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Member Resource Library

The Center for Patient Partnerships

Type: 
Organization
Description: 

The Center for Patient Partnerships is a nationalresource for strengthening the consumer perspective in health care and building more effective partnerships among patients, providers, and other stakeholders. One of the Center's primary functions is to help patients with cancer and other serious or chronic diseases make informeddecisions and get the care they need - acting in partnership with health care providers.

Contact information: 
975 Bascom Mall, Suite 4311 Madison, WI mgaines@facstaff.wisc.edu
mwwolfgram's picture

Cathy's EC Cafe

Type: 
Web site
Description: 

A web site dedicated to Esophageal Cancer, providing many resources, anectdotal information, survivor stories and more.

clynch's picture

WebWhispers

Type: 
Web site
Description: 

Online support group for Laryngectomees

hpydncr's picture

R.A. Bloch Cancer Foundation, Inc.

Type: 
Organization
Description: 

A hot line for talking with a survivor, obtaining educational material, referrals to health agencies, how to obtain second opinions, referrals to support groups, how to obtain a PDQ

Contact information: 
4410 Main Street Kansas City, MO. hotline@hrblock.com
clynch's picture

International Association of Laryngectomees

Type: 
Web site
Description: 

Web presence of International Association of Laryngectomees, lots of good links.

Lung Cancer Online

Type: 
Web site
Description: 

Comprehensive directory to lung cancer information and resources for patients and families.

The Oral Cancer Foundation

Type: 
Web site
Description: 

A non profit organization dedicated to expanding the awreness of oral cancer and its risks in the minds of both the public and dental/medical communities

A.P. John Institute for Cancer Research

Type: 
Organization
Description: 

An informational website dedicated to the continued research, publication, and distribution of proven scientific information on the prevention, causation and treatment of cancer. To continue to help doctors and the general public become aware of integrative bio-nutritional protocols that either work alone or with chemotherapy and/or radiation therapy to enhance their benefits while reducing their toxic side effects.

The Breast Care Site

Type: 
Web site
Description: 

This site will offer breast cancer survivors, their families and friends support, advice and information to improve their lives after breast cancer. The site launch is expected October 2001. I am writing to request that you place a link to www.TheBreastCareSite.com on your webpage. Please let me know at gacw@coloplast.com.

gbambach's picture

Thyca: Thyroid Cancer Survivors Association

Type: 
Web site
Description: 

This web site has been created and is maintained by thyroid cancer survivors. Since October 1995, we have been developing a network of programs that will link survivors and healthcare professionals around the world. Our mission is simple: To Educate, so we and our families better understand our disease.To Participate, so others learn from our experience.To Communicate, so we and our health care professionals better understand each others' needs.

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