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Living Conversations

Type: 
Web site
Description: 

Living Conversations is a celebration of breast cancer survival.

Through the stories of women who are now on the other side of their breast cancer diagnosis and treatment, the site offers hope, inspiration and courage for the many women, family members and network of supporters, affected by this disease.

Living Conversations is a social site where survivors can share their stories through text, photos and videos, and connect with each other. We support the Catalyst for the Cure breast cancer research project at Dana Farber Cancer Institute.

Barnsie's picture

WebMagic Hodgkin's Support Forums

Type: 
Web site
Description: 

This board is dedicated solely to Hodgkin's Lymphoma survivors and caregivers. It has a very active community, and lots of information on the disease, treatments (both conventional and trials), as well as support in getting through this!

There is also a Non-Hodgkin's forum here as well.

meucat's picture

Father's Love Letter

Type: 
Web site
Description: 

If you are feeling out of sorts, depressed, alone, unloved please take the time to check this site out and watch the video to find out how much you are loved :)

click on Watch Father's Love Letter Videos (middle), sit back and enjoy!

gdpawel's picture

Weisenthal Cancer Group

Type: 
Web site
Description: 

In 2006, Medicare officially recognized cancer chemosensitivity tests as a special test category in Federal Regulations (42 CFR 414.510(b)(3), 71 FR 69705, 12/01/2006). The are now known as Oncologic In Vitro Chemoresponse Assays.

As with any other laboratory tests in cancer medicine, the determination of the efficacy of chemoresponse assays is based on clinical correlations (comparisions of laboratory results with patient response). The "standard" of retrospective correlations between treatment outcomes and laboratory results is sufficient in the case of ALL laboratory tests. It is what established FDA-approval for the test kit.

The decision had been made that the assay is a perfectly appropriate medical service, worthy of coverage on a non-investigational basis. What is of particular significance is that they abandoned the artificial distinction between "resistance" testing and "sensitivity" testing and are providing coverage for the whole FDA-approved kit. Drug "sensitivity" testing is merely a point a little farther along on the very same continuum which "resistance" testing resides.

Cell-based assay tests based on "cell-death" have proven very effective in identifying novel treatment combinations for a variety of cancers. The value of cell-death assays is that they can and do accurately predict clinical outcomes and define novel chemotherapeutic synergies. It can help see what treatments will not have the best opportunity of being successful (resistant) and identify drugs that have the best opportunity of being successful (sensitive).

The current clinical applications of in vitro chemoresponse testing is ever more important with the influx of new "targeted" therapies. Given the technical and conceptual advantages of "functional profiling" of cell-based assays together with their performance and the modest efficacy for therapy prediction on analysis of genome expression, there is reason for renewed interest in these assays for optimized use of medical treatment of malignant disease.

This bio-marker pre-test can help see what treatments have the best opportunity of being successful for "high" risk cancer patients. The test measures the response of "live" tumor cells to drug exposure. Following this exposure, the assays measure both cell metabolism and cell morphology (functional profiling). The integrated effect of the drugs on the whole cell, resulting in a cellular response to the drug, measuring the interaction of the entire genome. Assays based on "cell-death" occur in the entire population of tumor cells.

This cell-based assay technology has been clinically validated for the selection of optimal chemotherapy regimens for individual patients. It is a laboratory analysis based on tumor tissue profiling that uses "fresh" human tumor biopsy or surgical specimen to determine which drugs or combinations of chemotherapeutic agents have the highest likelihood of response for individual cancer patients.

Following the collection of "fresh" tumor cells obtained from surgery or tru-cut needle biopsies, a cell culture assay is performed on the tumor sample to measure drug activity (sensitivity and resistance). This will pinpoint which drug(s) are most effective. Tissue, blood, bone marrow, and ascites and pleural effusions are possibilities, providing tumor cells are present. At least one gram of fresh tissue is needed to perform the tests, and a special kit is obtained in advance from the lab. The treatment program developed through this approach is known as assay-directed therapy.

SweetyNica's picture

Colorectal Cancer Coalition

Type: 
Organization
Description: 

C3: Colorectal Cancer Coalition is a national, nonpartisan organization whose mission is to win the fight against colorectal cancer through research, empowerment and access.

Contact information: 
1225 King Street, 2nd floor Alexandria VA 22314 phone: 703-548-1225 info@fightcolorectalcancer.org
marciamarsted's picture

Capelli d'Angeli Foundation

Type: 
Web site
Description: 

The website shows the work of "Women Artists With Cancer" who have participated in Juried Art Shows run by the foundation, or have received grants from the Foundation, or have participated in Foundation Art Shows. Each artist has a number of slides on view and her personal information and website listed and linked.

Each artist also has an essay describing how her art helped her deal with her cancer. These essays are testimony to the effectiveness of art in the treatment and long-term well-being of cancer survivors.

zzLeahzz's picture

ThyCa: Thyroid Cancer Survivor's Association

Type: 
Web site
Description: 

A great website for anyone who is trying to find updated information on thyroid cancer.

TY2HC's picture

Too Young To Have Cancer

Type: 
Web site
Description: 

This site is for survivors, family/friends, or any one with questions about cancer. People are welcome to share their stories for other people to view and learn from. I have an area set up for people to submit their stories to me and I will post them. I set up the site to give people a real life look at how Cancer affects peoples lives. When I was diagnosed there weren't a lot of resources out there that gave people at how Cancer affects people's lives.

TY2HC's picture

Too Young To Have Cancer

Type: 
Web site
Description: 

I started this site to give people a place to share their stories and to provide help to those that have questions about how Cancer affects your life. When I was diagnosed with Cancer there weren't alot of resources that gave you a real life perspective on how Cancer affects your life. When I went in for my pre-op appointment my surgeon said that I was too young to have Cancer. My response was "is there an age that it is ok to have Cancer?" I named my site Too Young to Have Cancer because of this. Cancer does not discriminate based on age!

btcat's picture

Inner Cook

Type: 
Web site
Description: 

this is the web site for the author of "One Bite at a Time", a cookbook of healthy yummy recipes for cancer patients. In the May 2007 issue of Guideposts magazine, where I got this information, it said that the author,Rebecca Katz, was writing a follo-up book, so you may find out about that at the website.

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