Scan results are in

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Footstomper
Footstomper Member Posts: 1,237 Member
edited November 2016 in Kidney Cancer #1

Atrophic Pancreas might be a good name for a band, but not, I think a reassuring description of an organ in ones body. The Abscopal Effect (another great band name,), which should have left my body cancer free, hasn’t. My main met, ‘Luke’ (Offspring of my original 10cm Tumour, Darth) has reduced in size from 6.5 to 5.1cm. A newly discussed met has increased from 1.3 to 2.5 (must be Leia) and another has grown from 9 – 12mm (Anakin?) and surrounded by other tiny lesions. PS I really need new names for my lumps, they’re getting too heroic and cute. (Maybe I should have started with Pelops now THERE’S a dysfunctional family). I’ve got ‘septal thickening’ (no idea) ‘Groundglass opacity’ in my lungs, which I recognize as pneumonia Pleural thickening, which I remember from pleurisy Lots seem to be calcified, heart, abdominal Aorta Overall, says the report there is ‘an increased burden of disease’ Not what I wanted,hoped for, nor expected

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  • Footstomper
    Footstomper Member Posts: 1,237 Member
    edited November 2016 #2
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    Sorry. Computer seems to have gone insane.

    But luckily after I had said all I wanted to say. Not that I wanted, hoped for or expected.

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    edited November 2016 #3
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    My sweet man...HUGS!

    My sweet man...HUGS!

    Enuff!

    I love you!

    Jan

  • Abunai
    Abunai Member Posts: 173 Member
    #4
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    Certainly not the best of

    Certainly not the best of news.

    From your profile, it looks like you'be been moving through the list of available chemo drugs. Do these results mean moving to the next drug in the list?

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    #5
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    Abunai said:

    Certainly not the best of

    Certainly not the best of news.

    From your profile, it looks like you'be been moving through the list of available chemo drugs. Do these results mean moving to the next drug in the list?

    Probably

    I'm staying on Nivo for a while. Then probably onto Carbo. I've still got the radiation in me so we'll probably stay as we are until Christmas. Have another scan and then decide what to do.

    When I do finally shuffle of this mortal coil they'll be able to cut me up and sell me as Chemistry sets.

  • mrou50
    mrou50 Member Posts: 389 Member
    edited November 2016 #6
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    Sorry

    I am sorry about the bad news, I hate that the disease takes its wrath out on good people.  I am praying for you FS

     

    Mark

  • Allochka
    Allochka Member Posts: 1,062 Member
    edited November 2016 #7
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    Sh...t... But does the

    Sh...t... But does the decrease of one met means that Nivo could still be working, but not to full extent?

  • BDS
    BDS Member Posts: 172
    #8
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    Not what we hope for

    I am sorry about the bad news. Hoping and praying for you. - BDS 

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    edited November 2016 #9
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    Allochka said:

    Sh...t... But does the

    Sh...t... But does the decrease of one met means that Nivo could still be working, but not to full extent?

    Nivo still working

    Could be, and apparently I'm still full of radiation. So I stay on Nivo (could be doing good, not doing harm)until at least december when I will no longer be irradiated and I get another scan.

    Its the pleurisy and pneumonia I'm most worried about. I had it this time last year and it nearly did for me.

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    #10
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    BDS said:

    Not what we hope for

    I am sorry about the bad news. Hoping and praying for you. - BDS 

    Cheers BDS

    You cant give up when youre a lab rat. Anyway There's this great big wheel to run around inside!

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    #11
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    Jan4you said:

    My sweet man...HUGS!

    My sweet man...HUGS!

    Enuff!

    I love you!

    Jan

    My sweet man...

    Well, thats a first! Thanks Jan

  • foroughsh
    foroughsh Member Posts: 779 Member
    edited November 2016 #12
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    Footstomper
    Footstomper

    I'm sorry the drug didn't work as well as the hoped for. I hope the radiation helps more effectively. By the way I do admire your strong will and sense of humor. Sure, it helps

    Love you

    Forough
  • sblairc
    sblairc Member Posts: 585 Member
    edited November 2016 #13
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    Plan for next step sounds good

    I've heard good things about cabo. It might become a first line treatment some day. Until then, hope they can get you something for that pneumonia. If not, a couple shots of tequila never hurt anyone!!!

  • rhominator
    rhominator Member Posts: 233 Member
    #14
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    Dang.

    Sorry dude. That sucks.

  • stub1969
    stub1969 Member Posts: 966 Member
    edited November 2016 #15
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    Foots:

    I sure was hoping for better results, Foots.  Q: do the doctors feel that the Abscopal Effect
    did not work or is the verdict still out?  As you state, there is still a lot of radiation in your system, so could the treatment still prove to be effective?  I know you are very confident in the team of doctors that you are working with and I'm glad they are looking ahead and developing a plan.  Fingers are crossed and prayers are being said.

    Stub

  • hardo718
    hardo718 Member Posts: 853 Member
    edited November 2016 #16
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    Not what I was hoping for you

    I'm going to be a hold out.  Hoping the lasting effects from radiation etc. to prove helpful in restoring your health.

    God bless you man.

    Love you,

    Donna~

  • lobbyist0724
    lobbyist0724 Member Posts: 515 Member
    #17
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    Best wishes

    I am sorry to hear the update, if we look at the changes in terms of total tumour volume, it has decreased. Hope the treatment will show a better result.

    Please take care, Carmen

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    edited November 2016 #18
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    stub1969 said:

    Foots:

    I sure was hoping for better results, Foots.  Q: do the doctors feel that the Abscopal Effect
    did not work or is the verdict still out?  As you state, there is still a lot of radiation in your system, so could the treatment still prove to be effective?  I know you are very confident in the team of doctors that you are working with and I'm glad they are looking ahead and developing a plan.  Fingers are crossed and prayers are being said.

    Stub

    The verdict is still out.

    But the Jurors are impatiently waiting for Henry Fonda to finish. Still their original hypothesis is looking shakey.

  • todd121
    todd121 Member Posts: 1,448 Member
    #19
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    Damn Damn

    I wanted to expound on that subject, but sure the words I need to use would result in my post getting removed and possibly getting me blocked.

    This cursed disease just sucks and I hate you (and the rest of us) is having to deal with this "you know what". I'm really having to hold back on the bad words today.

    *deep breath*

    Wish you well and suggest that as long as we're breathing there's hope. I believe this.

    Hugs,

    Todd

  • Jojo61
    Jojo61 Member Posts: 1,309 Member
    edited November 2016 #20
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    Very disappointed in your

    Very disappointed in your news, Stomps. However since we are in the Star Wars theme....there are many sequels in the works! Hang in there....hoping the lung stuff doesn't develop too far.

    You are one amazing, strong man. The dark side shouldn't even try reckoning with you!

    Big hugs

    Jojo

  • foxhd
    foxhd Member Posts: 3,181 Member
    edited November 2016 #21
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    So what?

    Foots, you have more time. There is improvement. Great. Other tumors, maybe not so much. But I bet it is tumor flare up. I took the chance and in the long run I wasn't worse off waiting 6 months to discontinue nivo. I'm not fully convinced I shouldn't have stayed with it longer. Patience grasshopper.

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