Pain, pain, go away, come back another day...

Okay. So I've joined this site: I have pain and for some weird reason, I thought others might understand what that mean. I'm a 46-year-old female, technical writer from Florida...I had chemo, a bi-lateral mastectomy and radiation. I have terrible pain in my hands, hips, legs; all pain extends everywhere but now my fingers won't work...(typing really hard here)..what do cancer patients do for pain? I was having such a hard time, my boss just gave me two weeks PTO to get bettter. I don't want to waste the time, so: how do cancer patients deal with all the pain? Anyone? I've made a chiropractor appointment and just contacted an acupunture place. I'm tire of "real" doctors telling me the pain is normal and then doing nothing to help me...please, if anyone knows something that can help the pain, please let me know...

Comments

  • twnkltoz
    twnkltoz Member Posts: 169 Member
    So sorry to hear this. I hope

    So sorry to hear this. I hope you find some answers.

  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    Sorry to hear of your pain!

    Sorry to hear of your pain! Have you checked to see if tis could be arthritis starting?

     

    Denise

  • Gm2873
    Gm2873 Member Posts: 65
    Pain

    Letrazole causes quite a bit of joint pain for me. I alternate between over the counter drugs like ibuprofen and exedrin and when it's really bad, my onco prescribed tramadol which helps a little when it's really bad, but not that much.  My husband's Doctor put him on a prescription NSAID called Mobic that has really helped his arthritic pain, I'm thinking of asking my doctor about trying that.

  • MrsBob
    MrsBob Member Posts: 77
    Are you on any kind of

    Are you on any kind of aromatase inhibitors like arimidex, aromasin, etc?

  • RozHopkins
    RozHopkins Member Posts: 578 Member
    I personally think chemo can

    I personally think chemo can cause nerve irritation and makes pre existing hidden problem worse like arthritis, rheumatism.   Fibromyalgia or something very similar I really think is caused also.  Doctors haven't a clue.  One specialist told me all the points of pain I had was my body searching for estrogen, kind of made sense, after X-rays said I had bone loss and thought I had osteoarthritis in many areas after listening to me and getting me to move under his observation.   I had sore ribs, back, shoulders, arms, fingers and toes, ankle ached like crazy, hips, elbows and knees.  Almost like mini flare ups, then evens out a bit.  I have had two big flareups where I could barely walk or raise from a chair, I felt totally crippled.  Now I also think we are more prone to inflamation bouts.  

    So try and think what you had niggling you before treatment say like stiff shoulders which was probably a little of very common place arthritis, or say tennis elbow.  Are those areas worse or all new.  I have solved some with a chiropractor once a month (never believed in them but do now).  Try Anti inflammatories just to see if it helps and therefore gives you a clue.  Yoga and Pilates with a good instructor definitly helps, but know your limiits and start slow.  Keep moving and eat well.  Certain foods may now irritate you.  This is not what we want to hear but I had to get real and try to sort as much out myself as possible.  Tai Chi is very good too, short bike rides and of course walking.

    Sort out what is old, old and possibly made worse, or new and can be treated to some degree or exercised to limit pain.  Aqua aerobics is perfect.  I know those who work will not have much time for all of this but try to do as much as possible as it should really improve your quality of life when you get it right.  Plain old tylanol will help, a specialist told me for breast cancer patients he prefers tylanol and calcium twice a day.  Once a day the required amount cannot be processed in the body must  be twice preferably with vitamin D3 which helps process the calcium.  (I refused to take calcium for years as thought it was a load of rubbish, but was told had to as suffering bone loss), So I gave in, I guess I was wrong.

    My knees were bad for five month, never had previously now that has gone, I consider that was some sort of nasty flare up and definitely new.   Hip is dealt with a chiro and is an old problem I just didn't deal with. Elbow pain had for a few years has gone, ankle pain gone these comsider flare ups.  Shoulder pain gone with posture exercises and Pilates, Yoga.  This was an old problem I did not deal with and blamed the chemo wrongly.  The hands, fingers and toes are all new and consider flare ups and they have never gone after around 18 month, I consider them permanent.  Chemo did give me jaw bone disease, when they finally found the problem, I got it sorted after a years treatment.  Please persevere I hope your boss is tolerant and gives you some time to sort things out.  Do one area at a time.

     

    We are all different and have different views.  Sorry long answer I just felt I had to answer you question to some degree as no one seems to be able to give a clear diagnosis.

     

  • Jan11
    Jan11 Member Posts: 18
    Pain

    I use tylenol during the day and hydrocodone at night so I can sleep.  Mine is mostly normal and the chemo destroys muscle cells along with every thing else so I think pain is a new normal and I spoke with two surviors and they said it took 1 full year before they felt better and now they are working, good luck.