Surgery coming up, could use advice on hospital stay

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TraciInLA
TraciInLA Member Posts: 1,994 Member

Thank you all so much for all your support as I get closer to my bilateral mastectomy on Thursday.  My partner Trace and I are as prepared as we can possibly be for my recovery at home, but I’m finding myself really anxious about my hospital stay, as I’ve never had to stay overnight in a hospital before (my lumpectomies in 2009 were outpatient).

My surgery is at 11 am, and is expected to take only 2 hours (because the surgery is prophylactic, and I’m having no reconstruction, it’s quicker than most ).  I should be in my room by midafternoon, and my surgeon expects to discharge me the next day.

So we’re only talking about 1 night, but I’m fretting over all the small stuff:  I know they want me to get up and get moving to prevent blood clots, but will I be hooked up to an IV for pain meds?  Do I have to drag the IV around with me?  They told me to bring a robe – how do you put on a robe if you have an IV in your arm?    

Are there any specific things you found made your hospital stay more comfortable?  I’d love any and all suggestions and reassurances that I can get through a long night in the hospital!

Thanks so much,

 

 

Traci

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Comments

  • jessiesmom1
    jessiesmom1 Member Posts: 915 Member
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    1 Night in the Hospital

    Good luck with your surgery. I plan to be on the Pink Bus when it gets to the parking lot. You will most certainly have an IV  in your arm. That is pretty much standard protocol. There is no way around that one. From my experience with hospital stays I strongly recommend that you bring earplugs. There is activity on the floor 24 hours a day - usually when you want to rest. It's even worse if you have a shared room. You might also want to find out if Trace will be allowed to stay overnight in your room. Some hospitals have chairs that pull out full length for family. It's really not so bad. Family, humor, good staff and good drugs will get you through this. 

    IRENE

     

     

  • aisling8
    aisling8 Member Posts: 1,627 Member
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    Believe it or not

    in another life I was a nurse, LVN on an orthopedics floor so though I have no idea if you'll still have your IV and what will be in that bag, I do know that yes, you get up and walk, and yes, you drag the pole with you, and you sort of half wear your robe, sticking the non IV arm into a sleeve and drape the robe over the IV side and kind of clutch it in place with your hand. Often a nurse walks with you and manages the pole. Or a loved one helps out. That's where Trace comes in:) If you're not a robe person, they just give you a hospital gown to wear to cover the gaping opening in the back. 

    I'll be thinking about you and sending all my good thoughts along with the rest of us here at CSN central. If you hear a lot of noise, it's all of us out on the front lawn cheering you on.

    xoxo

    Victoria

  • CarolS612
    CarolS612 Member Posts: 37 Member
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    Your hospital stay

    Hi!  If you are only going to be there for the night, it shouldn't be too bad.  The things I take are my I phone, I pad and chargers, clean underpants and a toothbrush ( there's are usually awful).  I usually watch tv on my iPad because they don't get many channels.  You will probably walk around with th IV pole but they are not heavy and actually make walking easier!  The nurses can temporarily disconnect the IV if needed for you to put your robe on!  Take anything with you that will make you more comfortable, just know that you won't need much for an overnight.

    Be sure to ask for what you need and want.....try not to wait until the last minute to ask for meds b/c they sometimes take a while.  Also, if you ask for things during shift changes, they tend to take a little longer.

    they might also let a friend or family member stay with you if it will help. 

    I have been in the hospital many times and it is not nearly as bad as you think.

     

    take Care

     

    Carol

     

     

  • Puffin2014
    Puffin2014 Member Posts: 531 Member
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    post op suggestions

    Hospitals can be noisy, even if you're in a private room - other people's call lights dinging, overhead pages, machine alarms - bring ear plugs. If you have sleep shades bring those too.

    Yes, you'll be hooked up to an IV on a pole, and will need to take the pole on wheels with you, but that can be good - it gives you something to hang onto! Do you have a port? If so, the IV tubing will be connected to your port and come up out of the top of your gown and you just wear your robe as usual. Otherwise, 2 options for the robe, you can either drape it over your shoulders and wrap it around and have your arms sticking out (or just have 1 arm in a sleeve and the other tucked inside) and tie it under your arms, or you can have the nurse or your partner "thread" the IV bag through the sleeve to the outside of your robe, followed by your arm.

