treatments will not have the best opportunity of being successful (resistant) and identify drugs that have the best opportunity of being successful (sensitive).

The current clinical applications of in vitro chemoresponse testing is ever more important with the influx of new "targeted" therapies. Given the technical and conceptual advantages of "functional profiling" of cell-based assays together with their performance and the modest efficacy for therapy prediction on analysis of genome expression, there is reason for renewed interest in these assays for optimized use of medical treatment of malignant disease.

This bio-marker pre-test can help see what treatments have the best opportunity of being successful for "high" risk cancer patients. The test measures the response of "live" tumor cells to drug exposure. Following this exposure, the assays measure both cell metabolism and cell morphology (functional profiling). The integrated effect of the drugs on the whole cell, resulting in a cellular response to the drug, measuring the interaction of the entire genome. Assays based on "cell-death" occur in the entire population of tumor cells.

This cell-based assay technology has been clinically validated for the selection of optimal chemotherapy regimens for individual patients. It is a laboratory analysis based on tumor tissue profiling that uses "fresh" human tumor biopsy or surgical specimen to determine which drugs or combinations of chemotherapeutic agents have the highest likelihood of response for individual cancer patients.

Following the collection of "fresh" tumor cells obtained from surgery or tru-cut needle biopsies, a cell culture assay is performed on the tumor sample to measure drug activity (sensitivity and resistance). This will pinpoint which drug(s) are most effective. Tissue, blood, bone marrow, and ascites and pleural effusions are possibilities, providing tumor cells are present. At least one gram of fresh tissue is needed to perform the tests, and a special kit is obtained in advance from the lab. The treatment program developed through this approach is known as assay-directed therapy.

SweetyNica's picture

Colorectal Cancer Coalition

Type: 
Organization
Description: 

C3: Colorectal Cancer Coalition is a national, nonpartisan organization whose mission is to win the fight against colorectal cancer through research, empowerment and access.

Contact information: 
1225 King Street, 2nd floor Alexandria VA 22314 phone: 703-548-1225 info@fightcolorectalcancer.org

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