New TO ME!!

Beepositive
Beepositive Member Posts: 259 Member
in Breast Cancer #1

Hello CSN Crew! I call myself BEEpositive and found out I had cancer just a couple months ago! It was like running into a BRICK WALL..on day I going along and then all of a sudden ..life changed!!! it took me a couple of days to myself to wrap my head around it.. i found out Jan 17, 2017 after imaging and a Biopsy that  I requested because of a mass that the mammography did not seem to mention. I have always had dense breast tissue but the one in my left breast seemed different especially since the outside shape of the breast started looking different than the right breast! It was there 6 months ago during my last mamo but doctors say mamo does not pick up everything especially "Invasive Lobular carcinoma  good receptors postive (it appears as a mass and branches out instead of a lump)

so in january my process started completed MRI  Feb completed CT chest scan , pelv scan and bone body scan prior to any surgery. All showed no signs of cancer in those areas ..Thank GOD.

a few weeks ago I had my left breast total mastectomy and started plastic surgery steps at same time Mentor brest tissue Expander. the pathology report showed majority of the lymth nodes had cancer that were removed during surgery.

currently I am seeing plastic surgeon and started brest tissue expander to start eppanding my breast tissue to prepare for the implant later.

working with medical oncology to start best Anti horomone bills

and and have appoint to discuss and schedule radiation treatment.

the doctors are not as positive as i am about everything. to me I feel very blessed to have demanded additional testing and found the cancer in the breast other wise i would have gone another  year without another mamo!

I am still in moderate pain but I am going to go thru this with my head held HIGH and count my blessings!

I am not going to spend my life thinking when..if cancer could come back..thats not living!

I am a very Positive person and have always and will continue to be the one who helps others...thats my motivation and healing!

BEEPositive!!

Comments

  • peony
    peony Member Posts: 306 Member
    #2
    High five, Bee!  Your

    High five, Bee!  Your attitude will serve you well. Welcome.

  • loripeck
    loripeck Member Posts: 5
    #3
    Good for you Bee!

    You go girl!  We have to be our own best advocates and youe attitude is a huge asset.  One thing that helped me tremendously that I still practice to this day, is meditation.  Exercising the mind gives you more control over how you handle what you're facing.  Scientific studies show physical benefits of people that practice on a regular basis as well.  Every little bit helps.  Best of luck to you.

  • Kats2
    Kats2 Member Posts: 126
    edited March 2017 #4
    Hi Bee!

    I'm glad that you insisted that more testing be done when you knew something wasn't right. I'm also glad that you had scans and x-rays before your surgery. That wasn't the case for me. I also have Invasive Lobular BC. No scans were done on me before my lumpectomy. I was put on Arimidex and had 33 radiation treatments. 1  1/2 yrs later the BC was in my bones. So I'm dealing with keeping it there and not have it spread further.

    They say that women with ILBC respond very well to anti-hormone pills. I'm on my 4th one. I wish that I could stay on only one forever, but that's not how cancer works.

    My wish for you is that all your BC is gone! Just make sure that a good Oncologist follows you carefully and that you have blood tests that monitor your BC and also get periodic scans and tests.

    Keep up that wonderful Be Positive outlook!! It really helps! I'm rooting for you!  Kats2

  • Beepositive
    Beepositive Member Posts: 259 Member
    #5
    Thanks for your comments and Information

    Good Morning Crew!  ..BEEpositive here..THANKS TO ALL FOR THE COMMENTS TO ME AND INFORMATION!  TOGETHER WE STAND!! This week I stated some Lymphedema physical Therapy to assist with the swelling under my arm that Dr said happens sometimes several/lot  lymph nodes are removed I cannot lift the affected arm all the way over my head yet feels like a pulling and guitar string if I try and lift arm so far. the Therapist showed me some exercises to do to help get things flowing gradually she also said Radiation sometimes can cause some swelling under arm to (since that is where my radiation treatments will be . meeting with Radiation Oncologist next week to discuss that.  and meet back with med oncologist to see what type of anti Hormone pills I will start on we had to do blood work first to detemine if i am post or menopausal (had partial hysterctomy years ago .still have overies) I think she was telliing there is only on Anti-hormone pill if you are pre-menopausal /memopausal ..post have more?  would love to hear comments on both type anti-hormone pills and how its working for you?  ready to get my Treatments started..may be rough road..put expecting a SAFE Landing.Cool  BEEPOSITIVE!!

  • Beepositive
    Beepositive Member Posts: 259 Member
    edited March 2017 #6
    Kats2 said:

    Hi Bee!

    I'm glad that you insisted that more testing be done when you knew something wasn't right. I'm also glad that you had scans and x-rays before your surgery. That wasn't the case for me. I also have Invasive Lobular BC. No scans were done on me before my lumpectomy. I was put on Arimidex and had 33 radiation treatments. 1  1/2 yrs later the BC was in my bones. So I'm dealing with keeping it there and not have it spread further.

    They say that women with ILBC respond very well to anti-hormone pills. I'm on my 4th one. I wish that I could stay on only one forever, but that's not how cancer works.

    My wish for you is that all your BC is gone! Just make sure that a good Oncologist follows you carefully and that you have blood tests that monitor your BC and also get periodic scans and tests.

    Keep up that wonderful Be Positive outlook!! It really helps! I'm rooting for you!  Kats2

    Thank you

    Thanks for the great information Kats2 ..much success and blessing to you!

  • Beepositive
    Beepositive Member Posts: 259 Member
    edited March 2017 #7
    loripeck said:

    Good for you Bee!

