So tired...

Spivey88
Spivey88 Member Posts: 43

Hi fellow friends!

quick question...is it normal for so tired and have no energy after 4-5 after a partial neph?  I mean I wake up and feel pretty good and then about half way through the day I am spent.  I'm a teacher and start back to work in 2 weeks.  A little nervous since I teach kiddos with special needs.  They have checked my blood and it was all good, but going back tomorrow to check again.  I don't feel sleepy, just absolute no energy.  I'm not sure if it's beacuse I have been down and out or while, or if it's normal after this surgery.  Has anyone else had this issue?  By the way, wound healed up perfect :)

thank you all for being so kind!  I look forward to reading about y'all everyday!

God bless!

Angie 

Comments

  • hardo718
    hardo718 Member Posts: 853 Member
    Hi Angie

    I was astounded at how weak I felt after my partial neph.  Your body is working so hard right now to heal and rearrange itself inside after being messed with, and you're only a month or so out.  It's really deceiving because when you heal so well externally, kind of makes you feel like okay I'm good to go, but the internal part takes much longer.  I'd venture to say that in the next few weeks you'll notice a difference in your stamina.  In the meantime, listen to your body, when you're spent, take a break, even if it's just for half an hour or so. 

    Patience grasshopper. 

    I'm praying for you,

    Donna~

  • stub1969
    stub1969 Member Posts: 966 Member
    edited August 2016 #3
    Teaching

    Good morning, Angie!

    Working in K-12 also, you know how tired you get the first couple weeks--even with two kidneys and fully healthy.  I hope you get a little bit more stamina within a couple weeks, but expect to be pretty tired after a few days of school.  I'm sure you've talked with your principal about your situation and the possibility of working .5 days at first.  We start in a couple weeks also, but I'm in the early stages of this prognosis.  I'll meet with the doctor next Friday and we'll see where we go from there.

    I wish you luck in your recovery and enjoy the kids!

    Stub

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    Not another teacher!

    I went back .5. It was OK but I was so wasted after a day at work I couldnt competently plan or grade papers. With the tiredness I felt at work I was probably less patient with difficult students than I could have been (I taught grades 10-12).

    You dont say how far your cancer had spread or grown. I can only give you my experience. I couldnt keep up 0.5 as side effects from various drugs kicked in, but the school were able to dedicate a sub to be me when I couldnt make it.

    I had to retire last Nov, because my continuing teaching was good for neither me nor the students. My cancer is Grade 4 aggressive and metastatic. I believe yours is much smaller so I hope you can get back to your job.

  • todd121
    todd121 Member Posts: 1,448 Member
    Tired

    I was tired for months after my nephrectomy. The first several weeks it was very bad. I went back to work after 6 weeks. At the end of the day, I'd be exhausted. This lasted for quite a long time. I've heard your outsides heal faster than your insides. I had other strange symptoms for well over a year.

    Best wishes,

    Todd

     

  • foroughsh
    foroughsh Member Posts: 779 Member
    edited August 2016 #6
    I was 36, quite healthy and

    I was 36, quite healthy and athlete once I was diagnosed with stage two kidney cancer. I had radical neph and had six weeks off. First three weeks I had no energy and needed to take rest most of the time but I felt much better on next three weeks. Although the first week I came back to work I was quite exhausted too. Things got easier little by little but I had severe chest pain which made me emotionally crazy with no reason for almost a year. That is also gone now

  • tiger09
    tiger09 Member Posts: 9
    I'm glad to hear it's not

    I'm glad to hear it's not just me. I'm a little less than 2 months out from my radical neph and I'm still exhausted constantly. Best of luck with the new school year - I can only imagine!!

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    edited August 2016 #8
    stub1969 said:

    Teaching

    Good morning, Angie!

    Working in K-12 also, you know how tired you get the first couple weeks--even with two kidneys and fully healthy.  I hope you get a little bit more stamina within a couple weeks, but expect to be pretty tired after a few days of school.  I'm sure you've talked with your principal about your situation and the possibility of working .5 days at first.  We start in a couple weeks also, but I'm in the early stages of this prognosis.  I'll meet with the doctor next Friday and we'll see where we go from there.

