My journey documented via video. I hope this can help anyone who is beginning their journey and wonder what it's going to be like.
this is my website for the rare cancer I have. It is my 2nd primary cancer.
Patient Advocate Foundation (PAF)
They have a great colorectal division created just for us. Their advocare managers are caring, efficient and very helpful.
A webpage we put together to help newly diagnosed nasal cancer patients.
This doctor is a leading expert in some of the more difficult thyroid cancers but also has findings in regards to Papillary thyroid cancer. Stating that RAI doses are NOT high enough initially and what this is doing is helping the cancer to become "immune." Thinking of it like someone taking too many antibiotics which ultimately results in higher tolerant diseases.
He argues against the concept that there is a lifetime limit of RAI and has given doses as high as 600-900 for people with lung mets like myself. He says it's important to find someone who will perform I-131 dosimetry which is a method used to find out what the highest dose an individual can tolerate without harming their bone marrow.
He is no longer taking new patients and I'm currently looking into other doctors who believe this same principle.
Director Thyroid Oncology Program University of Kentucky
Division of Endocrinology & Molecular Medicine
Director of Thyroid Cancer Research Lab
Information about chemotherapy, and how it can be used as a medicine for the treatment for cancer. Also provides help on various types of chemotherapy treatments available in the forms of chemo drugs.
This org has helped me get in contact with the clinical trial people, called on my behalf when they were dragging their feet, helped me find the oncologists who know melanoma best. These folks are like my family and help me through the bad times and good.
ICAN fights for the lives of late-stage cancer patients by helping to manage the complexities of their disease with cutting-edge information services, physician referrals (at the patient's request), and the most relevant resources to be found anywhere.