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Member Resource Library

The Center for Patient Partnerships

Type: 
Organization
Description: 

The Center for Patient Partnerships is a nationalresource for strengthening the consumer perspective in health care and building more effective partnerships among patients, providers, and other stakeholders. One of the Center's primary functions is to help patients with cancer and other serious or chronic diseases make informeddecisions and get the care they need - acting in partnership with health care providers.

Contact information: 
975 Bascom Mall, Suite 4311 Madison, WI mgaines@facstaff.wisc.edu
hpydncr's picture

R.A. Bloch Cancer Foundation, Inc.

Type: 
Organization
Description: 

A hot line for talking with a survivor, obtaining educational material, referrals to health agencies, how to obtain second opinions, referrals to support groups, how to obtain a PDQ

Contact information: 
4410 Main Street Kansas City, MO. hotline@hrblock.com

A.P. John Institute for Cancer Research

Type: 
Organization
Description: 

An informational website dedicated to the continued research, publication, and distribution of proven scientific information on the prevention, causation and treatment of cancer. To continue to help doctors and the general public become aware of integrative bio-nutritional protocols that either work alone or with chemotherapy and/or radiation therapy to enhance their benefits while reducing their toxic side effects.

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Stephen T. Marchello Scholarship Foundation

Type: 
Organization
Description: 

Scholarships for survivors of childhood cancer. Has links to other web sites that give scholarships to cancer survivors.

Contact information: 
1170 E. Long Place Littleton, CO fmarchello@ntr.net

Adenoid Cystic Carcinoma Foundation

Type: 
Organization
Description: 

A not-for-profit group formed to help people with adenoid cystic carcinoma, a very rare cancer. We have a network of over 400 members throughout the world. If you need support or information; please email, phone, or write us.

Contact information: 
PO Box 254 Canandaigua NY sharon.lane@mail.acor.org

The Kimberly D. Holland Hodgkin's Disease Foundation

Type: 
Organization
Description: 

This website details a Hodgkin's Disease survivors story and the foundation that was formed in her name to fund clinical trials and research for Hodgkin's Disease

Contact information: 
9 Lakeshore Blvd. Massapequa, NY hollandhead@yahoo.com

Alliance for Lung Cancer Advocacy, Support, and Education

Type: 
Organization
Description: 

The Alliance for Lung Cancer Advoacy, Support and Education (ALCASE) is the only nonprofit organization dedicated solely to helping people at risk for and living with lung cancer. We offer many programs and services to those newly diagnosed with lung cancer and their families.

Contact information: 
P.O. Box 849 Vancouver, fax: 360-735-1305 info@alcase.org

Colon Cancer Alliance (CCA)

Type: 
Organization
Description: 

To help and provide support for survivors, caregivers and friends affected by colon cancer.

Hoosier Oncology Group

Type: 
Organization
Description: 

Investigator initiated clinical research group dedicated to providing cutting edge research in common cancers to community oncologists. There should be no reason cancer patients cannot receive the same innovative treatments offered at large medical centers in their own communities

Contact information: 
3266 N. Meridian Street #902 Indianapolis fax: 317-921-2053 jfrench@walther.org

The National Brain Tumor Society

Type: 
Organization
Description: 

The Brain Tumor Society exists to find a cure for brain tumors. It strives to improve the quality of life of brain tumor patients and their families. It disseminates educational information and provides access to psycho-social support. It raises funds to advance carefully selected scientific research projects, improve clinical care and find a cure.Our Research MissionAggressively raise and grant funds to stimulate and support carefully selected basic scientific research projects.Our Education MissionTo help educate the medical community, patients and families about brain tumors; to raise public awareness; to facilitate early diagnosis and treatment, and to effect a cure.Our Support MissionThe Brain Tumor Society will be involved in support issues to help patients and families better deal with the catastrophic problem of a brain tumor.

Contact information: 
124 Watertown Street, Suite 3-H Watertown, MA fax: (617) 924-9998 info@tbts.org
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