newly diagnosed with PTC

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tristanava
tristanava Member Posts: 3
edited March 2015 in Thyroid Cancer #1

Hi I'm 44 years old.On January 21 of this year I had an anaphylactic reaction that sent me to the ER. During my visit to the ER they did a catscan and found a 1.1 cm nodule on my L thyroid which was Enlarged  and patch groundglass pamechymal densities in the bases of the lungs. I saw and an endocrinologist who did a biopsy on my thyroid and has now advised me it's PTC. I have surgery to remove the entire thyroid. She also said that she believed it was hashimoto disease. I still have no idea about the lungs and have no idea if the 2 could be related. I'm confused and unsure what to think. My PCP wants to wait till have the surgery to re catscan the lung. Dies anyone know what the patch ground glass things are and can anyone just give me a little advice on what to expect. I'm really scared. 

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  • Kiki1971
    Kiki1971 Member Posts: 1
    #2
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    Newly diagnosed as well

    Hey Tristan,

    I am newly diagnosed since February as well. Doctor felt enlarged right nodule day after Christmas during routine yearly physical. Ultrasound was done next, then fine needle biopsy. Diagnosed with PTC in a nodule that is 2.7cm. My TT is scheduled for June 24 and I am a nervous wreck. I have never had a surgery, nor do I look forward to being lethargic, depressed and what ever other horror stories I have read in here. I do not know if mine has gotten into my lungs or lymph nodes, but from what I have researched, I'm a T-2 due to my age and over all health, so I am in the high curable group. I think. lol I am 43, almost 44. I've not heard of the patch ground glass things though, just wanted to offer myself for support and to let you know that you are not alone and that my timeline is along with yours. :)

    Prayers!

    Kiki

  • Baldy
    Baldy Member Posts: 243
    #3
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    Ground Glass

    Hi Tristanava,

    I think your "patch ground glass pamechymal densities" are probably nothing to worry about.  "Ground glass" refers to what this type of thing looks like on a CT. When I looked it up, the definition didn't look bad.  It seems to be (small?) areas of your lungs that are in some way not working, do to fluid or blood or something.  I too had one of these show up on a CT several years ago, the only thing they did was schedule CTs over the next few years to make sure it wasn't growing.  If they stay the same size than they're probably due to an old injury, a bad cough or an infection that has long since gone away.  I couldn't find "Pamechymal", did you mean "parenchymal"?  If so, I think this just means they're in your lungs.

    You should talk to your doctor to find out for sure, I'm just some guy on the internet and I might have it wrong :)

    Alan

  • tristanava
    tristanava Member Posts: 3
    #4
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    Kiki1971 said:

    Newly diagnosed as well

    Hey Tristan,

    I am newly diagnosed since February as well. Doctor felt enlarged right nodule day after Christmas during routine yearly physical. Ultrasound was done next, then fine needle biopsy. Diagnosed with PTC in a nodule that is 2.7cm. My TT is scheduled for June 24 and I am a nervous wreck. I have never had a surgery, nor do I look forward to being lethargic, depressed and what ever other horror stories I have read in here. I do not know if mine has gotten into my lungs or lymph nodes, but from what I have researched, I'm a T-2 due to my age and over all health, so I am in the high curable group. I think. lol I am 43, almost 44. I've not heard of the patch ground glass things though, just wanted to offer myself for support and to let you know that you are not alone and that my timeline is along with yours. :)

    Prayers!

    Kiki

    Hi KikI
    Thank you for your

    Hi KikI

    Thank you for your support. I had my surgery March 6,2015 and they also took some lymphnodes to biopsy. Still waiting on results. I can say I feel like my body just doesn't feel the same. It's a big adjustment getting used to the extra medicInes. My husband thinks I should be up like nothing has happened but I feel like I'm on the outside looking in. Maybe it's just me and these feelings will go away. thanks for your support andI will be here as well. I'm sure it's just an adjustment I have to get through. 

  • tristanava
    tristanava Member Posts: 3
    #5
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    Baldy said:

    Ground Glass

    Hi Tristanava,

    I think your "patch ground glass pamechymal densities" are probably nothing to worry about.  "Ground glass" refers to what this type of thing looks like on a CT. When I looked it up, the definition didn't look bad.  It seems to be (small?) areas of your lungs that are in some way not working, do to fluid or blood or something.  I too had one of these show up on a CT several years ago, the only thing they did was schedule CTs over the next few years to make sure it wasn't growing.  If they stay the same size than they're probably due to an old injury, a bad cough or an infection that has long since gone away.  I couldn't find "Pamechymal", did you mean "parenchymal"?  If so, I think this just means they're in your lungs.

    You should talk to your doctor to find out for sure, I'm just some guy on the internet and I might have it wrong :)

    Alan

    Thanks Alan.
    Your words

    Thanks Alan.

    Your words helped alot I will follow up but you're right it's probably nothing. Just getting used to this no thyroid  and biopsies is difficult. I feel paranoid. 

  • MaryONeal28
    MaryONeal28 Member Posts: 1
    #6
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    tristanava said:

    Hi KikI
    Thank you for your

    Hi KikI

    Thank you for your support. I had my surgery March 6,2015 and they also took some lymphnodes to biopsy. Still waiting on results. I can say I feel like my body just doesn't feel the same. It's a big adjustment getting used to the extra medicInes. My husband thinks I should be up like nothing has happened but I feel like I'm on the outside looking in. Maybe it's just me and these feelings will go away. thanks for your support andI will be here as well. I'm sure it's just an adjustment I have to get through. 

    Hi

    My daughter's 32 year old bf just had surgery left lymph node removal and TT removal about 4 weeks ago and last week had right lymph nodes removed.  She says he mood is totally different and I was wondering if you could explain to me the way you feel.  She is totally devastated, because she says he is not her Tim.  I should tell you that I have been through this with my husband prostate cancer and have been through all the lectures of the "C", so although she understand his mood swings, I thought if you could tell me more how you feel I could help her understand.  If it's too personal I understand.  Thank you so much!

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