Hubs First PET scan today. Scanxiety

Hubby had his PET today. I am nervous and scared about his future. I have been trying to find patients that have my hubbys diagnosis/treatment so I can feel like im comparing Oranges to Oranges..Im not an Ostrich about this whole thing..on the other hand my hubby likes to be.. I want to know what to expect, whats down the line. Not sure I posted these specifics, so I will as I would like some responses if at all possible with people in same situation. Here goes it..APPOLOGIZE FOR THE LENGTH, BUT A LOT TO COVER.

Hubs diagnosed 8/2/14. lump on side of neck, and much pain up to the side of head, Artery pressure. went to Sloan here in Jersey. Then through recomendation from daugher (in Columbia P&S in NYC) went to the leading Head and Neck guy formerly at Sloan, and now At Lenox Hill in NYC. He saw my Hubs, to evaluate him for possible Robotic surgery. He was put under, and the Doc. looked at his margins, tumor size, thickness etc. to see if he was eligible for surgery. We were very deflated to find out that it was too extensive, crossing the midline, (which I read makes his cancer inoperable)so surgery is not an option for him...The doc quickly proposed we return to Sloan, and continue on the standard of treatment for him there....The docs findings were then given to sloan, and they started his care analysis, and said they were confident he can be cured.. Which I was happy to hear, however didnt' feel they were telling me everything. His diagnosis was then given as: T4 N2a Mo G3 the G one was a new one to me.. But looked I looked it up and its the Grade of the tumor. Anyhow, from my findings this was not the best of news.. Oh Hubs non-smoker.social drinker. HPV 16  postive.

We had to wait on starting 35 rounds of Rads, and 3 rounds Cisplatin, for 7 weeks, unfortuantly since they found my Hubs had an issue with retaining urine in his bladder that needed surgery..The process didnt start off well...sign..So finally on 10/20 hubs starts the journey..I took him everyday, and we found a way to enjoy our time together. After 2 days of treatment his face started to massively swell, and was sent 911 to hospital. Came home, and back we went..for a week..got out, started up again. and then on 12/6 ended up getting super dizzy, and eventualy started to fall, and go unconscious. Back to hospital. He was diagnosed with Ortho-static hypotension. Blood pressure would drop to 52-39 when he stood up. We left the hospital to have his final chemo on 12/8 and was so sick pressure 49/39 they sent him via ambulance back to hospital where he stayed for 10 days, not eating, talking, just laying there..He finally came home, however he was still falling, so he stayed in bed for a month, slowly making progress...We  were hopeful that the meds would start wearing off and he would start feeling better, eating, gaining weight, etc...It really didnt happen..Its a slow go over here.  After a while I wanted to find out more about his disease, and see what I can find in terms of stories, new medical procedures, and basically anthing else I could find with the information the doctors gave me.  I have carefully (with the assistance of my med-school daughter) hunted for info in regards to his prognosis and what may lay ahead. My concerns are this, (as  they have not answered me in front of my hubby) Do they always do surgery later? what are his risks for recurrence? and are his chances higher than those of you whom have had surgery? Will he need more Chemo? Cyber Knife? etc. I ask all of this, because my hubby is so weak.. He was 245 and now is 180 (which is a lot to most, however hubs is 6'3" and I call him my sasquach..He's not heavy, just big boned.. I like that term) He is sooo cold all the time, barely eats, just drinks shakes, maybe a pancake.. He cant stand for long at his Ortho static is still there, just not as strong. How would my hubs be able to withstand more treatment? Has anyone of you experienced any of these issues? I just worry for him so much... I don't know what to do..

Any help would be appreciated.

K~