    Remember, you're going to have very limited use of your arms after a bilateral, don't plan on taking a laptop with and typing on a keyboard. If you have a Kindle or iPod and want to read or listen to music that might be OK.

    Some ladies I've talked to said they loved having 2 big heart shaped pillows to support their arms - the top of the heart fits under your armpit and the pointy part of the heart rests on your hip or the bed when you're lying/sitting and then you can rest your arms on the pillows. I have a friend having surgery this week and I bought her 2 pillows at Walmart in the Valentines section. They were very soft and cuddly, variety of colors (pink, red, brown, black) for $11 each.

    I'm guessing with the pain pills you'll end up sleeping through the night other than when the nurses wake you up to check your BP, etc. If it's only a one night stay, I wouldn't try and bring a lot with to do.

     

     

  • TraciInLA
    TraciInLA Member Posts: 1,994 Member
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    aisling8 said:

    Believe it or not

    in another life I was a nurse, LVN on an orthopedics floor so though I have no idea if you'll still have your IV and what will be in that bag, I do know that yes, you get up and walk, and yes, you drag the pole with you, and you sort of half wear your robe, sticking the non IV arm into a sleeve and drape the robe over the IV side and kind of clutch it in place with your hand. Often a nurse walks with you and manages the pole. Or a loved one helps out. That's where Trace comes in:) If you're not a robe person, they just give you a hospital gown to wear to cover the gaping opening in the back. 

    I'll be thinking about you and sending all my good thoughts along with the rest of us here at CSN central. If you hear a lot of noise, it's all of us out on the front lawn cheering you on.

    xoxo

    Victoria

    I'll tell the Coffee Cart Guy to expect you!

    Thanks very much for the explanation and good thoughts, Victoria -- I bought a new pretty, super cuddly robe for this auspicious occasion, so I'm da*n sure gonna wear it, even if I have to lurch down the hospital hallway like Quasimodo!

    As far as the front lawn of the hospital....you all may want to bring some cash, as there's a nice guy with a coffee cart out in front of the hospital who would be glad to supply all of you with caffeine!

    When I went through treatment back in 2009 (surgery + chemo + radiation, all at the same hospital as now), our joke was that the only person at that hospital who had NOT seen my breasts was the Coffee Cart Guy....maybe I need to flash him on my way in on Thursday, since this will be his last chance?

    Surprised Traci

  • Clementine_P
    Clementine_P Member Posts: 518 Member
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    It won't be too bad.

    Traci, since it is just one night, it won't be bad.  I think the other ladies filled you in on the specifics.  I recommend that Trace brings a pillow in the car for your ride home.  This way you can buckle your seatbelt but the belt won't rub you where you just had surgery.  Funny, I too thought about flashing pretty much anyone and everyone I could just because it was going to be my last chance and why not live a little crazily.  In the end, I didn't because I thought that the hospital would be preferable over a jail cell for the night.  Hang in there, once the surgery is over, I'm sure you will, among other things, feel a sense of relief.

    Very best,

    Clem

     

  • fauxma
    fauxma Member Posts: 3,577 Member
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    It won't be too bad.

    Traci, since it is just one night, it won't be bad.  I think the other ladies filled you in on the specifics.  I recommend that Trace brings a pillow in the car for your ride home.  This way you can buckle your seatbelt but the belt won't rub you where you just had surgery.  Funny, I too thought about flashing pretty much anyone and everyone I could just because it was going to be my last chance and why not live a little crazily.  In the end, I didn't because I thought that the hospital would be preferable over a jail cell for the night.  Hang in there, once the surgery is over, I'm sure you will, among other things, feel a sense of relief.

