Any help for 5FU reflux feeling?

nateswife
nateswife Member Posts: 65
in Colorectal Cancer #1

First, hello to all. I am new to CSN but have been reading posts for a week or so. The care and support between members is wonderful. I'm happy to have found this site, to give and receive what help I can.

I have a take-home pump that dispenses fluorouracil / 5FU over 46 hours. The drug causes a reflux-like feeling of fullness from the top of my stomach to the back of my throat. It's not like acid reflux, no burning, so I don't think it's actually food coming up (and it happens whether my stomach is empty or not). I have taken omeprazole/ Prilosec for it in the past but that no longer seems to be working. 

Has anyone found remedies or medication that works?

 

Comments

  • DebLarsen
    DebLarsen Member Posts: 1
    #2
    Oh goodness, I feel your pain

    Oh goodness, I feel your pain.  I have the exact same feeling each and every time after the pump disconnect.  After the 46 hours on the pump, my stomach feels full and very uncomfortable for almost a week afterward.  This has been going on since January.  I've tried ativan, tums, prevacid, every anti-nausea drug, gas X, etc......sometimes these things work, sometimes not.  Today is the first day I feel pretty good and I got disconnected last Friday!! Hang in there and hopefully you'll find something that works all the time.

     

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    edited September 2016 #3
    I welcome both nateswife and DebLarsen to the forum

    It is good to meet you, though sad to know you have joined the throngs of CRC patients. 

    I was thinking back to my treatments (FOLFOX with the 5FU pump 46 hours) and the miriad side effects I suffered. One was the worst heartburn I had ever experienced - well, I think maybe pregnancy hit it high on the list as well -. 

    I don't think I ever came up with a way to alleviate the problem completely, but I was keeping a record of what I was eating, and noticed that several foods were probably not helping the situation. 

    Walking helps. Walking helps with most everything. Though I know that sometimes, especially toward the end of treatment, the ability to walk far is cut down. Well, it was with me, because I totally lost my balance. 

    I hope you both find ways to keep the discomofrt at bay. Until then, know we are here to help you as you trip along this wondreful Cancer journey. 

    SUE

  • nateswife
    nateswife Member Posts: 65
    #4
    DebLarsen said:

    Oh goodness, I feel your pain

    Oh goodness, I feel your pain.  I have the exact same feeling each and every time after the pump disconnect.  After the 46 hours on the pump, my stomach feels full and very uncomfortable for almost a week afterward.  This has been going on since January.  I've tried ativan, tums, prevacid, every anti-nausea drug, gas X, etc......sometimes these things work, sometimes not.  Today is the first day I feel pretty good and I got disconnected last Friday!! Hang in there and hopefully you'll find something that works all the time.

     

    Hi Deb, nice to "meet" you :)

    Hi Deb, nice to "meet" you :)  Sorry to hear that you are going through the same thing and that it lasts for so long!  Do you also get the Neulasta shot when you get disconnected? The bone pain from that ends up distracting me from the full reflux feeling. I'll keep on trying with the Prilosec.

  • nateswife
    nateswife Member Posts: 65
    #5
    Trubrit said:

    I welcome both nateswife and DebLarsen to the forum

    It is good to meet you, though sad to know you have joined the throngs of CRC patients. 

    I was thinking back to my treatments (FOLFOX with the 5FU pump 46 hours) and the miriad side effects I suffered. One was the worst heartburn I had ever experienced - well, I think maybe pregnancy hit it high on the list as well -. 

    I don't think I ever came up with a way to alleviate the problem completely, but I was keeping a record of what I was eating, and noticed that several foods were probably not helping the situation. 

    Walking helps. Walking helps with most everything. Though I know that sometimes, especially toward the end of treatment, the ability to walk far is cut down. Well, it was with me, because I totally lost my balance. 

    I hope you both find ways to keep the discomofrt at bay. Until then, know we are here to help you as you trip along this wondreful Cancer journey. 

    SUE

    Thanks, Trubrit! I appreciate

    Thanks, Trubrit! I appreciate the tip about walking. Its an effort to get off the couch but is worth it. 

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