TNBC STAGE 4

purl2tog
purl2tog Member Posts: 1
in Breast Cancer #1

In January of 2014 I was diagnosed with TNBC STAGE 3 Grade 3. 4 months of chemo, surgery and radiation. I honestly thought I beat it for good. In Oct of 2016 I had been having terrible pain in my feet and swelling. Thought Ibhad arthritis in my feet. Went to a podiatrist and after MRI of feet it showed metastasis to feet, whichni was told was very rare. Bone scan showed mets to many different bones and CAT scan showed mets to liver, lungs and mediastinum. I stared taxol in Dec going Weekly for treatments For 12 months. Because of mets to feet walking is challenging and it is difficult to stand for more than a few minutes.  Here is my question, I sailed through Chemo the first time This time it has knocked the stuffing out of me  I am so very fatigued but not sleepy, so I don't sleep well.  I can't focus on anything nor am I interested in anything. Since I get treatment every week am I always going to feel like this? My fingernails also turned black and all my nails got infected and were swollen and filled with pus which was extremely painful  An emergency consultation with the dermatologist happened and he put me on Cipro and vinegar and water soaks.  All agree it was due to the taxol so now my fingers and toes are packed in ice before treatment.  Any advice or thoughts would be appreciated  

 

 

Comments

  • 2nu2tnbc
    2nu2tnbc Member Posts: 69 Member
    edited March 2017 #2
    Sorry to hear that you're battling TNBC again! My thoughts yer

    So sorry to hear that you are battling TNBC again.  You are in my thoughts and prayers.   just finished my 9 months of TNBC treatment this month.  Taxol was part of my chemo regimen.  I had the fatigue and then the neuropathy towards the end.  As for the fatigue.  I would just go with it.  Even if I couldn't sleep, I would stop to rest. This help me endure. I'm just curious. What type of chemo  did you have in 2014?  Did you do the neajuvant chemo?

  • ChwaraeTeg
    ChwaraeTeg Member Posts: 10
    #3
    sorry to hear it, husband also TNBC stage IV

    Very sorry to hear your experience, purl2tog.My husband is also stage IV. He was stage III when diagnosed (in lymph nodes under arm) but now back, there and chest and neck. He also sailed through chemo (ACT) then surg (18nodes out) then rad. And now, not four mos post rad, it's back. THey are doing carboplatin + a parp inhibitor (not together, I think carbo then parp)He also thought (and was told) YAY, you beat it!

    But, here we are.

    Hope things go smoothly for you going forward and that you get some relief! I'm also curious about which chemo you did/are on?

     

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