Meeting Mr. NED!

fishmanpa
fishmanpa Member Posts: 1,227 Member
in Head and Neck Cancer #1

I went this past Tuesday to Johns Hopkins to meet with my Rad Onc. Scope, poke and prod time. All is well! He was thrilled at the healing of my throat and the questionairre about eating puts me at about 90% back to normal. So NED again! I see my Med Onc and Speech Pathologist in a few weeks and I fully expect all will be well. Next appointments will be in August. 

Yeah, I have side effects, mostly pain but I have drugs and Medical Marijuana should be legalized soon ;) As with most, I have good days and not so good days but I just chalk it up to the "new normal" and it sure beats the alternative! I hit the three year mark April 23rd :)

On the music front, my voice is improving as well as stamina. I have a gig Valentines Day and the season starts again in the Shenandoah National Park in March so I'll be back at it playing shows at the resorts. The BIG news is I've been selected along with 11 other artists to perform a showcase at this year's Merlefest in Wilkesboro, NC the end of April (Sat. 4-30). A few years ago I thought I wouldn't be singing again so this is a hell of an honor and feather in my cap/musical career.

Hope you're all doing well! Keep on fighting the good fight!

Positive thoughts and prayers.

"T"

 

Comments

  • PJ47
    PJ47 Member Posts: 376
    #2
    Congratulations and Merlefest how cool!

    Hope to see you at Merlefest!

    PJ

  • phrannie51
    phrannie51 Member Posts: 4,716
    #3
    Alright T!!!

    WTG, my friend!  And congratulations on the gig in Wilkesboro....I remember back in the day when you were very worried about your voice....and look at you now!!

    Delighted Mr. Ned is still in your corner....you certainly worked hard for that, also.

    Hugs.

    p

  • josh r.
    josh r. Member Posts: 264 Member
    #4
    A-OK

    Hi T,

    Congratulations on all fronts. Sing it out! josh r.

  • Grandmax4
    Grandmax4 Member Posts: 723
    #5
    awesome

    Happy to hear your news~~~

  • MrsBD
    MrsBD Member Posts: 615 Member
    #6
    NED

    Great news on both your NED and on your selection for the fest. Being able to sing again is awesome! Did you do vocal therapy or did it just improve over time? 

  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    #7
    glad for you

    “T”

    Good to hear (and sing).

    Matt

     

    image

  • wmc
    wmc Member Posts: 1,804
    #8
    WOW "T" that is such good news.

    I remember when you started to sing again and now being slected to preform there, just so proud.

    Bill

  • Kent Cass
    Kent Cass Member Posts: 1,898 Member
    #9
    Great to hear-

    the news, just as all who hear you sing will say the same. Just don't lose control and do a Marty McFly Back to the Future thing up on stage at the HS Prom with an electric guitar, you know. Just keep it toned-down to a David Gilmour thing, without the light show. Bigtime congrats.

    kcass

  • the_wife
    the_wife Member Posts: 184
    #10
    Kent Cass said:

    Great to hear-

    the news, just as all who hear you sing will say the same. Just don't lose control and do a Marty McFly Back to the Future thing up on stage at the HS Prom with an electric guitar, you know. Just keep it toned-down to a David Gilmour thing, without the light show. Bigtime congrats.

    kcass

    It's always so great to hear

    It's always so great to hear a H&N success story! Congratulations on NED and your upcoming concert! Sounds awesome!

    Happy Valentine's Day!

  • Barbaraek
    Barbaraek Member Posts: 626
    #11
    Bravo!

    What fantastic and uplifting news! Merlefest...wow! You and Mr. Ned keep on making sweet music together!

    Barbara

  • donfoo
    donfoo Member Posts: 1,771 Member
    #12
    congrats T

    Hey,

    Glad to see your post. Sorry we have let some updates go by. Very nice to hear the official update but we knew you were good to go except the "new normal" crap. Keep strumming and singing as one day I will see you in person in the park! don

  • hawk711
    hawk711 Member Posts: 566
    #13
    donfoo said:

    congrats T

    Hey,

    Glad to see your post. Sorry we have let some updates go by. Very nice to hear the official update but we knew you were good to go except the "new normal" crap. Keep strumming and singing as one day I will see you in person in the park! don

    Congratulations

    I don't post often but I have to come back for a NED announcement and offer up CONGRATS!!!!

    Keep up the great attitude and play a little Gordon lightfoot for me sometime.

    Best always,

    Steve

  • fishmanpa
    fishmanpa Member Posts: 1,227 Member
    #14
    Update

    Follow ups with my Med Onc and Speech Pathologist 2-26 just affirmed the NED. The pain I have is neuropathic in nature and other than Gabapentin and physical therapy, it's just part of the new normal. I have the option of trying Lyrica but for now I'm upping my dose of Gabapentin by 300mg a day and we'll see. I would love to go back to acupuncture but finances won't allow that for now. 

    The great news is a follow up in a YEAR with my Med Onc and SP. I see my ENT/Surgical Onc in August.

    Can't argue with dem apples! Thank you for all the positive feedback and posts. I truly appreciate it :) 

    Positive thoughts and prayers

    "T"

     

     

  • Guzzle
    Guzzle Member Posts: 710
    #15
    fishmanpa said:

    Update

    Follow ups with my Med Onc and Speech Pathologist 2-26 just affirmed the NED. The pain I have is neuropathic in nature and other than Gabapentin and physical therapy, it's just part of the new normal. I have the option of trying Lyrica but for now I'm upping my dose of Gabapentin by 300mg a day and we'll see. I would love to go back to acupuncture but finances won't allow that for now. 

    The great news is a follow up in a YEAR with my Med Onc and SP. I see my ENT/Surgical Onc in August.

    Can't argue with dem apples! Thank you for all the positive feedback and posts. I truly appreciate it :) 

    Positive thoughts and prayers

    "T"

     

     

    Chuffed

    T made up for you kidder.  Seeing you play live is on my to do list. 

  • bebo12249
    bebo12249 Member Posts: 181 Member
    #16
    Congratulations on your

    Congratulations on your health and your voice...

Discussion Boards