    Very best,

    Clem

     

    Since it is just one night

    Since it is just one night you will only need a small flask of adult beverages and a small bag of forbidden snacks.  Just kidding.  You have received a pretty good picture of what you will need and what to expect.  One thing to remember you will be sore so use whatever assistance you need from whomever offers.  Don't strain anything trying to be too tough.  My best thoughts are with you that this will be without any hitches. 

    Stef

  • GlowMore
    GlowMore Member Posts: 789 Member
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    fauxma said:

    Since it is just one night

    Since it is just one night you will only need a small flask of adult beverages and a small bag of forbidden snacks.  Just kidding.  You have received a pretty good picture of what you will need and what to expect.  One thing to remember you will be sore so use whatever assistance you need from whomever offers.  Don't strain anything trying to be too tough.  My best thoughts are with you that this will be without any hitches. 

    Stef

    Prayers

    Prayers for strength and courage.......I know you are afraid because I sure was each and every time I had to hit the hospital.......but like all the other ladies are saying.......it is only one night and maybe Trace can stay with you.  Please get back to us as soon as you are able...meanwhile we send you love and hope all goes well.

  • New Flower
    New Flower Member Posts: 4,294
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    GlowMore said:

    Prayers

    Prayers for strength and courage.......I know you are afraid because I sure was each and every time I had to hit the hospital.......but like all the other ladies are saying.......it is only one night and maybe Trace can stay with you.  Please get back to us as soon as you are able...meanwhile we send you love and hope all goes well.

    Good luck on 29th I will be thinking about you

    Well Traci it is overwhelming for sure, however we can use some humor, right?

    First of all, after surgery they should put you in recovery room for 2-3 hours. They will monitor your heart, blood pressure  making sure you are coming out of general anastesia pretty well. They mov you  to the patient room. The good news you will be hooked to pain medications which you can pump yourself on needed basis. Please do not pump too much. Do not remember about rob much, however when it is a right time to take a walk nurses and med assisstants will come, disconnect you and walk with you. After your first walk you can continue to walk or sit or sleep. What hospital are you going to use? Are you going to have a privite room? Nurses will continue to annoy you by taking your temperature, blood pressure, urine and blood while you will try to sleep. Some resident or student nurse maybe stops by and you will hate them all and dream about going home as soon as doctor release you.

    I hope everything will go smoothly and quick recovery will follow.

    Hugs and positive thoughts my dear freind. Это совсем не страшно. Все будет хорошо!!! 

  • Christmas Girl
    Christmas Girl Member Posts: 3,682 Member
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    TraciInLA said:

    I'll tell the Coffee Cart Guy to expect you!

    Thanks very much for the explanation and good thoughts, Victoria -- I bought a new pretty, super cuddly robe for this auspicious occasion, so I'm da*n sure gonna wear it, even if I have to lurch down the hospital hallway like Quasimodo!

    As far as the front lawn of the hospital....you all may want to bring some cash, as there's a nice guy with a coffee cart out in front of the hospital who would be glad to supply all of you with caffeine!

    When I went through treatment back in 2009 (surgery + chemo + radiation, all at the same hospital as now), our joke was that the only person at that hospital who had NOT seen my breasts was the Coffee Cart Guy....maybe I need to flash him on my way in on Thursday, since this will be his last chance?

    Surprised Traci

    Can't add anything to help you out here...

    It's all already been covered.

    Me, too - will be out on the front lawn for ya, come Thursday. We'll be one helluva group, fueled by too much coffee.

    Sending hopeful best wishes for surgery to go well, and for good healing/recovery.

    Kind regards, Susan

  • lintx
    lintx Member Posts: 697
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    Good luck on 29th I will be thinking about you

    Well Traci it is overwhelming for sure, however we can use some humor, right?

    First of all, after surgery they should put you in recovery room for 2-3 hours. They will monitor your heart, blood pressure  making sure you are coming out of general anastesia pretty well. They mov you  to the patient room. The good news you will be hooked to pain medications which you can pump yourself on needed basis. Please do not pump too much. Do not remember about rob much, however when it is a right time to take a walk nurses and med assisstants will come, disconnect you and walk with you. After your first walk you can continue to walk or sit or sleep. What hospital are you going to use? Are you going to have a privite room? Nurses will continue to annoy you by taking your temperature, blood pressure, urine and blood while you will try to sleep. Some resident or student nurse maybe stops by and you will hate them all and dream about going home as soon as doctor release you.

