Who says, "You can't always get what you want."

foxhd
foxhd Member Posts: 3,181 Member

...but if you try sometime, you just might find, you get what you need!!!!

Saw my onc today. I will begin nivo next week and get my stereotactic radiation as soon as I get it scheduled. I am thrilled beyond words. No more votrient side effects! No more white hair in the drain. No more nausea or diarrhea. Despite having new tumor growth, I am feeling ready to put up another good fight. I am so excited. When I was on nivo in the trial phase, I was on the highest dose studied at 10mg/kg body weight. The dose will be only 3mg/kg body weight. So unless my chemistry has changed drasticly, it will be a walk in the park. I am so confident that this plan will work. I've got tingles all over. FLY!

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Comments

  • Good for you, Foxy.  Go get

    Good for you, Foxy.  Go get 'em and kick cancer's ****!

  • todd121
    todd121 Member Posts: 1,448 Member
    Awesome news!

    I wish you the best with this new medicine.

    Hugs,

    Todd

  • marosa
    marosa Member Posts: 334 Member
    todd121 said:

    Awesome news!

    I wish you the best with this new medicine.

    Hugs,

    Todd

    As they say in my other neck of the woods...

    Oh, la laaaaaa!

     

  • dancnbear1
    dancnbear1 Member Posts: 86
    Thats great news. Time to

    Thats great news. Time to kick some ****!

  • Bonngo
    Bonngo Member Posts: 79
    Awesome News

    So happy for you! 

    ~Bonnie

  • medic1971
    medic1971 Member Posts: 225 Member
    Out-freaking-standing!!!

    Smile

  • Jojo61
    Jojo61 Member Posts: 1,309 Member
    What fabulous news, Foxy. I

    What fabulous news, Foxy. I can't think of a better way to start my holiday! I am SO happy for you!

    Big hugs

    Jojo

    XOXOXO

  • Racinreggie
    Racinreggie Member Posts: 16
    Foxhd

    Awesome news. Enjoy the rest of 2016!☺

  • Srashedb
    Srashedb Member Posts: 482 Member
    Way to go!

    this is great news; having specialists to provide information and advisement is important but equally important is researching for yourself and making informed choices from the menu.

    i too have  very good feeling about this.

    to new patients, overwhelmed with the news of the diagnosis, read these posts and there will be much to learn once the shock and fear recede (somewhat).

    Sarah 

  • foroughsh
    foroughsh Member Posts: 779 Member
    You deserve the best and I'm

    You deserve the best and I'm sure you'll have it.

    F.L.Y 2(Forough loves you too)Wink

     

  • APny
    APny Member Posts: 1,995 Member
    foroughsh said:

    You deserve the best and I'm

    You deserve the best and I'm sure you'll have it.

    F.L.Y 2(Forough loves you too)Wink

     

    Excellent news. So happy for

    Excellent news. So happy for you. Go get 'em!

  • Pandabear1011
    Pandabear1011 Member Posts: 123 Member
    Hell Yeah!!!

    So excited for you, Foxy!! Gonna kick some cancer ****!!!!

  • hardo718
    hardo718 Member Posts: 853 Member
    Thanx for the song in my head!!

    HAha.  Best wishes.  I'll keep you in my prayers.  Keep on keepin on.  If anyone will kick this thing, it'll be YOU!  Looking forward to hearing good news from you in the near future.

  • Skagway Jack
    Skagway Jack Member Posts: 224 Member
    Like paddling a canoe

    FOX,   Glad to hear your treatment plan is moving on to bigger and hopefully better options.  These changes kinda of remind me of paddling a canoe, becuse when you paddle you use different strokes to keep it going straight.  Sometimes you just get tired of paddling on the same side and you need to switch to give your arms a break.  Best of luck with keeping the canoe going in the right direction!

     

    Skagway

  • foxhd
    foxhd Member Posts: 3,181 Member

    Hell Yeah!!!

    So excited for you, Foxy!! Gonna kick some cancer ****!!!!

    attitude

    It is pretty bizarre. New people might read this and wonder why the hell am I so excited that my cancer has spread again. Our treatment options are expanding. Being able to discuss a plan of care with receptive doctors is priceless. It says alot about my medical team and the information available to us to implement informed decisions. But the most important factor is, I'M OFF VOTRIENT!! Thanks everyone. FLY! FLY! FLY!

  • DMike
    DMike Member Posts: 259
    You earned it

    You put in the work up front to get the drug approved for RCC. I can't think of anyone more deserving of a second chance!

    Please let us know how Medicare handles the billing. My trial drug is working but I may eventually end up on Nivo too and I'm concerned about the cost.

    Thanks and good luck!

    David

  • Allochka
    Allochka Member Posts: 1,060 Member
    DMike said:

    You earned it

    You put in the work up front to get the drug approved for RCC. I can't think of anyone more deserving of a second chance!

    Please let us know how Medicare handles the billing. My trial drug is working but I may eventually end up on Nivo too and I'm concerned about the cost.

    Thanks and good luck!

    David

    Excellent! It is a start of

    Excellent! It is a start of good fight with great results ahead, so glad for you! :-)

  • Srashedb
    Srashedb Member Posts: 482 Member
    foxhd said:

    attitude

    It is pretty bizarre. New people might read this and wonder why the hell am I so excited that my cancer has spread again. Our treatment options are expanding. Being able to discuss a plan of care with receptive doctors is priceless. It says alot about my medical team and the information available to us to implement informed decisions. But the most important factor is, I'M OFF VOTRIENT!! Thanks everyone. FLY! FLY! FLY!

    Good point

    Fox: 

    you're right about the craziness of cheering progression and how someone new to cancer might view it.

    after being a lawyer for close to 30 years, I guess I have gotten used to the absurd making sense. 

    I am hoping that votrient will have a successor that does not impact quality of life; all cancer treatments seem primitive and brutal 

    as Susan Love, the breast cancer guru puts it "mutilate, burn and poison" are not ways to treat breast cancer but we have been stuck there for decades despite all the awareness and early detection 

    nevertheless, your news is good and your heavy involvement in treatment are very valuable 

    Sarah

  • mrou50
    mrou50 Member Posts: 389 Member
    Great News

    Great News Fox I hope that all goes well.

     

    Mark

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    mrou50 said:

    Great News

    Great News Fox I hope that all goes well.

     

    Mark

    EXCELLENT NEWS!!
    Well

    EXCELLENT NEWS!!

    Well deserved!

    We'll be on your side fighing the fight along side you!!

    JLF=Jan loves Fox!

    Sending you healing vibes~gentle hugs!

    Jan