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DFSP resource page

Type: 
Web site
Description: 

this is my website for the rare cancer I have. It is my 2nd primary cancer.

Contact information: 
rpipergirl@verizon.net
Author/Speaker/Performer: 
Angelina Wilson
Publish date: 
October 31,2010
TomK's picture

Bob's story

Type: 
Article
Lori-S's picture

Patient Advocate Foundation

Type: 
Organization
Description: 

Patient Advocate Foundation (PAF)
They have a great colorectal division created just for us. Their advocare managers are caring, efficient and very helpful.

Have Walked In Your Shoes's picture

Nasal Cancer

Type: 
Web site
Description: 

http://nasalcancer.webs.com/

A webpage we put together to help newly diagnosed nasal cancer patients.

Source: 
caregiver and survivor of nasal cancer, squamous cell
Author/Speaker/Performer: 
PJ Jordan, wife & caregiver
Publish date: 
October 2010

The Complete Thyroid Book

Type: 
Book
Description: 

This doctor is a leading expert in some of the more difficult thyroid cancers but also has findings in regards to Papillary thyroid cancer. Stating that RAI doses are NOT high enough initially and what this is doing is helping the cancer to become "immune." Thinking of it like someone taking too many antibiotics which ultimately results in higher tolerant diseases.

He argues against the concept that there is a lifetime limit of RAI and has given doses as high as 600-900 for people with lung mets like myself. He says it's important to find someone who will perform I-131 dosimetry which is a method used to find out what the highest dose an individual can tolerate without harming their bone marrow.

He is no longer taking new patients and I'm currently looking into other doctors who believe this same principle.

He is:
Director Thyroid Oncology Program University of Kentucky
Division of Endocrinology & Molecular Medicine
Director of Thyroid Cancer Research Lab

Contact information: 
He answers questions online at yahoo groups.
Author/Speaker/Performer: 
Dr Kenneth Ain

Cancer Chemotherapy

Type: 
Web site
Description: 

Information about chemotherapy, and how it can be used as a medicine for the treatment for cancer. Also provides help on various types of chemotherapy treatments available in the forms of chemo drugs.

matthewcplourde's picture

Matt's Blog

Type: 
Web site
Description: 

My Blog

Author/Speaker/Performer: 
Matthew C. Plourde
LynnLuc's picture

ICAN - International Cancer Advocacy Network

Type: 
Organization
Description: 

This org has helped me get in contact with the clinical trial people, called on my behalf when they were dragging their feet, helped me find the oncologists who know melanoma best. These folks are like my family and help me through the bad times and good.

ICAN fights for the lives of late-stage cancer patients by helping to manage the complexities of their disease with cutting-edge information services, physician referrals (at the patient's request), and the most relevant resources to be found anywhere.

Contact information: 
E-mail (other than Patient Inquiries): contact@askican.org Phone: (602) 861-9642 Fax: (602) 926-8109 Mail: 27 West Morten Avenue, Phoenix, AZ 85021-7246 For Patient Inquiries, patients must email ProgramServices@askican.org with the email's subject/title saying Patient Inquiry: (Specify the Cancer)
LynnLuc's picture

My Melanoma Website~ by Lynn

Type: 
Web site
Description: 

My personal website documenting my life with melanoma..

Contact information: 
lynn@gentlewinds.org
Author/Speaker/Performer: 
Lynn

Cellular Wisdom for Women

Type: 
Book
Description: 

A wonderful book that empowers women to rediscover their dreams, especially the BIG ones from childhood that sit forgotten in the corner today. The book is an excellent resource, especially during challenging times.

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