    I hope everything will go smoothly and quick recovery will follow.

    Hugs and positive thoughts my dear freind. Это совсем не страшно. Все будет хорошо!!! 

    Hey Traci

    I think it'll be an easy surgery for you.  I had that surgery w/immediate  reconstruction and never even used the pain pump or meds at home.  I walked the hallway w/IV a little like the "hunchback," and so will you!  Your sense of humor will get you through.  By the way, yes, I love Trader Joe's and the great recipes.  Thanks!  Now go flash that coffee cart guy!!!!!!!!!!!!!!!!!!!!!!  Linda

  • lintx said:

    Hey Traci

    I think it'll be an easy surgery for you.  I had that surgery w/immediate  reconstruction and never even used the pain pump or meds at home.  I walked the hallway w/IV a little like the "hunchback," and so will you!  Your sense of humor will get you through.  By the way, yes, I love Trader Joe's and the great recipes.  Thanks!  Now go flash that coffee cart guy!!!!!!!!!!!!!!!!!!!!!!  Linda

    Outpatient vs. Inpatient

    So, a late morning surgery.

    Expect someone to order a light meal for you to try to down...but don't be surprised if you have nausea.  Keep the spit up bowl near, dear, vomit is not a good color on any of us.  Pssst...It's a residual effect of the anesthesia.  

    No one seemed particularly concerned about making me walk around post mastectomy nor my more recent biopsy of the "good" breast.  Both procedures, maybe because of the general anesthesia, had me wearing some lovely inflatable leg wraps that would inflate and deflate to help prevent clotting.  I did not have those for the lighter procedures like insertion/extraction of my chest port.  Too, my disposable paper gowns could be connected to a warm air blower (no kidding) to maintain a consistent temperature. And no hospital ensemble would be complete without the tissue paper hairnet and funky no skid socks.

    I have a rather amusing tale of wearing the haute couture outfit and standing around the women's center waiting for a guide wire to be inserted.  It's a knee slapper...maybe at our next brunch. 

    I spent one restless night, hospitals are really quite noisy, and the big emphasis placed upon me was my resuming my ability to go "potty".  I was more than delighted to fulfill my nurses make a wish, just so I could go home and get some actual rest.

    As for the process, I expected some discomfort and was pleasantly surprised by the lack of such.  I did not, however, expect the Jackson-Pratt drain.  I understand when I have my own second prophylactic procedure I will again require this appendage, but I digress.  To accommodate my tenderness and temporarily decreased range of motion, I found oversized zip-up hoodies to be a God send.  The generous size also allowed me to safety pin the drain up and I was quickly walking around my neighborhood...after I caught up on my sleep.

    And for heaven's sake, wear new (no holes, tears, nor rubber band strings!) panties when you go and bring clean panties to wear home.  

    You are in our prayers.

     

  • Lilly9
    Lilly9 Member Posts: 155
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    Outpatient vs. Inpatient

    So, a late morning surgery.

    Expect someone to order a light meal for you to try to down...but don't be surprised if you have nausea.  Keep the spit up bowl near, dear, vomit is not a good color on any of us.  Pssst...It's a residual effect of the anesthesia.  

    No one seemed particularly concerned about making me walk around post mastectomy nor my more recent biopsy of the "good" breast.  Both procedures, maybe because of the general anesthesia, had me wearing some lovely inflatable leg wraps that would inflate and deflate to help prevent clotting.  I did not have those for the lighter procedures like insertion/extraction of my chest port.  Too, my disposable paper gowns could be connected to a warm air blower (no kidding) to maintain a consistent temperature. And no hospital ensemble would be complete without the tissue paper hairnet and funky no skid socks.

    I have a rather amusing tale of wearing the haute couture outfit and standing around the women's center waiting for a guide wire to be inserted.  It's a knee slapper...maybe at our next brunch. 

