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Ovarian Cancer Support Group via Toll-Free Telephone

Type: 
Support groups
Description: 

Women diagnosed with ovarian cancer are invited to participate in free telephone support groups the second Wednesday of every month at 8:00 PM Eastern Time. All groups are facilitated by an ovarian cancer survivor.

The groups are offered as a free service by Support Connection. Advance registration is required. Please call 914-962-6402, or toll-free at 800-532-4290, to register and receive instructions on how to participate.

To learn more about the free services and programs offered by Support Connection, visit us on the web at http://supportconnection.org.

My Careful, Joyful Life...after cancer

Type: 
Web site
Description: 

Hello Community,
October 11th will mark 2 years since my stage 2B breast cancer diagnosis. In the last year I've spent a lot of time thinking about what kind of survivor I want to be and putting my professional experience as a researcher/writer and yoga teacher to work developing strategies to prevent a reoccurrence and deal with the fall out from chemo, radiation, surgery, lymphodema, and reconstruction. I started a blog to help myself stay on track and provide a resource for other survivors. I would be so honored to hear what other survivors thought about it. Please visit and comment if you can and pass on to anyone else you think it might help. I'm sure many of you can understand how much the project means to me. I had such a hard time finding resources that were valid, geared towards a younger audience, and didn't upset me once I got to the other side of treatment and really dove in. The resource I've tride to create is my solution to that. The blog web address is carefuljoyful.com the blog is called My Careful, Joyful Life...after cancer.

Source: 
www.carefuljoyful.com
Contact information: 
sszeglowski@gmail.com
Author/Speaker/Performer: 
Sara Szeglowski
spotmany's picture

We are Alive ... Period!

Type: 
Support groups
Description: 

Come meet us! We are 5, 8, 10+ year long-term cancer survivors. Nobody in the world understands better than we do - where you are & what you need. Learn from long-term survivors. If we can do it, so can you!

Long-term cancer survivors (LTCS) mystify the medical profession because they don’t know how to duplicate the results. 

Motivational theory behind our group - On May 6, 1954, Roger Bannister broke the 4 minute mile. That meant he ran 1,760 yards in under 4 minutes. Prior to that date, for thousands of years, people tried to push themselves to run as fast as possible. Experts suggested that the human body had limitations; that we had found the limits of the body and could not expect to achieve a 4 minute mile. Yet, in 1940 the mile record was set and held at 4:01 for nine years...until Bannister came along. Once Bannister broke the 4 minute mile, others began to run under 4 minutes as well. Bannister held the record for only 46 days. Today it is common place for professional runners to run a mile under 4 minutes. What happened to the expert’s theory of our body’s limitations?

So here's the deal, since others have survived a high risk and at times a late stage cancer such as ovarian cancer, could we begin to look at their examples of survival as our own possibility? Could we begin to make survival as commonplace as breaking the 4 minute mile? Would you agree that the simple act of observing and interacting with long-term survivors is worth a try? If you were faced with the grim statistics of cancer, would you want to know that someone has overcome these grim statistics? Don't you want to become a stat-buster by outliving cancer?

We meet monthly, 4th Wednesday of each month, at a tea house, Zen Tea in Chamblee, Georgia and we are making things happen to grow to more locations too! This group is different than anything that has ever been done before...it's all about long-term survivors - letting all cancer patients know and see that long-term cancer survivors do exist. Our motto is "If we can do it, then so can you."

Contact information: 
spotmany@gmail.com
Publish date: 
July 2013

Cervical Cancer Survivor Stories and Information

Type: 
Web site
Contact information: 
You may contact Lisa for information
Alexandra's picture

Smart Patients

Type: 
Web site
Description: 

Smart Patients is a website where cancer patients and caregivers can learn from each other about treatments, clinical trials, the latest science, and how it all fits into the context of their experience. At Smart Patients, the term “patients” includes family members and friends, patient advocates, and survivors who use the website on behalf of patients. They are all part of the patient community.

It is currently focusing on cancer, because patients with different cancers can learn a lot from each other, especially when they are taking similar drugs, have similar complications, etc. Cancer, treatments and side effects, where to find help, how to cope with disease, clinical trials, research into disease and treatments, prevention, recurrence, end of life, grieving, and related topics are all important topics members can help each other with.

Texas_wedge's picture

Useful sites

Type: 
Article
Description: 

Submitted by Texas_wedge on Tue, 09/04/2012 - 2:46am

In default of better structure in the CSN, I'm storing here references to earlier threads of particular value. [Perhaps I can organise these a bit later to channel research most effectively.]

Sun, 09/23/2012 - 8:28am
IL2 side effects and coping etc and sundry other topics

"Interleukin-2 treatments for Stage 4 RCC" at http://csn.cancer.org/node/202594

2012 paper summarising current treatment options at

http://www.cancernetwork.com/rcc/content/article/10165/2044903

and a brief exchange about trial qualification criteria on

http://csn.cancer.org/node/239205

PhillieG's picture

Fight Colorectal Cancer

Type: 
Organization
Description: 

Not to knock THIS site at all, it provides a VERY important service as far as interactive support but the Fight Colorectal Cancer Website is very informative. Links on what WE can do as far as being our own advocates to get more funding for research.

breastcancer.org

Type: 
Web site
Description: 

Website that has informational pages on breast cancer, and discussion board forums divided into categories. I use this on a lot for post mastectomy pain, LE, DCIS, and Mastectomy without reconstruction.
I highly recommend anyone new read the informational about cancer and breast cancer.

Sooze3821's picture

Small Cell Cancer (Non-Lung ) People with all types of cancer are welcome.

Type: 
Web site
Description: 

Another place to chat with others. Share ideas and interesting articles. We are collecting a lot of information, please stop by.

rickoshea711's picture

Bikers Against Cancer

Type: 
Web site
Description: 

www.bikersagainstcancer.org

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