newbie to board

raymorris
raymorris Member Posts: 1
in Colorectal Cancer #1

Ray here. New to this board. i'm looking for folks who have, or have had, signet ring adenacarcinoma. I have it metastisized in my lungs. Been on chemo for over 3 years, but 5 FU it's beating it. CT scans every 3 months show growth of 1 - 2 mm each time. Have three this size and numerous to small to measure... or so they say. I would travel anywhere, do anything to get off chemo and find a natural cure. I hate putting poison (chemo) in my body. Read somewhere that 80% of oncologist would refuse chemo if they ever got cancer. Hate this ****!

Comments

  • jen2012
    jen2012 Member Posts: 1,607 Member
    #2
    No advice just a welcome.  

    No advice just a welcome.   hopefully tans will be by with some ideas that may be helpful to you.

     

  • NewHere
    NewHere Member Posts: 1,427 Member
    #3
    As You Can Tell From My Name

    I am new here also.  About 6 weeks into things.  I have a different cancer going on and have not started chemo yet.  Coming next week or so.

    The people here have been great and someone probably will have some information for you,

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #4
    Welcome

    Can't help you with what you have but hope your journey moves forward and you get answers from others that have been in your situation.

    Kim

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    #5
    Welcome

    I'm sorry that you have found this forum because it means that Cancer has blighted your life. 

    I know there are others here who have the same kind of Cancer as you do, but I am not one of them. 

    I hate Cancer too. We lose so many friends here on the forum, one very special lady just this week. I hate to lose friends and I hate to see people and their loved ones suffer through the disease. 

    I hope that all goes well with any treatments you may have.  There are others who have travelled over to Germany or gone down to Mexico looking for other treatments, but alas, the ones I know of are now gone, so make of that what you will.

    We are a great bunch of folks here, so stick around and we will help you along.

    Sue - Trubrit 

  • lilacbrroller
    lilacbrroller Member Posts: 412 Member
    #6
    Trubrit said:

    Welcome

    I'm sorry that you have found this forum because it means that Cancer has blighted your life. 

    I know there are others here who have the same kind of Cancer as you do, but I am not one of them. 

    I hate Cancer too. We lose so many friends here on the forum, one very special lady just this week. I hate to lose friends and I hate to see people and their loved ones suffer through the disease. 

    I hope that all goes well with any treatments you may have.  There are others who have travelled over to Germany or gone down to Mexico looking for other treatments, but alas, the ones I know of are now gone, so make of that what you will.

    We are a great bunch of folks here, so stick around and we will help you along.

    Sue - Trubrit 

    Welcome!

    Welcome to the forum. bummer you have to be here, but so are we.

    I"m a Stage IV and have lived 2 years and eight months with this lovely disease, and would win the "most mets contest" if there ever was one.  I've had most of the colorectal chemos, been to Germany (a real clinic, not a quack one) and am now doing US Government sponsored clinical trials.  Right now I'm in an immunotherapy trial.  I hear you about hating chemo, but I don't think natural cures work.  However, there is now a clinical trial in Israel using cannabis oil to treat cancer, and colorectal is included. Might just be limited to Israeli particiants who have a "weed license."  

    www.clinicaltrials.gov  is the website to find trials, and locations are global.  If you're interested in immunotherapy use advanced search with those key words.  Some immunotherapy is chemo (checkpoint inhibitors) and other types involve your white blood cells (no chemo). 

    Two people come to mind with signet ring: Maxiecat and Marbleotis.  I thought there were some more but I can't remember their names.  They don't post a lot but were fairly active at one time.  I think they are both NED, so that is why they don't post a lot.  I'm sure they wouldn't mind a private message from you, if you wanted to ask them questions.

    You're the fourth person Ive "met" on these forums with mets only to the lungs.  One guy's partner (Trapbear) lived six years before he died, which is pretty good for Stage IV. A couple others are still alive, and I don't know if they are signet ring but their mets also grow slowly and haven't spread anywhere else.  Some of the have gone for lung surgery (VATS) which seems to help. 

    Best of luck and enjoy our forum.  Another good forum is colon club. It's larger and more active, if you're looking for information. I've heard of another that features alternative treatments - colon chat? But I've never posted there. 

    Karin

  • Easyflip
    Easyflip Member Posts: 588 Member
    #7
    I've heard that 80% number

    also but every one of my oncologists would do chemo and I've had 5. I think it's a little urban mythish. I'm not opposed to natural cures but if you hang around long enough you get to know people who have died trying them. Now plenty of people die using chemo too so clearly there's no right answer and unfortunately no surefire cure. I think the odds are best with some thoughtful combination of the two. If you throw in quality of life then it all depends on the side effects and it becomes maybe a quality/quantity of life thing. That's something only you can decide. Good luck and best wishes. It's a tough call and yes, I hate this too.

    Easyflip/Richard

  • John23
    John23 Member Posts: 2,122 Member
    #8
    Alternative?

    There are other ways to fight cancer. There are absolutely no guarantees that any modality will work for you, but there are some that will not hurt you.

     

    I swore I would never post to this forum again, since there is an overwhelming amount of people that feel there is nothing that can work for fighting cancer except western medicine’s  chemicals, and denounce anything to the contrary. Nothing should be cast aside; any option may work better for you than something else.

     

    Read my blog:  http://csn.cancer.org/user/75969/blog   There are other options.

     

    Good luck; better health!

     

    John

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