    I spent one restless night, hospitals are really quite noisy, and the big emphasis placed upon me was my resuming my ability to go "potty".  I was more than delighted to fulfill my nurses make a wish, just so I could go home and get some actual rest.

    As for the process, I expected some discomfort and was pleasantly surprised by the lack of such.  I did not, however, expect the Jackson-Pratt drain.  I understand when I have my own second prophylactic procedure I will again require this appendage, but I digress.  To accommodate my tenderness and temporarily decreased range of motion, I found oversized zip-up hoodies to be a God send.  The generous size also allowed me to safety pin the drain up and I was quickly walking around my neighborhood...after I caught up on my sleep.

    And for heaven's sake, wear new (no holes, tears, nor rubber band strings!) panties when you go and bring clean panties to wear home.  

    You are in our prayers.

     

    The ladies above have pretty

    The ladies above have pretty well covered it.   One thing you need to keep in mine is the ride home.   Bring something that is simple to get into and out of - fits loosely.  You will want to have a pillow - one that you can put between you and your seatbelt for the trip home.

     

    I feel fortunate that my hospital stays were pleasant.  Our hospital networks all have a woman's pavillion and an area for breast cancer patients.  When I had my dbl mastectomy I was actually in a "suite" - Hubby had a couch that pulled out into a full size bed, comfy blankets.  It was roomy and had a lot of amenities.  I was impressed. especially after I ended up having to stay several nights.

     

    Good luck and I will be keeping you in my prayers

  • VickiSam
    VickiSam Member Posts: 9,079 Member
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    Lilly9 said:

    The ladies above have pretty

    The ladies above have pretty well covered it.   One thing you need to keep in mine is the ride home.   Bring something that is simple to get into and out of - fits loosely.  You will want to have a pillow - one that you can put between you and your seatbelt for the trip home.

     

    I feel fortunate that my hospital stays were pleasant.  Our hospital networks all have a woman's pavillion and an area for breast cancer patients.  When I had my dbl mastectomy I was actually in a "suite" - Hubby had a couch that pulled out into a full size bed, comfy blankets.  It was roomy and had a lot of amenities.  I was impressed. especially after I ended up having to stay several nights.

     

    Good luck and I will be keeping you in my prayers

    I so enjoyed my walk thru memory lane - reading the

    above posted suggestions --  Oh Lord, what we live thru --

    I would only add ....

     

    dedorant --(as you are NOT allow any the day of surgery)

    IPOD -- plug in your favorite music, or book  (noisy at hospital )  You will need your sleep

    Lip balm -- your lips will be sore, and chapped from surgery

    Nice walking slippers -- as you will be asked to walk the halls as many times as possible to keep your lungs clear - I did map out an escape route after day 3 of my bilateral mastectomy stay ..

    HUMOR --  My experience, nurses will ask you to get up and use bathroom even tho you have NO upper arm strength - and when all is done - you are back in bed falling asleep, a staff member will come in, wake you happy asssssss up and take your temp, and blood pressure - as you are silently praying for them to go away and leave you alone,  they will start a 20 minute conversation.  Yes, this happens even at 2 a.m. in the morning :) 

    Love You,

    Vicki Sam

     

  • TraciInLA
    TraciInLA Member Posts: 1,994 Member
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    VickiSam said:

    I so enjoyed my walk thru memory lane - reading the

    above posted suggestions --  Oh Lord, what we live thru --

    I would only add ....

     

    dedorant --(as you are NOT allow any the day of surgery)

    IPOD -- plug in your favorite music, or book  (noisy at hospital )  You will need your sleep

    Lip balm -- your lips will be sore, and chapped from surgery

    Nice walking slippers -- as you will be asked to walk the halls as many times as possible to keep your lungs clear - I did map out an escape route after day 3 of my bilateral mastectomy stay ..

    HUMOR --  My experience, nurses will ask you to get up and use bathroom even tho you have NO upper arm strength - and when all is done - you are back in bed falling asleep, a staff member will come in, wake you happy asssssss up and take your temp, and blood pressure - as you are silently praying for them to go away and leave you alone,  they will start a 20 minute conversation.  Yes, this happens even at 2 a.m. in the morning :) 

    Love You,

    Vicki Sam

     

    Flask of adult beverages & escape route

    You ladies make me laugh -- thank you so much!