    I wish you luck in your recovery and enjoy the kids!

    Stub

    Teaching

    Also see if you can get a student aide assigned to you to help with lifting, distributing and making coffee

  • foxhd
    foxhd Member Posts: 3,181 Member
    It has been suggested

    that status post nephrectomy, anemia is an issue and iron should be checked. Others find thyroid issues. But the fatigue is common. Recheck your blood work.

  • todd121
    todd121 Member Posts: 1,448 Member
    foxhd said:

    It has been suggested

    that status post nephrectomy, anemia is an issue and iron should be checked. Others find thyroid issues. But the fatigue is common. Recheck your blood work.

    Tiredness - Effects of Losing a Kidney

    Post nephrectomy I suggest also you follow your Vitamin D levels closely. The kidney plays an important role in making Vitamin D available to the body. It's a combination of liver and kidney. I was already low in Vitamin D and after my nephrectomy my Vitamin D level really went down. I've been taking supplements ever since and having it checked regularly. I also started testing low on B12 and never had that problem before. Low B12 can make you feel really tired.

    In addition, you should follow your blood pressure closely in the months following your nephrectomy. Adrenal and kidneys have a big impact on blood pressure and are central to blood pressure (high BP can damage kidneys, but also kidneys and adrenals feedback into controlling your BP. Kidney damage can cause high BP). My BP went up over the months after my nephrectomy. I eventually had to go on BP meds. Oddly enough, after my adrenal gland was removed (I had an RCC tumor in my right adrenal), my BP returned to normal. I often have wondered if the combination of 1 kidney + 2 adrenals caused my high BP or if the other adrenal having a tumor in it caused it to go wacko.

    Good to monitor all of these things. I see a kidney specialist every 3-4 months and get everything tested.

    Regards,

    Todd

  • Spivey88
    Spivey88 Member Posts: 43
    edited August 2016 #11
    foxhd said:

    It has been suggested

    that status post nephrectomy, anemia is an issue and iron should be checked. Others find thyroid issues. But the fatigue is common. Recheck your blood work.

    Thyroid...

    I went and had blood Checked and iron is good, just have low vitamin D ans she said my thyroid was slightly under active.  I have never has this issue before so i was shocked.  this was mine...so now I take a pill every morning plus vitamin d and b12.

    TSH (REFLEX) 5.09 mcIU/mL 0.40 - 4.50 mcIU/mL
  • Spivey88
    Spivey88 Member Posts: 43
    todd121 said:

    Tiredness - Effects of Losing a Kidney

    Post nephrectomy I suggest also you follow your Vitamin D levels closely. The kidney plays an important role in making Vitamin D available to the body. It's a combination of liver and kidney. I was already low in Vitamin D and after my nephrectomy my Vitamin D level really went down. I've been taking supplements ever since and having it checked regularly. I also started testing low on B12 and never had that problem before. Low B12 can make you feel really tired.

    In addition, you should follow your blood pressure closely in the months following your nephrectomy. Adrenal and kidneys have a big impact on blood pressure and are central to blood pressure (high BP can damage kidneys, but also kidneys and adrenals feedback into controlling your BP. Kidney damage can cause high BP). My BP went up over the months after my nephrectomy. I eventually had to go on BP meds. Oddly enough, after my adrenal gland was removed (I had an RCC tumor in my right adrenal), my BP returned to normal. I often have wondered if the combination of 1 kidney + 2 adrenals caused my high BP or if the other adrenal having a tumor in it caused it to go wacko.

    Good to monitor all of these things. I see a kidney specialist every 3-4 months and get everything tested.

    Regards,

    Todd

    Todd...

    I'm so relieved to read your message.  My vitamin D is low and B12 is right on border of low.

    VITAMIN D 26.5 ng/mL 30.0 - 80.0 ng/mL