Come meet us! We are 5, 8, 10+ year long-term cancer survivors. Nobody in the world understands better than we do - where you are & what you need. Learn from long-term survivors. If we can do it, so can you!
Long-term cancer survivors (LTCS) mystify the medical profession because they don’t know how to duplicate the results.
Motivational theory behind our group - On May 6, 1954, Roger Bannister broke the 4 minute mile. That meant he ran 1,760 yards in under 4 minutes. Prior to that date, for thousands of years, people tried to push themselves to run as fast as possible. Experts suggested that the human body had limitations; that we had found the limits of the body and could not expect to achieve a 4 minute mile. Yet, in 1940 the mile record was set and held at 4:01 for nine years...until Bannister came along. Once Bannister broke the 4 minute mile, others began to run under 4 minutes as well. Bannister held the record for only 46 days. Today it is common place for professional runners to run a mile under 4 minutes. What happened to the expert’s theory of our body’s limitations?
So here's the deal, since others have survived a high risk and at times a late stage cancer such as ovarian cancer, could we begin to look at their examples of survival as our own possibility? Could we begin to make survival as commonplace as breaking the 4 minute mile? Would you agree that the simple act of observing and interacting with long-term survivors is worth a try? If you were faced with the grim statistics of cancer, would you want to know that someone has overcome these grim statistics? Don't you want to become a stat-buster by outliving cancer?
We meet monthly, 4th Wednesday of each month, at a tea house, Zen Tea in Chamblee, Georgia and we are making things happen to grow to more locations too! This group is different than anything that has ever been done before...it's all about long-term survivors - letting all cancer patients know and see that long-term cancer survivors do exist. Our motto is "If we can do it, then so can you."
Using a patented laboratory test, they have discovered a new cell death pathway in endothelial cells which is referred to as Massively Calcified Endosomal Death (MCED). Exploitation of this pathway may afford an effective approach to the treatment of cancer and to the prevention and treatment of atherosclerotic vascular disease, heart attack, and stroke.
I had been living uninsured (and untreated) with Kidney Cancer since October 2007. In April 2014, after recently obtaining medical coverage, I was diagnosed with Malignant Melanoma of the Choroid (Ocular Melanoma) and my left eye was surgically removed (enucleation). Pieces of Kristy is about me, my journey with Kidney Cancer and Ocular Melanoma and everything in between.
Smart Patients is a website where cancer patients and caregivers can learn from each other about treatments, clinical trials, the latest science, and how it all fits into the context of their experience. At Smart Patients, the term “patients” includes family members and friends, patient advocates, and survivors who use the website on behalf of patients. They are all part of the patient community.
It is currently focusing on cancer, because patients with different cancers can learn a lot from each other, especially when they are taking similar drugs, have similar complications, etc. Cancer, treatments and side effects, where to find help, how to cope with disease, clinical trials, research into disease and treatments, prevention, recurrence, end of life, grieving, and related topics are all important topics members can help each other with.
I highly suggest that people look at this site to learn the basics of cancer, their particular type of cancer. It will help you out immensely!!!
Ohhh my mum loved this song! It was played at her funeral but beyond that i have MANY happy memories of doing the Irish quick step with her to this....in fact we danced to this in my kitchen on the day we decided which chemo treatment my mum was to have....we loved to dance with each other and laugh always through everything....I'm working on being happy when I hear this song...sometimes I even manage it!
Submitted by Texas_wedge on Tue, 09/04/2012 - 2:46am
In default of better structure in the CSN, I'm storing here references to earlier threads of particular value. [Perhaps I can organise these a bit later to channel research most effectively.]
Sun, 09/23/2012 - 8:28am
IL2 side effects and coping etc and sundry other topics
"Interleukin-2 treatments for Stage 4 RCC" at http://csn.cancer.org/node/202594
2012 paper summarising current treatment options at
and a brief exchange about trial qualification criteria on