    Actually, Stef -- that flask is gonna have to have fully leaded Pepsi in it -- NO ONE is going to want to be in my presence once I've gone 24 hours without my beloved morning caffeien/sugar hit!  VickiSam -- while I'm in surgery, instead of mapping out an escape route for me, could you maybe map out a route from my room to the nearest Pepsi machine?

    Cool Traci

  • TraciInLA
    TraciInLA Member Posts: 1,994 Member
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    aisling8 said:

    Believe it or not

    in another life I was a nurse, LVN on an orthopedics floor so though I have no idea if you'll still have your IV and what will be in that bag, I do know that yes, you get up and walk, and yes, you drag the pole with you, and you sort of half wear your robe, sticking the non IV arm into a sleeve and drape the robe over the IV side and kind of clutch it in place with your hand. Often a nurse walks with you and manages the pole. Or a loved one helps out. That's where Trace comes in:) If you're not a robe person, they just give you a hospital gown to wear to cover the gaping opening in the back. 

    I'll be thinking about you and sending all my good thoughts along with the rest of us here at CSN central. If you hear a lot of noise, it's all of us out on the front lawn cheering you on.

    xoxo

    Victoria

    THANK YOU, Victoria!

    I just received the adorable card you sent me, Victoria -- it will have pride of place next to my recliner (and my Pepsi stash).

    Big hug to you,

    Traci

  • GreeneyedGirl
    GreeneyedGirl Member Posts: 1,077
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    ~~♥♥♥~~

    Hey Traci~

    When I had my mastectomy they placed a pain pump with meds in the surgical incision. so I never had to worry about pain from the "get go"...It was nice to have. When it ran out, all was well and the dr. just removes the tiny wire like implant. poof! done!

    I always ask for ativan before surgeries to help me rest up the few nights before...

    You will do fine, and sounds like you will have great care at home!

    ~M

  • natly15
    natly15 Member Posts: 1,941
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    ~~♥♥♥~~

    Hey Traci~

    When I had my mastectomy they placed a pain pump with meds in the surgical incision. so I never had to worry about pain from the "get go"...It was nice to have. When it ran out, all was well and the dr. just removes the tiny wire like implant. poof! done!

    I always ask for ativan before surgeries to help me rest up the few nights before...

    You will do fine, and sounds like you will have great care at home!

    ~M

    Oh cousin Traci sending some

    Oh cousin Traci sending some love your way. Hope this surgery is fast and painless. Hang in there. (Hugs)

  • cinnamonsmile
    cinnamonsmile Member Posts: 1,187 Member
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    Make sure if the nurses pin

    Make sure if the nurses pin your drain tubes to your gown they aren't too low and try and stop them from swinging when you walk or they could hurt. I know mine did, but I had unusual amounts of pain with the bmx and node removal.

    Hold the drain tubes near the opening when you milk them so you don't pull on the stitches holding them in.

    good luck.

  • fauxma
    fauxma Member Posts: 3,577 Member
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    TraciInLA said:

    Flask of adult beverages & escape route

    You ladies make me laugh -- thank you so much!

    Actually, Stef -- that flask is gonna have to have fully leaded Pepsi in it -- NO ONE is going to want to be in my presence once I've gone 24 hours without my beloved morning caffeien/sugar hit!  VickiSam -- while I'm in surgery, instead of mapping out an escape route for me, could you maybe map out a route from my room to the nearest Pepsi machine?

    Cool Traci

    I'm a pepsi gal also but diet

    I'm a pepsi gal also but diet because of my diabetes.  I like a glass in the morning just like some people like their coffee.  So I will be thinking of you when I have my "coffee" in the morning.  So here's to you Traci.  Maybe we could just have the pepsi machine put in your room and hooked up to your IV.  Direct route.  All kidding aside good thoughts for you.

    Stef