Ok. Come out, come out wherever you are... FOX and TODD

Srashedb
Srashedb Member Posts: 482 Member
in Kidney Cancer #1

it has been way too long since either of you posted and inquiring mind(s) want to hear from you.

Sarah

Comments

  • foxhd
    foxhd Member Posts: 3,181 Member
    #2
    posting

    I put up something everyday. It must get overlooked in the middle of a thread. Besides this is what my ranting threads are about. This forum needs more member interaction. I've been posting for 3 years and I think I have the most posts of any current members. What else can I have to say? I'll bet that more than 20 people read this every day. 50 people in a week. In that same week 60% of posts are new people who post to get information for themselves or a loved one. Once they get what they want, they disappear. They don't give back to the forum by sharing their experiences with others. Particularly other new people who they have the most in common with. Now I'm almost 4 years from my surgery. Lap vs open procedure has no importance to me. And sutent vs votrient. I've never used either. I've never had any oral meds. MDX-1106 trial is history. And there are few who have had Il-2. We really don't like to talk about it. So there isn't as much that I have in common here as I used to. We need more lurkers to keep discussions going.

  • Phoenix Rising
    Phoenix Rising Member Posts: 170
    #3
    I agree w/ FOXHD

    I, too, wish more lurkers would step out and offer up advice.  I try to chime in whenever someone says they have the papillary type.  Since there are so few of us, it is difficult to find information on what works for us, and it is also difficult to find encouragement from others with this type.   

  • dhs1963
    dhs1963 Member Posts: 513
    #4
    I am here, but been dealing with some non-cancer issues

    I am approaching two years from my lung wedge resection, which will be 2 years NED....That is a big deal.  But, instead of everything being awesome, my caridiac issues crept into focus...I was having some probable angina, so I went in for a stress test....which ended dramatically with me passing out/fainting and going asytolic twice for 12 seconds each.  Apparently, that is what I do when I faint:  my heart stops.  I have now fainted four times on monitors and all four times, my heart stopped.

    After that, I got a 100K christmas week, culminating in a brand new 2014 MRI friendly Pacemaker.  Before that, though, they cath'd me to determine the cause of the angina, and I got three stents for 100% blockages.  The good news was my 2013 stent is doing well.

     

  • Srashedb
    Srashedb Member Posts: 482 Member
    #5
    foxhd said:

    posting

    I put up something everyday. It must get overlooked in the middle of a thread. Besides this is what my ranting threads are about. This forum needs more member interaction. I've been posting for 3 years and I think I have the most posts of any current members. What else can I have to say? I'll bet that more than 20 people read this every day. 50 people in a week. In that same week 60% of posts are new people who post to get information for themselves or a loved one. Once they get what they want, they disappear. They don't give back to the forum by sharing their experiences with others. Particularly other new people who they have the most in common with. Now I'm almost 4 years from my surgery. Lap vs open procedure has no importance to me. And sutent vs votrient. I've never used either. I've never had any oral meds. MDX-1106 trial is history. And there are few who have had Il-2. We really don't like to talk about it. So there isn't as much that I have in common here as I used to. We need more lurkers to keep discussions going.

    Ok

    Fox:

    what you say/write makes "linear" sense; so, I guess I happen to miss your posts and you never get old to read.

    Sarah

  • Jojo61
    Jojo61 Member Posts: 1,309 Member
    #6
    dhs1963 said:

    I am here, but been dealing with some non-cancer issues

    I am approaching two years from my lung wedge resection, which will be 2 years NED....That is a big deal.  But, instead of everything being awesome, my caridiac issues crept into focus...I was having some probable angina, so I went in for a stress test....which ended dramatically with me passing out/fainting and going asytolic twice for 12 seconds each.  Apparently, that is what I do when I faint:  my heart stops.  I have now fainted four times on monitors and all four times, my heart stopped.

    After that, I got a 100K christmas week, culminating in a brand new 2014 MRI friendly Pacemaker.  Before that, though, they cath'd me to determine the cause of the angina, and I got three stents for 100% blockages.  The good news was my 2013 stent is doing well.

     

    I have noticed that the

    I have noticed that the peanut gallery has been a little quiet lately. Sealed  You guys gotta know you are missed!

    We still are yet to hear from Todd. I hope he pops by soon.

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    #7
    dhs1963 said:

    I am here, but been dealing with some non-cancer issues

    I am approaching two years from my lung wedge resection, which will be 2 years NED....That is a big deal.  But, instead of everything being awesome, my caridiac issues crept into focus...I was having some probable angina, so I went in for a stress test....which ended dramatically with me passing out/fainting and going asytolic twice for 12 seconds each.  Apparently, that is what I do when I faint:  my heart stops.  I have now fainted four times on monitors and all four times, my heart stopped.

    After that, I got a 100K christmas week, culminating in a brand new 2014 MRI friendly Pacemaker.  Before that, though, they cath'd me to determine the cause of the angina, and I got three stents for 100% blockages.  The good news was my 2013 stent is doing well.

     

    You don't know me, but just

    You don't know me, but just wanted to say I am sorry for all you have been going through due to your cardiac issues AND at Christmas time! Makes you appreciate each and every day, right?

