Adult Survivors of Childhood Burkitts from 80s

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BurkittsSurvivor79
BurkittsSurvivor79 Member Posts: 5
edited March 2018 in Lymphoma (Hodgkin and Non-Hodgkin) #1

Hello, I am a 38 y/o female survivor of childhood Burkitts (Early ‘80s). I’m  looking for other survivors from this time period. Im not suffering from very adverse effects but also not doing very well in general. Hurting all the time, getting worse over the years. A lot of non-cardiac chest pain (but had full cardiac workup). Also Thyroid Cancer in 2006. I had less radiation but more chemotherapy.  

Please feel free to message me  

 

Looking to share experience and for support. 

 

-A

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  • Evarista
    Evarista Member Posts: 336 Member
    edited March 2018 #2
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    Adult survivors program

    Hi there.  Are you aware of this program?  https://scholars.duke.edu/display/gra231800.  We we lucky to have the lead doctor for this program as our family physician for a bunch of years before he focused on Adult Survivors of Pediatric Cancers.  Maybe reach out to this group and see what might be available in your area? Good luck with it.

  • BurkittsSurvivor79
    BurkittsSurvivor79 Member Posts: 5
    #3
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    Evarista said:

    Adult survivors program

    Hi there.  Are you aware of this program?  https://scholars.duke.edu/display/gra231800.  We we lucky to have the lead doctor for this program as our family physician for a bunch of years before he focused on Adult Survivors of Pediatric Cancers.  Maybe reach out to this group and see what might be available in your area? Good luck with it.

    Yes, I'm a part of the Long

    Yes, I'm a part of the Long Term Follow Up Study. CCSS. They don't let you speak with other survivors, just offer research.

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