    You go girl!  We have to be our own best advocates and youe attitude is a huge asset.  One thing that helped me tremendously that I still practice to this day, is meditation.  Exercising the mind gives you more control over how you handle what you're facing.  Scientific studies show physical benefits of people that practice on a regular basis as well.  Every little bit helps.  Best of luck to you.

    Thank you

    Hey there Loripeck!  Thanks for the great words... continued success and blessings to you!!!

    BEEpositive!

  • Beepositive
    Beepositive Member Posts: 259 Member
    edited March 2017 #8
    peony said:

    High five, Bee!  Your

    High five, Bee!  Your attitude will serve you well. Welcome.

    Thanks

    Hey there Peony!  positive is the only way to TRAVEL!  thank you! i have sisters and they say i keep them positive. (you know family gets very worried and concerned) any time you say Cancer as i was too when I first found out 2 months ago..but I not going to let it take control..I am going to go thru what I need to and continue to pray and LIVE my life ..just have to take it slow at first and see how the radiation and pills go.  paying it forward and helping other is always the best medicine!!

    BEEpositive!

  • Beepositive
    Beepositive Member Posts: 259 Member
    edited March 2017 #9
    Love you GUYS!! Thanks

    Image result for beach pictures

  • Kats2
    Kats2 Member Posts: 126
    #10
    Anti hormone pills...

    Hi Beepositive,

    My guess is that you'll be put on Ibrance with either Faslodex or Letrozole. That seems to be the first-line drug treatment combination used now. This new drug combo hadn't come out in time for me to get it, so I was put on the older drugs, Arimidex, Tamoxifen, then last of all Faslodex. My BC resisted these drugs so I was put on Xeloda, a chemo pill. I've been on Xeloda now for 21 months. I'm starting to resist it a bit so my dosage had been increased. If my tumor markers continue to climb, I'll be put on Affinator with Aromasin. I was told that Ibrance is out for me now as I've already been on 4 other hormone inhibitors. I've heard good things about Ibrance though. I do believe it's for both pre and post menopausal women. There are many anti- hormone choices out there for you.

    Good luck Beepositive! By the way, I'm post menopausal and have ILBC with mets to bones only.   Kats2

  • Beepositive
    Beepositive Member Posts: 259 Member
    edited March 2017 #11
    Kats2 said:

    Anti hormone pills...

    Hi Beepositive,

    My guess is that you'll be put on Ibrance with either Faslodex or Letrozole. That seems to be the first-line drug treatment combination used now. This new drug combo hadn't come out in time for me to get it, so I was put on the older drugs, Arimidex, Tamoxifen, then last of all Faslodex. My BC resisted these drugs so I was put on Xeloda, a chemo pill. I've been on Xeloda now for 21 months. I'm starting to resist it a bit so my dosage had been increased. If my tumor markers continue to climb, I'll be put on Affinator with Aromasin. I was told that Ibrance is out for me now as I've already been on 4 other hormone inhibitors. I've heard good things about Ibrance though. I do believe it's for both pre and post menopausal women. There are many anti- hormone choices out there for you.

    Good luck Beepositive! By the way, I'm post menopausal and have ILBC with mets to bones only.   Kats2

    Hi Here Kats2! Thanks for the info on the Anti Hormone pills! I will discuss these with the med ocon at my appointment early this week . she was only mentioning Tamoxifen if i am found to be menopausal (I have heard so many side effects from people from those(Tamoxifen) but as everything else all bodies and systems are different) i will definitely discuss these other pills(lbrance) you have mentioned and see what she say about them! Looking for a GREAT outcome! And you keep your head up and continue to bEEpositive ..much success to you also!Cool  

    Thanks  BEEpositive!

     

  • Lisa-Nana to 5
    Lisa-Nana to 5 Member Posts: 16
    #12
    Letrozole

    welcome Beepositive. I hate that you have to be here, but glad to "meet ya". lol I have IDC as of August 9, 2016. This was a recurrence after DCIS in 2008 with bilateral mastectomy and latissimus flap reconstruction. I am on letrozole since late August with some minor SE. Mainly some muscle and joint pain and LOTS of hot flashes. A little trouble sleeping. Stay positive and ask any question you have. There is almost always someone who can identify with almost any situation. 

  • Beepositive
    Beepositive Member Posts: 259 Member
    edited March 2017 #13
    Lisa-Nana to 5 said:

    Letrozole

    welcome Beepositive. I hate that you have to be here, but glad to "meet ya". lol I have IDC as of August 9, 2016. This was a recurrence after DCIS in 2008 with bilateral mastectomy and latissimus flap reconstruction. I am on letrozole since late August with some minor SE. Mainly some muscle and joint pain and LOTS of hot flashes. A little trouble sleeping. Stay positive and ask any question you have. There is almost always someone who can identify with almost any situation. 

    Hello Lisa-Nana to 5!!  Smile Thanks for the info on the Letrozole (anti hormone pills) meet with my Oncologist today and that is what she ordered for me ..blood test did show Im post-memopausal (was not sure since had partial hysterectomy years ago) I got my perscription filled today and will start taking Letrozole (still have to do my radiation starting soon but both oncologist say ok to take Letrozole along with the radiation.  Glad to here and my oncologist also said side effects are normally not too bad with the Letrozole she mentions the ones you said. but i see on the list hair loss also ..have you encountered that with this pill? IM blessed not to have to do chemo also ..so this is a drop in bucket considering others.. we all make our decisions on treatments due to type and nature of cancer and have different bodies and side effects are a little different for each person... I am going to start the pills at night to see how I handle them.  Thanks for your info and  much success to you and your Treatments also!!!   continue to BEEpositive Lisa!

    BEEpositive

Discussion Boards