    So..I am sending you a hug and well wishes! Hopefully your expensive pacemaker will do the trick!

    Warmly, Jan

  • Jan4you
    Jan4you Member Posts: 1,330 Member
    #8
    Jan4you said:

    You don't know me, but just

    You don't know me, but just wanted to say I am sorry for all you have been going through due to your cardiac issues AND at Christmas time! Makes you appreciate each and every day, right?

    So..I am sending you a hug and well wishes! Hopefully your expensive pacemaker will do the trick!

    Warmly, Jan

    Since I have been on other

    Since I have been on other medical forums for last 10 years, I do notice that THIS forum does not have a way to send us an email whenever someone else posts on a thread you also posted on. This helps me stay in touch with others and keep more involved on these other forums.

    Not sure why we cannot get that kind of program. But I think it would help.

    Just MY 2 cents!!!

    Jan

  • mrou50
    mrou50 Member Posts: 389 Member
    #9
    foxhd said:

    posting

    I put up something everyday. It must get overlooked in the middle of a thread. Besides this is what my ranting threads are about. This forum needs more member interaction. I've been posting for 3 years and I think I have the most posts of any current members. What else can I have to say? I'll bet that more than 20 people read this every day. 50 people in a week. In that same week 60% of posts are new people who post to get information for themselves or a loved one. Once they get what they want, they disappear. They don't give back to the forum by sharing their experiences with others. Particularly other new people who they have the most in common with. Now I'm almost 4 years from my surgery. Lap vs open procedure has no importance to me. And sutent vs votrient. I've never used either. I've never had any oral meds. MDX-1106 trial is history. And there are few who have had Il-2. We really don't like to talk about it. So there isn't as much that I have in common here as I used to. We need more lurkers to keep discussions going.

    Fox Sorry

    I joined this forum in 2013 and was on it quite a bit for a while then as I kept getting good news I stopped coming on.  I apologize I guess for me I did not want to read about re occurences as I went on.  By not reading about them I guess I felt it would never happen now I know better cancer has a mind of its own, and I should have never bragged that I beat it, I only one round one.  I apologize to all of the regulars on this forum and I promise to try and do a better job of keeping up.  I know now that I can't hide from cancer and it wont just go away, cancer is a part of me now and always will be.  I will attempt to be more supportive to everyone and to share any information that will help others as I go back into battle with this disease.  Again I apologize for losing contact.

    Mark

     

  • foxhd
    foxhd Member Posts: 3,181 Member
    #10
    mrou50 said:

    Fox Sorry

    I joined this forum in 2013 and was on it quite a bit for a while then as I kept getting good news I stopped coming on.  I apologize I guess for me I did not want to read about re occurences as I went on.  By not reading about them I guess I felt it would never happen now I know better cancer has a mind of its own, and I should have never bragged that I beat it, I only one round one.  I apologize to all of the regulars on this forum and I promise to try and do a better job of keeping up.  I know now that I can't hide from cancer and it wont just go away, cancer is a part of me now and always will be.  I will attempt to be more supportive to everyone and to share any information that will help others as I go back into battle with this disease.  Again I apologize for losing contact.

    Mark

     

    mrou,

    it sounds like you have recently had a scan and it was not clear of growth. I hope it is nothing.

  • dhs1963
    dhs1963 Member Posts: 513
    #11
    Jan4you said:

    You don't know me, but just

    You don't know me, but just wanted to say I am sorry for all you have been going through due to your cardiac issues AND at Christmas time! Makes you appreciate each and every day, right?

    So..I am sending you a hug and well wishes! Hopefully your expensive pacemaker will do the trick!

    Warmly, Jan

    Thanks!

    The important thing is the problems were caught before the heart attack.  Frankly, because of family history, I always figured I woul dhave heart problems by 40.  I made it to 50...

     

    The cancer is far scarier than the heart issues

  • todd121
    todd121 Member Posts: 1,448 Member
    #12
    Jojo61 said:

    I have noticed that the

    I have noticed that the peanut gallery has been a little quiet lately. Sealed  You guys gotta know you are missed!

    We still are yet to hear from Todd. I hope he pops by soon.

    Hello Jojo!

    Yes. I'm here. :)

    Thanks for asking about me. I'm hoping to catch up and see what you guys have been up to. 

    Good to see you all.

    Todd

  • Jojo61
    Jojo61 Member Posts: 1,309 Member
    #13
    todd121 said:

    Hello Jojo!

    Yes. I'm here. :)

    Thanks for asking about me. I'm hoping to catch up and see what you guys have been up to. 

    Good to see you all.

    Todd

    TODD!!!!!

    I was about to send a search party out for you!

    So nice to see you here again - albeit short, but sweet - very sweet. Hope all is well. We do miss you and hope you can stay a little longer some time soon.

    Hugs

    Jojo

  • brea588
    brea588 Member Posts: 240
    #14
    dhs1963 said:

    Thanks!

    The important thing is the problems were caught before the heart attack.  Frankly, because of family history, I always figured I woul dhave heart problems by 40.  I made it to 50...

     

    The cancer is far scarier than the heart issues

    thats true

    For me cancer was much scarier that heart issues.  Glad to see you are doing better.  Prayers and thoughts for you.

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