ISO

It is worrisome not to hear

It is worrisome not to hear anything.  I have given one of our daughters my passwords and sites I go to so she could let people know if I'm gone.  I can understand that sometimes people just need a break from thinking about cancer especially if they're really doing good.

Hope we hear from some of the MIAs.

Love,

Eldri

Debra

Put Del Rose on hold ,we love and need you.

Moli hugging.

I had emailed CuCu in

I had emailed CuCu in mid-February and she said she didn't come on the board because she didn't want to discourage anybody.  She was trying to decide what to do after she had turned down a clinical trial.  I see she was last online today!!

CuCu, we are here for you and worried about you.  Don't worry about discouraging us, we're a tough bunch and we miss you!!!

Love,

Eldri

TeddyandBears_Mom said:

Chris - thanks so much for

Chris - thanks so much for letting us know! You lifted the sadness that I had been feeling for AWK.

I miss her and hope she gets better soon.

 

Joanne checking in

Moli, this is Joanne checking in. I read posts a lot late at night but don't often post. beader's digest; husband had  bilateral kidney cancer, one kidney removed; tumor on other kidney was frozen last Sept. CT scan last week does not show glowing tumor now so that is good news. He feels fine.

I was UPSC 6/13 Stage 3, grade3C - one nasty lymph node out of 23. 18 rounds carbo and taxol followed by 4 brachy. The good thing that came out of cancer is bew short hairstyle abnd the bad is the neuropathy. Just my feet but it is ugly. I have recovered fine from shoulder surgery followed 7 weeks later by falling on it and fracturing my humerus right at the sbhoulder. Now am looking at back surgery for spinal stenosis. However I justt has my two year post chemo checkup and all is well. I ffully expect it to stay that way. Our daughter that had double masectomy 12/14 is doing well and getting tattoos done on breasts. I'm not a fan of tattoos but these are gorgeous and she feels so good about them.

 

There are so many great posts on this site; sometimes I forget a little of how hard it was. Our miracle now is my niece Lucia bornb at 25 weeks gestationb and weighing 1#7oz. Now 30 days old and 2#4oz and doing well. Life is a miracle and I want to wring all the time out of it I can. My beautiful granddaughter is getting married this fall and two more babies due in family.I've moved on pretty mucbh from the CANCER scare but I guess you never get it too far back in brain.

 

I'm always happy to answer questions, I'm just lazy about postinbg. I have never laughed so hard as the long thread about the brachy radiationb and aftereffects. We need more of those laughs. Take care one and all I am reading a thinkingb of all of you. Chin up - you can do this.

 

ps - keyboard is actinbg up; stickup etc. I'm not correcting mistakes. Not all my fauld! lol

TeddyandBears_Mom said:

Agree Moli! Del Rose must

Agree Moli! Del Rose must stay on hold for many  more years.  Good luck on your move. And, then onto your surgery. I can't wait for you to be done with that and bring us back great news. :-)

Debra Jo - thanks for posting this. I have been really concerned about AWK and based on how she always stayed in touch, I fear the answer for her.

Love and Hugs,

Cindi

Oh ! surgery , don't remind me.

Thanks Cindi ,I will need luck big time as this month marks my 2nd year  without additional treatment except for the initial surgery. Initially the first set of oncologist told me that  without treatment I will have  1 maybe 2 yrs. top.So if I should credit them for being anything but self serving I am now on borrowed time and smiling.  As the surgery draws near my brain is requesting more time but I dare not voice that to my oncologist/surgeon. You know the saying : be careful what you wish for (in my case fought for) you may just get it. Any way it's cut, I am in for the haul, win or lose. Oh yes I will come back with details.You will regret that you ask for news , you all shall surely get it blow by blow. I promise.

Moving is a horrible ,draining manouvre, I caught myself talking to me telling me that I hope I don't live long enough to ever move again, what a horrible conversation with self.No one should hate any task that much to warrant such a thought but unfortunately  I HATE MOVING.

I too fear for AWK,Anne, she has gone through so much ,some in an effort to save the next generation from this disaster.Wherever she is I hope she knows that we appreciate the effort and the education.Wishing her well.

Glad to see you're doing well Cindi, I hope Ned has found you and the others doing or finished with treatment.

Moli, hugging

ConnieSW said:

Thanks for the update, Joanne

You are one of the ladies I've been wondering about.  Things are very busy for you.  Hope you have lots of energy.

update

You're right there also seems to be a lot going on in all of our lives. However, I'm so lucky to feel good for the most part. I may not have as much energy and before the big C but I feel good. The neuropathy in my feet is bad but I've just learned how to deal with it as best I can. I am ready for warm weather as that really helps. The Northwest has had rain, rain and more rain the last two months. However - trees are starting to bud and bulbs are coming up - spring has to be here soon. I'm going to see our new preemie niece this week and she is now over two pounds. Really puts everything in perspective. Thinking of all of you - I will try to check in more ofter instead of just lurking and reading.

Joanne