Patient Advocate Foundation (PAF)
They have a great colorectal division created just for us. Their advocare managers are caring, efficient and very helpful.
This org has helped me get in contact with the clinical trial people, called on my behalf when they were dragging their feet, helped me find the oncologists who know melanoma best. These folks are like my family and help me through the bad times and good.
ICAN fights for the lives of late-stage cancer patients by helping to manage the complexities of their disease with cutting-edge information services, physician referrals (at the patient's request), and the most relevant resources to be found anywhere.
The “Voices of Survivors Foundation” is devoted to exploring what ‘Survivorship’ means to the individual ‘Survivor’, whether they are recently diagnosed, in-treatment or post-treatment, in a variety of documentary formats. Each ‘Survivor’ helps define what this means to not only themselves, but also gives insight to others who are on this journey as well, either as a ‘Survivor’ or a ‘Co-Survivor’.
The face of cancer is one that has been portrayed as that of only older people or children for so long, but that face is not reflective of whom cancer truly affects. It affects us all! We become a ‘Survivor’ when we first hear those three words: “You have cancer.”
At that moment, your ‘Survivorship’ begins and you are not alone. Each and every ‘voice’ shared can mean so much to so many and touch even more. Stand up, be heard!
iy exists to ensure that every young adult affected by cancer is given access to the best age-appropriate support they are entitled to in order to get busy living at every stage of their survivorship.
its a type of rare cancer
Great source of info, outings, support groups for young adults with cancer.
non-profit organization founded by Bill Kubicek for survivors of cancer and other rare diseases and their families. creates awesome weekend retreats for challenging oneself, offering respite and information to self and caregivers, and just being.
Lance Armstrong Foundation
Oral Cancer Foundation
More to come: